InfantReflux.Org Forums: Am I being selfish?

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erinntx
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Topic: Am I being selfish?
Posted: 10 July 2008 at 6:56pm

Am I being selfish for wanting to continue nursing Evan despite his pain & blood in stools? Everyone (well, not everyone) is so quick to say: "Why don't you just put him on formula?" & it's made me stop & think... am I totally crazy & insane & not seeing the big picture here?

The reasons I don't want to throw in the towel right now (besides that fact that I simply want to bf him as long as possible) is twofold. One: it may not be anything in my diet & then I would have weaned for no reason. Two: nursing is the one thing that always soothes him despite reflux &/or tummy pain.

Please just tell me if I'm being selfish in my decisions.

Erin
Brodie-4/13/06no reflux; nut allergy; bstfd 20mth
Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid
Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege

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amy0013
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Posted: 10 July 2008 at 9:29pm

You're not selfish at all in your feeling to want to breastfeed. How far into TED are you? Have you started to add things back into your diet to see if there is a correlation?

Don't feel pressured from other people to do what THEY think is best. It is your decision and something you have to decide for yourself! You'll find that many babies really struggle with formulas as well so you might be just as bad off if you have to go that route!

Laura posted an interesting thread yesterday about an enzyme the mom takes to help break her food down for the baby. See if you can find that. It might be something worth trying!

Good luck!

Amy
Sarah 4/25/06 Med free!
Emma 11/23/09 Reflux and Neocate

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erinntx
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Posted: 10 July 2008 at 9:48pm

Today was Day 12 of TED. I'm still on turkey, squash/zuch, rice, sweet pot, white pot & pears. Also sea salt, pepper, canola & olive oil, cinammon, sugar & brown sugar.

I'm very interested in the enzymes. I will take the info to our Ped GI appt on Tuesday!

Erin
Brodie-4/13/06no reflux; nut allergy; bstfd 20mth
Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid
Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege

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erinntx
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Posted: 11 July 2008 at 10:29am

Ok, so I've ordered the OTC pancrease enzymes. Probably won't be here until Tues or Wed. though. Will discuss w/ Ped GI on Tues.

The CaraCream arrives this afternoon (David Stock sent me the UPS tracking info).

I ordered an IgG allergy testing kit from Great Plains Lab. Again, will discuss w/ Ped GI on Tues.

Erin
Brodie-4/13/06no reflux; nut allergy; bstfd 20mth
Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid
Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege

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b's mom
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Posted: 11 July 2008 at 2:43pm

You are not selfish at all... I felt the same way...despite all hte pain McKenzie was in she LOVED to nurse...it was the only way I could calm her down sometimes. Until you can figure out what is going on, I would keep doing what you want and don't worry about what other people say!

Emily
Luca 9/5/10 - 22mg Prevacid
McKenzie 2/4/08: Fomer Refluxer
Brianna 12/12/08 - former refluxer

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amy0013
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Posted: 11 July 2008 at 2:48pm

I hope the enzymes work out for you! I'll be really curious to hear how it goes! Good luck!

Amy
Sarah 4/25/06 Med free!
Emma 11/23/09 Reflux and Neocate

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b's mom
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Posted: 11 July 2008 at 3:17pm

Ok so this is a stretch and I am not telling you to do this, but my friend that I told you about who had to IgG test done...her baby was reacting to Canola...I know it is weird, but since you can just use olive oil as your only oil, maybe try that...or you know just wait until you get the results back from your IgG if you get that done...I just thought I would pass that along. :-)

Emily
Luca 9/5/10 - 22mg Prevacid
McKenzie 2/4/08: Fomer Refluxer
Brianna 12/12/08 - former refluxer

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erinntx
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Posted: 11 July 2008 at 3:47pm

I haven't had canola oil (or something cooked in it) or brown sugar since Monday or Tuesday...

Who knows @ this point.

I'm going to start the CaraCream today (that way he doesn't have to do the pureed pears) & see if that makes a difference. Then, I will cut out rice starting Sunday & see if we see any results before Ped GI appt Tues afternoon.

Erin
Brodie-4/13/06no reflux; nut allergy; bstfd 20mth
Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid
Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege

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Dianne
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Posted: 11 July 2008 at 4:15pm

You are Definitely(!) not being selfish! Hopefully, those who are suggesting that you switch to formula are just trying to offer helpful(?) ideas. We supplemented with formula eventually, but I continued nursing for 25 months due to the same reasons you mentioned. I could see that nursing brought him comfort through his pain that a bottle never could.

I've looked up a couple of quotes from "Colic Solved" by Dr. Bryan Vartabedian that might be of help/support to you.

