InfantReflux.Org Forums

InfantReflux.Org Forums http://www.infantreflux.org/forum This is an XML content feed of; InfantReflux.Org Forums : Last 10 Posts Copyright (c) 2006 Web Wiz Forums - All Rights Reserved. Thu, 11 Mar 2010 15:47:36 +0000 Thu, 11 Mar 2010 14:09:17 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 8.06 30 www.infantreflux.org/forum/RSS_topic_feed.asp InfantReflux.Org Forums http://www.infantreflux.org/forum/http://www.infantreflux.org/images/Logos/forum_logo.gif http://www.infantreflux.org/forum Keeping In Touch : Need some prayers http://www.infantreflux.org/forum/forum_posts.asp?TID=13616&PID=108894#108894 Author: Cooper's mom
Subject: Need some prayers
Posted: 11 March 2010 at 2:09pm

Hi Ladies
I am so happy to be able to post something that is non reflux related, but sad that I am even having to post at all.
Caroline was 8wks old yesterday. We noticed last Friday that her right eyelid was swollen so we have been watching it. Yesterday it looked redder than usual so I took her into to our ped, had an appt with the nurse practicioner who is a friend but she brought our ped in as well b/c they were concerned. They sent us straight to the eye doctor (the ped specialist is of course on vacation this week) and everyone seems to think it is a hemangioma underneath her eyelid... UGH so we are about to go follow up with the eye doctor again shortly and then will most likely see the ped eye doctor next week. They put her on antibiotics in case it is just an infection but noone seems optimistic that that is the case. If this were on any other part of her body I wouldn't be so worried but she can't open her right eye all the way b/c of the "swelling" and they are concerned that it may affect her vision. I just think that the more people who send up prayers/positive thoughts the better off we will be. I'll keep everyone posted as I find out more.
TIA]]> Thu, 11 Mar 2010 14:09:17 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13616&PID=108894#108894 Boo-Hoo! I need YOU! : "may get worse before it gets better" http://www.infantreflux.org/forum/forum_posts.asp?TID=13615&PID=108893#108893 Author: alw24ga
Subject: "may get worse before it gets better"
Posted: 11 March 2010 at 11:23am

Here recently my baby boy has been getting worse and worse. He coughs more, he chokes more, he stays congested, etc.

We saw the GI for the first time today. He went over the results from our sons pH probe and Upper GI. He has suggested that we do small frequent feedings (every 2 hours including at night). He has also suggested that we sleep him at a 30 degree angle on his stomach.

We also suspect a food allergy because he has recently had green, mucusy poops with a bad smell to them (He is breastfed so this is odd for him). Sure enough the GI found that he also had blood in it. We then sent it in for a full culture to rule out any infection and make sure this is an allergy we are actually dealing with.

I plan on trying the elimination diet to see what foods might be effecting him. I have not been having any dairy for weeks now (I was allergic as a child and I strongly suspect that). I am also thinking he may be allergic to tomatoes and beef. Today is my first day on the new diet so it will also be the first day I have completely cut this stuff out.

This will be a very demanding schedule for me. Constantly logging my food intake, his feedings, and stools. Feeding every two hours will mean less sleep and less time for social activity(especially since he will no longer take a bottle at all). I am more than willing to do this if it will help him.

My question is has anyone done anything similar? What were the results?
]]> Thu, 11 Mar 2010 11:23:19 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13615&PID=108893#108893 Medicines : Generic Axid http://www.infantreflux.org/forum/forum_posts.asp?TID=13613&PID=108892#108892 Author: hellbennt
Subject: Generic Axid
Posted: 10 March 2010 at 9:44pm

sorry no one's answered you...
I really don' t know but i would imagine it's the same effectiveness...
]]> Wed, 10 Mar 2010 21:44:54 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13613&PID=108892#108892 Feeding Issues and Aversions : baby beginning to only sleep feed http://www.infantreflux.org/forum/forum_posts.asp?TID=13614&PID=108891#108891 Author: s&h's mum
Subject: baby beginning to only sleep feed
Posted: 10 March 2010 at 5:14pm

My daughter had a feeding aversion and would only sleep feed, and even that was very difficult. I would say that your son needs more prevaic, like 15mg twice a day. if the dose isn't high enough than it won't be enough medicine to help. If he's still in pain than he won't eat well. I'd read www.marci-kids.com to find out what type of med you want and how much before seeing the GI. For us, we needed to get the meds high enough, and then we started feeding therapy at 8 months. Also with the meds, you need to give on an empty stomach and followed up with a meal 30-60 minutes later if you're doing the solutabs, otherwise they won't work well. Good luck.]]> Wed, 10 Mar 2010 17:14:34 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13614&PID=108891#108891 Feeding Issues and Aversions : baby beginning to only sleep feed http://www.infantreflux.org/forum/forum_posts.asp?TID=13614&PID=108890#108890 Author: hgmommy
Subject: baby beginning to only sleep feed
Posted: 10 March 2010 at 5:12pm

Hi there,

Hugs to you

I am in the exact same position as you. We just got our diagnosis yesterday of reflux AND dysphagia. He refused all bottles during the day and would only take one bottle at night and a few ounces more. This is a total of 10 oz per day. I had to raise a red flag to our Dr before they would investigate.

Our story is very much the same but my little guy had multiple respiratory infections and ear infections and they blammed his lack of eating due to that. I too stopped breastfeeding because he kept popping off and on over and over and all I did was sit there and feed him all day. Moving to a bottle proved more difficult and here we are now.

