I don't know much in this area, but if I were you I would pm Sheri (MFPIX2) she is a pharmacist and in Canada so she will be a great resource for you with the meds for your little girl. She may see this, but she has been busy lately so I don't know how often she is getting on lately. HTH.

Originally posted by s&h's mum   My understanding is that it's typically best practice to move up to a PPI before adding a motility drug.  You might want to ask your GI about that.

That's my understanding as well.  We're still waiting to see the GI, the meds were prescribed by our pediatrician.

I've started her on the Zantac and have chosen to hold off on the dom until we hear back from our neurologist about a GI referral.

The H2 seems to be helping a bit, she's no longer writhing in pain as much but she still does not sleep very long.

Yeah I've considered that.  I've never seen a seizure but our Ped (incidentally the on call ped at L&D) Witnessed what she called a quite intense seizure 12 hours after birth.

My daughter was maxed out on meds to try and stop the seizure and we were helilifted to children's hospital and in NICU for two weeks.  She was comatose from the meds (3x Pheno and 1X Dylantin) for 4 days.

She was clear of seizures for the two weeks were were in NICU but they want to keep her on the Pheno just in case for the next month after which we have an EEG scheduled and we'll see where we go from there.

She had three MRI's (we enrolled her in a medical study as it gave us access to some of the best Neurologists in the province)  and they did find she has had damage to her brain due to an apoxic event that occurred during L&D.  We still have not found out what caused the lack of oxygen.

So yeah I've considered Sandifers and will discuss this with her neurologist however seizures are common where there has been brain trauma so taking her off the pheno before the next EEG is a bit of a difficult call.





Edited by Jsquared - 09 October 2008 at 8:10pm

 poor baby!

We're out west in BC. 

The other kicker is that when we left BCCH neurology told us we could start weaning Janna off the Pheno at the discretion of our ped.  Our ped is reluctant to do, she's the one who observed the seizure in the hospital nursery 12 hrs after birth and maxed Janna out on Seizure meds.