~ About how long it takes to see results from your changed diet: "Remember that it will take a couple of days to clear your breast milk of offending proteins and up to 3 weeks for your baby's intestinal tract to heal, so be patient and don't expect overnight changes." pg. 146

~ About the benefit of breastmilk for a baby with reflux: "Making the change to bottle-feeding is often the worst thing that a desperate mother can do, because breast milk is absolutely the best nutritional substrate for the infant with reflux. Despite the fact that the formula manufacturers have sought reflux solutions, nothing they produce matches the qualities of breast milk as far as helping the baby with reflux: Breast milk empties very efficiently from the stomach, compared with formula, and impaired stomach emptying is one of the major factors contributing to reflux in infancy." pg. 144

I hope that the CaraCream and the enzymes help you out. Let me know how your ped GI visit goes (and who you get to see...). Is the ped GI visit in your area or up in mine? If you are up here, maybe we could get together for a few minutes before or after your appointment. Just a thought...

Edited by Dianne - 11 July 2008 at 4:16pm

Dianne, mom to:
Elizabeth (11/03)
Andrew (2/06) - off Zegerid since 1/08; ex-MFPI (now OK w/dairy and even gluten!!!); breastfed till 25 mths (formerly TED for *many* weeks), Neocate One+

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erinntx
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Posted: 11 July 2008 at 4:49pm

Dianne,

Thank you for the quotes. I really liked Dr. Vartabedian's way of thinking in that interview from the link you sent (love Wondertime as well, btw). I'm a huge "reader" lol so I think I will go get that book tonight or sometime this weekend.

Ped GI appt is in your area... our ped insisted we only see Wilsey. It's @ 1:15pm so let me know if it works for you or not. I can't meet before b/c I have a mommy & me class w/ my 2yo that goes until noon (then dh & I will drive up there w/ just Evan- Brodie will be w/ sitter). But maybe after.

Erin
Brodie-4/13/06no reflux; nut allergy; bstfd 20mth
Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid
Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege

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Total Elimination Diet (TED) Basics
InfantReflux.Org Forums : Feeding Issues : Total Elimination Diet (TED) Basics

Author	Message
erinntx Groupie Joined: 13 June 2008 Location: United States Online Status: Offline Posts: 775	Topic: Am I being selfish? Posted: 10 July 2008 at 6:56pm
	Am I being selfish for wanting to continue nursing Evan despite his pain & blood in stools? Everyone (well, not everyone) is so quick to say: "Why don't you just put him on formula?" & it's made me stop & think... am I totally crazy & insane & not seeing the big picture here? The reasons I don't want to throw in the towel right now (besides that fact that I simply want to bf him as long as possible) is twofold. One: it may not be anything in my diet & then I would have weaned for no reason. Two: nursing is the one thing that always soothes him despite reflux &/or tummy pain. Please just tell me if I'm being selfish in my decisions.
	Erin Brodie-4/13/06no reflux; nut allergy; bstfd 20mth Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege

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amy0013 Junior Member Joined: 18 August 2006 Online Status: Offline Posts: 1793	Posted: 10 July 2008 at 9:29pm
	You're not selfish at all in your feeling to want to breastfeed. How far into TED are you? Have you started to add things back into your diet to see if there is a correlation? Don't feel pressured from other people to do what THEY think is best. It is your decision and something you have to decide for yourself! You'll find that many babies really struggle with formulas as well so you might be just as bad off if you have to go that route! Laura posted an interesting thread yesterday about an enzyme the mom takes to help break her food down for the baby. See if you can find that. It might be something worth trying! Good luck!
	Amy Sarah 4/25/06 Med free! Emma 11/23/09 Reflux and Neocate
	IP Logged

erinntx Groupie Joined: 13 June 2008 Location: United States Online Status: Offline Posts: 775	Posted: 10 July 2008 at 9:48pm
	Today was Day 12 of TED. I'm still on turkey, squash/zuch, rice, sweet pot, white pot & pears. Also sea salt, pepper, canola & olive oil, cinammon, sugar & brown sugar. I'm very interested in the enzymes. I will take the info to our Ped GI appt on Tuesday!
	Erin Brodie-4/13/06no reflux; nut allergy; bstfd 20mth Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege
	IP Logged

erinntx Groupie Joined: 13 June 2008 Location: United States Online Status: Offline Posts: 775	Posted: 11 July 2008 at 10:29am
	Ok, so I've ordered the OTC pancrease enzymes. Probably won't be here until Tues or Wed. though. Will discuss w/ Ped GI on Tues. The CaraCream arrives this afternoon (David Stock sent me the UPS tracking info). I ordered an IgG allergy testing kit from Great Plains Lab. Again, will discuss w/ Ped GI on Tues.
	Erin Brodie-4/13/06no reflux; nut allergy; bstfd 20mth Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege
	IP Logged

