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 InfantReflux.Org Forums : Just For Fun : Keeping In Touch |
 Topic: Doctors: the good, the bad, the ugly |
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hellbennt
Admin Group 
Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403 |
   Topic: Doctors: the good, the bad, the uglyPosted: 19 October 2009 at 8:13pm |
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Put City and State at the top of your post, please
 Hi everyone, I thought I'd start a thread where we can we can recommend, rant, rave and forewarn about all kinds of doctors, not 'just' ped GIs... I imagine most will be ped specialists, but if you have others, for adults, then why not list them, too? Thanks! ~laura finding a ped GI: http://www.infantreflux.org/forum/forum_posts.asp?TID=660 and here's how to fight insurance, write an insurance letter, get neocate covered, etc. It's called: Going to the Top! http://www.infantreflux.org/forum/forum_posts.asp?TID=2607&a mp;KW=going this thread has a great conversation about Speech Language Pathologists in the New York City area- I think it covers Feeding Therapy and related topics: Swallow/speech/nyc/thais: http://www.infantreflux.org/forum/forum_posts.asp?TID=9445&PID=82094#82094 Edited by hellbennt - 19 October 2009 at 8:14pm |
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~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen! |
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monty123
Senior Member 
Joined: 03 August 2003 Location: United States Online Status: Offline Posts: 2673 |
Posted: 19 October 2009 at 8:41pm |
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MOSTLY CONNECTICUT
Love the following:
Dr. Marvin Natowicz - Cleveland Clinic - Pediatric Neuro-genetics
Dr. Laura Ment - Yale New Haven (CT) - Pediatric Neurology
Dr. David Karas - Madison, CT - Pediatric ENT
Dr. Robert Greenstein - UCONN (west hartford, CT) - Pediatric Genetics
Dr. Fayhee - Yale New Haven (CT) - Cardiology
Dr. Scott Rivkees - Yale New Haven (CT) - Pediatric Endocrynology
Dr. Regina Palazzo - Guilford, CT - Pediatric Pulmonology
Dr. Sandra Escalera - North Haven, CT - Pediatric GI
Dr. David Feingold - Bloomfield, CT - Physiatrist (adult and pediatric)
Dr. Calderon - Yale New Haven (CT) - Immunology
Dr. Donna Nimec - Boston Children's Hospital - Orthopedics/Physiatrist
OK, and I am sure there are more, but these are just the ones we see now!!!!!! we have been discharged from Cardiology and Immunology and just see ENT as needed, but the rest is probably the best team I could ask for. Anyone that would like more information on any of them, please let me know and I would be more than happy to answer any questions......
Thanks! Edited by monty123 - 19 October 2009 at 8:56pm |
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Ann Marie
Dylan 2/28/03 (27 wkr, past GERD, NEC, ROP, GBS/meningitis, brain bleed) Carter 3/25/06 (29 wkr, past GERD, Cardiac arrest w/Immunizations, syndromic features?, all neg tests so far) |
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Cooper's mom
Junior Member 
Joined: 12 May 2007 Location: United States Online Status: Offline Posts: 2248 |
Posted: 19 October 2009 at 10:04pm |
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Central Virginia:
Ped: Morgan Mandeville - Lynchburg ENT: Andrea Kittrel - Lynchburg Endocrinologist: Alan Kauppi - Lynchburg Ped GI: Michael Hart - Roanoke/Lynchburg We are so lucky that we have only had to have Cooper see the ped and the ped Gi but the other 2 are great in their fields and well they are friends of mine as well which is always nice! Dr Hart we only saw once but he was fabulous and he comes from Roanoke to Lynchburg which is nice since I didn't have to travel. Our ped... I LOVE her! She is fantastic and she listens... her youngest son was allergic to eggs and is still sensitive to nuts so she has that "understanding" with food allergies as well. I don't think there are many of you all in my area but just in case... I recommend these docs! |
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Beth
Cooper 2/07 (former refluxer and MSPI. out grew egg allergy at 3.5yrs old) Caroline 1/10 Reflux FREE!!! |
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Eli'smom
Junior Member
Joined: 21 October 2004 Location: United States Online Status: Offline Posts: 1355 |
Posted: 20 October 2009 at 11:22am |
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Cincinnati, Ohio (I actually live in Idaho, but that's how far I went for this doctor!) Dr. Philip Putnam
3333 Burnet Avenue
Cincinnati, OH 45229 (513) 636-4415 Pediatric gastroenterology is the study and treatment children with disorders of the gastrointestinal (GI) tract. A pediatric gastroenterologist is a physician who treats diseases of the digestive organs, including the stomach, esophagus, intestines, pancreas, liver and gallbladder. This specialist treats conditions such as abdominal pain, nausea and vomiting, ulcers, diarrhea, cancer in the GI tract, and jaundice in infants, children and adolescents. Wow.... haven't been on here for a while!!  He CAN eat whatever he'd like... unfortunately the only food he likes is chocolate milk and PB&J ! We do manage to get some healthy food into him, but going three years on a liquid diet brings complications like crossbite and food aversions that make chewing difficult. SO yes, he's "over" the crisis, but we still deal with the aftermath of it today.
