InfantReflux.Org Forums: Domperidone makes baby hungrier

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leahsam
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Joined: 26 July 2009
Location: Canada
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Posts: 16

Posted: 18 September 2009 at 2:18pm

Yes, once a day. My dr was steadfast that this was the correct dosage. I don't want him to feel I am a better "dr" at knowing what he should get, and I don't know how to convince him it may not be strong enough.

On the other hand, we haven't started yet, so we'll have to see how he does the coming week. We start tonight.

I thought Alimentum was hypo-allergenic! That is why we are on it. or am I confused?

So yeah, I am really hoping this helps more than the compound, at least. And if it doesn;t work, I need to find ways to convince my dr that he needs more, without seeming like a know-it-all. :(

Thanks for your imput! Greatly appreciated.

*Leah (30)
*GERDling: Sam
*DOB: June 17, 2009
*Silent reflux - milk protein sensitivity - now on Alimentum RTF
* prevacid 7.5mg solutab 1x day/ Domperidone 2 mls 3x a day

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valentine4mommy
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Joined: 07 July 2008
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Posts: 391

Posted: 18 September 2009 at 2:38pm

CRAP! I had a post that got lost...ugh...

Lets try this again...I edited my last post before I read this...

Now to reply to your new post :) lol

Yes, it's hypoallergenic, BUT it still contains milk proteins. They are just more easily digestible. Some babies, a lot on here who are MSPI/MFPI, needed an elemental/amino acid based formula(I mis-typed in my original post). So, maybe consider a change?

As far as the Ped and not wanting to step on any toes...Well, sometimes it needs to be done. My Ped sounds a lot like yours. She initially tried everything that is suggested in the NAPSGN(whatever the book is called, lol). Then, after me politely telling her what I wanted(based on my research), she was willing to give it a go. TBH, it helped that I had emailed Dr. Phillips and he was willing to talk w/her. That was all she needed to let us try this higher dose. For my DD, it was what she NEEDED in addition to a formula change. Read up on marci-kids and become knowledgable. Can they really fine you for that?! :) It's hard at first, cause you feel like you're stepping on toes, but you know what...You are your child's only advocate! So, screw them if they have a problem w/you wanting to help make your LO better. Sorry, going on a rant. :)

Also, I posted about the increase in domperidone & your LOs increased appetite in my last post. He may be over eating b/c he's in pain. A lot of refluxers eat for comfort, to kill the burn.

HTH! Sorry, if the post is kinda all over the place. I was trying to remember everything i had originally posted before it got deleted. :)

~Amber
Ryan~2/14/06~ Egg Allergy
Averi~01/25/08~30mg Stabs, Hemp milk - Allergy Testing 1/7/2010

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leahsam
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Joined: 26 July 2009
Location: Canada
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Posts: 16

Posted: 18 September 2009 at 2:53pm

Oh man, I HATE when that happens! LOL :)
I guess I may have to bite the bullet for Sam next week if the low dose isn't helping and ask the dr ever-so-nicely what we have found. Did you write Dr phillips before you asked the dr or afterwards? I have read up on Marci kids and it all makes perfect sense to me; I haven't mentioned it to the dr yet, but perhaps next time I will, with some print-outs. In any case, thanks for your help. I also think Sam is overeating from the pain, its pretty obvious now since we did a day off teh domperidone - he ate jsut as much, and he spit up more, so I guess we'll try the dom again. ARGH!

*Leah (30)
*GERDling: Sam
*DOB: June 17, 2009
*Silent reflux - milk protein sensitivity - now on Alimentum RTF
* prevacid 7.5mg solutab 1x day/ Domperidone 2 mls 3x a day

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valentine4mommy
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Joined: 07 July 2008
Online Status: Offline
Posts: 391

Posted: 18 September 2009 at 3:03pm

I had talked w/the Ped about marci-kids @ an appt. She hadn't heard of them and was dismissive. So, my next step was to email Dr. Phillips. I then, went back to the Ped to discuss dose/med b/c things weren't improving w/the intention to bring up marci-kids again. I told her that I understood her views in regards to not being familiar w/marci-kids and that I would feel better if she talked directly w/Dr. Phillips and then came to her own conclusions. She basicly said, "He's willing to talk w/me?" I said, "Yes." And she proceeded to write the script for 15mg 2x/day. lol It was that simple. I know not all Peds are going to be that easy, but I think she was willing to give it a shot and if it didn't work, well then we knew. The thing that Peds need to recognize is that it IS all trial and error. Why not try the increased dose? There isn't any harm in trying, KWIM?