b's mom Groupie Joined: 24 August 2006 Online Status: Offline Posts: 937	Posted: 11 July 2008 at 2:43pm
	You are not selfish at all... I felt the same way...despite all hte pain McKenzie was in she LOVED to nurse...it was the only way I could calm her down sometimes. Until you can figure out what is going on, I would keep doing what you want and don't worry about what other people say!
	Emily Luca 9/5/10 - 22mg Prevacid McKenzie 2/4/08: Fomer Refluxer Brianna 12/12/08 - former refluxer
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amy0013 Junior Member Joined: 18 August 2006 Online Status: Offline Posts: 1793	Posted: 11 July 2008 at 2:48pm
	I hope the enzymes work out for you! I'll be really curious to hear how it goes! Good luck!
	Amy Sarah 4/25/06 Med free! Emma 11/23/09 Reflux and Neocate
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b's mom Groupie Joined: 24 August 2006 Online Status: Offline Posts: 937	Posted: 11 July 2008 at 3:17pm
	Ok so this is a stretch and I am not telling you to do this, but my friend that I told you about who had to IgG test done...her baby was reacting to Canola...I know it is weird, but since you can just use olive oil as your only oil, maybe try that...or you know just wait until you get the results back from your IgG if you get that done...I just thought I would pass that along. :-)
	Emily Luca 9/5/10 - 22mg Prevacid McKenzie 2/4/08: Fomer Refluxer Brianna 12/12/08 - former refluxer
	IP Logged

erinntx Groupie Joined: 13 June 2008 Location: United States Online Status: Offline Posts: 775	Posted: 11 July 2008 at 3:47pm
	I haven't had canola oil (or something cooked in it) or brown sugar since Monday or Tuesday... Who knows @ this point. I'm going to start the CaraCream today (that way he doesn't have to do the pureed pears) & see if that makes a difference. Then, I will cut out rice starting Sunday & see if we see any results before Ped GI appt Tues afternoon.
	Erin Brodie-4/13/06no reflux; nut allergy; bstfd 20mth Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege
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Dianne Newbie Joined: 13 November 2006 Online Status: Offline Posts: 185	Posted: 11 July 2008 at 4:15pm
	You are Definitely(!) not being selfish! Hopefully, those who are suggesting that you switch to formula are just trying to offer helpful(?) ideas. We supplemented with formula eventually, but I continued nursing for 25 months due to the same reasons you mentioned. I could see that nursing brought him comfort through his pain that a bottle never could. I've looked up a couple of quotes from "Colic Solved" by Dr. Bryan Vartabedian that might be of help/support to you. ~ About how long it takes to see results from your changed diet: "Remember that it will take a couple of days to clear your breast milk of offending proteins and up to 3 weeks for your baby's intestinal tract to heal, so be patient and don't expect overnight changes." pg. 146 ~ About the benefit of breastmilk for a baby with reflux: "Making the change to bottle-feeding is often the worst thing that a desperate mother can do, because breast milk is absolutely the best nutritional substrate for the infant with reflux. Despite the fact that the formula manufacturers have sought reflux solutions, nothing they produce matches the qualities of breast milk as far as helping the baby with reflux: Breast milk empties very efficiently from the stomach, compared with formula, and impaired stomach emptying is one of the major factors contributing to reflux in infancy." pg. 144 I hope that the CaraCream and the enzymes help you out. Let me know how your ped GI visit goes (and who you get to see...). Is the ped GI visit in your area or up in mine? If you are up here, maybe we could get together for a few minutes before or after your appointment. Just a thought... Edited by Dianne - 11 July 2008 at 4:16pm
	Dianne, mom to: Elizabeth (11/03) Andrew (2/06) - off Zegerid since 1/08; ex-MFPI (now OK w/dairy and even gluten!!!); breastfed till 25 mths (formerly TED for many weeks), Neocate One+
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erinntx Groupie Joined: 13 June 2008 Location: United States Online Status: Offline Posts: 775	Posted: 11 July 2008 at 4:49pm
	Dianne, Thank you for the quotes. I *really* liked Dr. Vartabedian's way of thinking in that interview from the link you sent (love Wondertime as well, btw). I'm a huge "reader" lol so I think I will go get that book tonight or sometime this weekend. Ped GI appt is in your area... our ped insisted we only see Wilsey. It's @ 1:15pm so let me know if it works for you or not. I can't meet before b/c I have a mommy & me class w/ my 2yo that goes until noon (then dh & I will drive up there w/ just Evan- Brodie will be w/ sitter). But maybe after.
	Erin Brodie-4/13/06no reflux; nut allergy; bstfd 20mth Evan-5/20/08 MFPI (limited diet);Rice Milk (former TED,bstfd 13mth);30mg Zegerid Tate-1/8/10 MFPI; Rice Milk(former TED,bstfd 14mth);30mg Zege
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