Anyway.... sorry... I can ramble on... I'm here to talk about Doctors, right??
Dr. Putnam was INCREDIBLE ! We searched high and low for someone to figure out Eli's problem, and Dr. Putnam did it! I'd HIGHLY recommend him to anyone who's tried every other route and come up empty handed diagnosis-wise. Cincinnati Children's was wonderful to us as well..... Best of luck all... and remember... there is a light at the end of the tunnel... it's just hard to see it when you're exhausted and worried. All the best~ Tracy Edited by Eli'smom - 20 October 2009 at 11:23am |
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Tracy 40 ID
Larry 47 Casey '86 Asthma,enviro-allergies Jessica '88 GERD Emily '91 Corinne '98 Jared '00 Eli 9/03 NO GERD,FPIES controlled,some asthma,food allergies,eczema NO MEDS!! neocate |
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pkkb
Senior Member
Joined: 17 August 2004 Location: United States Online Status: Offline Posts: 3200 |
Posted: 20 October 2009 at 10:59pm |
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Dr. Ann Kessel - Ped. GI - Richmond, VA She was wonderful through our whole reflux ordeal.
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Kim
Kaelyn 6-04 reflux- Off prevacid -- Outgrew Allergies to wheat, milk, peaches, and apples Alexandra 6-06 - 36 weeks, reflux, laryngomalacia, asthma, no allergies!! |
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trigrl
Groupie 
Joined: 29 July 2004 Location: United States Online Status: Offline Posts: 781 |
Posted: 21 October 2009 at 1:45am |
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tracy!! i would love to talk, as my little one has some issues you may be able to shed some light onto. can i email you? sorry to stealing, guys! our experience with peds GI with riles was 'eh' so not worth mentioning. we love our hematologist (mads has a platelet disorder) so anyone who needs one, Kate Gowens, Cleveland Clinic is FABULOUS. love her. take care! |
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Gina
Riley 3.18.04 previous refluxer Madelyn 5.26.08 allergies to dairy, soy, wheat, corn and many other sensitivities; breastfed |
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jilly78
Junior Member
Joined: 21 April 2007 Location: United States Online Status: Offline Posts: 1280 |
Posted: 05 November 2009 at 1:59pm |
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Kennedy Kreiger Institute, Baltimore, MD. Center for Autism and Related Disorders (CARD)
Toll-Free Referral: (888) 554-2080 Local Referral: (443) 923-9400 Kennedy Kreiger Institute, Baltimore, MD.
Pediatric Feeding Disorders
Toll-Free Referral: (888) 554-2080
Local Referral: (443) 923-9400 KKI is awesome in all areas!!
Chesapeake Ear, Nose & Throat (Pediatric ENT) Dr. Michael Weiss
Westminster, MD (he's awesome!!) 1-410-356-2626, the other 2 ENT's in the practice are also good!!! The Surgi-Center for ENT related surgeries is ALSO WONDERFUL!!!
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Jill:
Kaden 12/20/04 former GERD, dairy free and Landen 3/1/07 former GERDling, MFPI, back to drinking potato based milk. Both boys take probiotcs + digestive enzymes |
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Maximus'Mom
Newbie 
Joined: 30 September 2010 Location: United States Online Status: Offline Posts: 3 |
Posted: 05 October 2010 at 6:50pm |
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Geisinger Clinic. Danville, PA
The doctor my son and I have seen here is Dr. Mahmoud Sabri Pediatric Gastroenterologist. I have not been super happy with my infant sons care here and am currently switching to Childrens Hospital of Philadelphia. I have also gone to the feeding clinic associated with Geisinger at Janet Weis Childrens Hospital with minimal results. No help given regarding my sons allergies to milk and soy. They told me to feed him Pediasure, a milk based drink, as a supplement. This was only one of many things recommended at our visit that went against my sons allergies and feeding issues. |
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Heather
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geppetto07
Newbie
Joined: 22 December 2010 Online Status: Offline Posts: 1 |
Posted: 22 December 2010 at 12:28pm |
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Wow...so glad to see someone else is unhappy with geisinger....my son also has dr sabri for a gi and i very disappointed with the care my son is receiving..
Betty
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hellbennt
Admin Group
Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403 |
Posted: 03 October 2011 at 5:25pm |
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from here:
Edited by hellbennt - 03 October 2011 at 5:27pm |
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~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen! |
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That's a mixed blessing! I miss all the wonderful, supportive women (and Roni) who helped me through one of the most difficult periods of my life. THANK YOU ALL for your uplifting support when things were very grim. 