~Amber
Ryan~2/14/06~ Egg Allergy
Averi~01/25/08~30mg Stabs, Hemp milk - Allergy Testing 1/7/2010

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Medicines
InfantReflux.Org Forums : Infant Reflux Information : Medicines

Topic: Domperidone makes baby hungrier - reflux worse?
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Author	Message
leahsam Newbie Joined: 26 July 2009 Location: Canada Online Status: Offline Posts: 16	Posted: 18 September 2009 at 2:18pm
	Yes, once a day. My dr was steadfast that this was the correct dosage. I don't want him to feel I am a better "dr" at knowing what he should get, and I don't know how to convince him it may not be strong enough. On the other hand, we haven't started yet, so we'll have to see how he does the coming week. We start tonight. I thought Alimentum was hypo-allergenic! That is why we are on it. or am I confused? So yeah, I am really hoping this helps more than the compound, at least. And if it doesn;t work, I need to find ways to convince my dr that he needs more, without seeming like a know-it-all. :( Thanks for your imput! Greatly appreciated.
	Leah (30) GERDling: Sam DOB: June 17, 2009 Silent reflux - milk protein sensitivity - now on Alimentum RTF * prevacid 7.5mg solutab 1x day/ Domperidone 2 mls 3x a day
	IP Logged

valentine4mommy Fan Joined: 07 July 2008 Online Status: Offline Posts: 391	Posted: 18 September 2009 at 2:38pm
	CRAP! I had a post that got lost...ugh... Lets try this again...I edited my last post before I read this... Now to reply to your new post :) lol Yes, it's hypoallergenic, BUT it still contains milk proteins. They are just more easily digestible. Some babies, a lot on here who are MSPI/MFPI, needed an elemental/amino acid based formula(I mis-typed in my original post). So, maybe consider a change? As far as the Ped and not wanting to step on any toes...Well, sometimes it needs to be done. My Ped sounds a lot like yours. She initially tried everything that is suggested in the NAPSGN(whatever the book is called, lol). Then, after me politely telling her what I wanted(based on my research), she was willing to give it a go. TBH, it helped that I had emailed Dr. Phillips and he was willing to talk w/her. That was all she needed to let us try this higher dose. For my DD, it was what she NEEDED in addition to a formula change. Read up on marci-kids and become knowledgable. Can they really fine you for that?! :) It's hard at first, cause you feel like you're stepping on toes, but you know what...You are your child's only advocate! So, screw them if they have a problem w/you wanting to help make your LO better. Sorry, going on a rant. :) Also, I posted about the increase in domperidone & your LOs increased appetite in my last post. He may be over eating b/c he's in pain. A lot of refluxers eat for comfort, to kill the burn. HTH! Sorry, if the post is kinda all over the place. I was trying to remember everything i had originally posted before it got deleted. :)
	~Amber Ryan~2/14/06~ Egg Allergy Averi~01/25/08~30mg Stabs, Hemp milk - Allergy Testing 1/7/2010
	IP Logged

leahsam Newbie Joined: 26 July 2009 Location: Canada Online Status: Offline Posts: 16	Posted: 18 September 2009 at 2:53pm
	Oh man, I HATE when that happens! LOL :) I guess I may have to bite the bullet for Sam next week if the low dose isn't helping and ask the dr ever-so-nicely what we have found. Did you write Dr phillips before you asked the dr or afterwards? I have read up on Marci kids and it all makes perfect sense to me; I haven't mentioned it to the dr yet, but perhaps next time I will, with some print-outs. In any case, thanks for your help. I also think Sam is overeating from the pain, its pretty obvious now since we did a day off teh domperidone - he ate jsut as much, and he spit up more, so I guess we'll try the dom again. ARGH!
	Leah (30) GERDling: Sam DOB: June 17, 2009 Silent reflux - milk protein sensitivity - now on Alimentum RTF * prevacid 7.5mg solutab 1x day/ Domperidone 2 mls 3x a day
	IP Logged

valentine4mommy Fan Joined: 07 July 2008 Online Status: Offline Posts: 391	Posted: 18 September 2009 at 3:03pm
	I had talked w/the Ped about marci-kids @ an appt. She hadn't heard of them and was dismissive. So, my next step was to email Dr. Phillips. I then, went back to the Ped to discuss dose/med b/c things weren't improving w/the intention to bring up marci-kids again. I told her that I understood her views in regards to not being familiar w/marci-kids and that I would feel better if she talked directly w/Dr. Phillips and then came to her own conclusions. She basicly said, "He's willing to talk w/me?" I said, "Yes." And she proceeded to write the script for 15mg 2x/day. lol It was that simple. I know not all Peds are going to be that easy, but I think she was willing to give it a shot and if it didn't work, well then we knew. The thing that Peds need to recognize is that it IS all trial and error. Why not try the increased dose? There isn't any harm in trying, KWIM?
	~Amber Ryan~2/14/06~ Egg Allergy Averi~01/25/08~30mg Stabs, Hemp milk - Allergy Testing 1/7/2010
	IP Logged