I don't have any advice but to say I'm here with you. HOpefully we can get our little guys to eat during the day again.

]]> Wed, 10 Mar 2010 17:12:15 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13614&PID=108890#108890 HELP!!! : Update and ear trouble http://www.infantreflux.org/forum/forum_posts.asp?TID=13608&PID=108889#108889 Author: Anne
Subject: Update and ear trouble
Posted: 10 March 2010 at 4:02pm

Hi ladies,

thanks so much for your thoughts and sharing your stories. It helps so much to know what your experiences were. So many moms tell me their children have/had ear tubes but many of them do not also have reflux and our kind of sleeping issues in the mix, as well. I am hoping so much that this will improve things. The ped gi wants to do an endoscopy too, and I'm calling today to see if he's doing a ph probe as well. Anyways, I really appreciate your thoughts. This forum has done so much for us, even though i've used it sparingly with Norah and I've been largely absent with trying to handle two and not sleeping well this time around, either. Just knowing that this is there in the world to ask a question or to get support is amazing. Thanks.

--anne]]> Wed, 10 Mar 2010 16:02:10 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13608&PID=108889#108889 Feeding Issues and Aversions : baby beginning to only sleep feed http://www.infantreflux.org/forum/forum_posts.asp?TID=13614&PID=108888#108888 Author: erica22
Subject: baby beginning to only sleep feed
Posted: 10 March 2010 at 8:49am

Hi everyone,
I am new to this group and was happy to find that I am not the only one this has happened to. My son Jason is 4 months old and from day one has been a cranky baby. I breast fed for 10 weeks but found it difficult because of poor latch and constant pulling off the breast.
He is now on formula and for the first week seemed to be enjoying the bottle and drinking about 4 ounces every 2.5 hours. At three months to the day, Jason started moving a lot while feeding and arching. Not crying but very wiggly. I mentioned it to my MD and he watched him feed. He said that he thought he was just a mover and nothing else. He was on prilosec at that point 1.6ml two times a day. I accepted his answer but still thought something was up.
Now at four months, Jason whimpers at the bottle and arches the minute it goes in his mouth. It is like taming a wild animal to get him to drink a few ounces. At about the three ounce mark I lose him and he will not go back. My MD watched this the other day and now agrees with me that he is uncomfortable. We switched him to prevacid 15mg once a day to see if that helps. He takes a good 5-6 ounce bottle in that sleepy state and that is how I am getting his best feeds in. He is gaining weight because of that.
I am nervous because my 5 year old daughter was a sleep feeder and only would take a bottle in that state. SHe was hospitalized at 5.5 months because her GI MD thought it was behavioral and wanted to get her really hungry to see if she would take the bottle awake. so we basically tried to starve her and only offer the bottle to her awake. SHe would maybe take an ounce here and there. After days in the hospital she was not getting any better and they sent us home and said to keep doing what I was doing hoping she would eventually grow out of it. My miracle with her was that when she got home she got the rotovirus and because she was so dehydrated from the diarrhea she started crying for the bottle. Exactly what they were trying to accomplish in the hospital. She went from 0 ounce bottles awake to 8 ounce.
I can not believe that this is happening to me again. I didn't think it was possible. I have a pit in my stomach and feel like anxiety is starting to set in. I just hope that Jason will grow out of this and that the prevacid will help.
I have an appointment with Gastro for him on the 19th. We shall see.
Any suggestions as to what you do that works?? I can't hope for another virus!
ANy other success stories of babies accepting the bottle awake? He is so wiggly and uncomfortable when he does try to drink.
thanks so much.
erica
]]> Wed, 10 Mar 2010 08:49:45 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13614&PID=108888#108888 Medicines : Generic Axid http://www.infantreflux.org/forum/forum_posts.asp?TID=13613&PID=108887#108887 Author: smemey
Subject: Generic Axid
Posted: 08 March 2010 at 2:20pm

Does anyone have any experience with Generic Axid, like if it works just as well as Axid and how the taste compares?

My son is 18 month's old and has always done fine with Axid; after I picked up his prescription today, I realized that it was generic. When I talked with the pharmacist, they said a generic is now available so that is what would be filled and since I took it out of the pharmacy they could not change it to Axid for me. So I am stuck with one month of the generic, unless I just pay out of pocket for the Axid and waste one of the refills. I just smelled the generic and it doesn't smell very good.

Thanks!

]]> Mon, 08 Mar 2010 14:20:51 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13613&PID=108887#108887 Medicines : Hates the Taste of BB http://www.infantreflux.org/forum/forum_posts.asp?TID=13606&PID=108886#108886 Author: amy0013
Subject: Hates the Taste of BB
Posted: 08 March 2010 at 11:38am

That's a good thought Denise!! Maybe try otc prevacid instead for taste??? ]]> Mon, 08 Mar 2010 11:38:03 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13606&PID=108886#108886 Stuff I Just Want to Talk About : There is hope! http://www.infantreflux.org/forum/forum_posts.asp?TID=13594&PID=108885#108885 Author: jilly78
Subject: There is hope!
Posted: 07 March 2010 at 10:06am

Wonderful news, Beth!!

]]> Sun, 07 Mar 2010 10:06:44 +0000 http://www.infantreflux.org/forum/forum_posts.asp?TID=13594&PID=108885#108885