I am so sorry that my posts are coming out this way!!!

reglan and zantac seem to be the first meds prescribed by peds, "Just Because." It's probably just what they were taught and that's that.  Jonah was even prescribed reglan in the nicu and they had DONE testing and they pretty much knew he didn't have DGE. Personally, in retrospect, I think they gave it to him to cover their butts legally- he was having apnea episodes (stopped breathing) and rather than have a dead newborn on their hands, they figured the possible risks of reglan, and the help it MIGHT provide, sure outweighed the apnea episodes. 

anyway, there's a lot of bad hype about reglan, but it has worked wonders for some babies, with diagnosed/VERIFIED DGE, in small doses.  However, there ARE other motility drugs out there such as  erythromyacin (sp?)...I feel that if a baby has been given the stomach emptying scan (this is not just an Upper GI- it's a specific test looking for DGE) and doesn't respond well to other drugs, then by all means trying reglan is worth it...

Edited by hellbennt - 21 October 2009 at 5:00pm

So my daughter has now been on Reglan and Zantac for 6 weeks. Some progress has been made but still tons of peaks and valleys. In other words, I don't feel the benefits to the Reglan are outweighing the risks.  We went this week back to the ped GI  for a 6 week check up, he wants to leave her on the Reglan, replace Zantac w/Prevacid AND add Erythromycin.  Are you kidding me?!? My baby is 5 months old and not even 13 pounds.  How much medication can you pump into a tiny baby. Needless to say, I was not satisfied with his "preferred treatment option" and am seeking a 2nd opinion and regardless of what happens there, will be taking my daughter off Reglan. 
In addition to the stress of having a sick baby and no real true answers, my husband is completely non-supportive of getting a 2nd opinion or taking her off Reglan.  He seems to take everything the dr says at face value and question none of it.  ?!?
I noticed most members of this site appear to be moms, does anyone share in my frustration of feeling alone on this quest to find a safe, effective treatment for my child?!?

I will never forget the day I took Ryan in with a diaper full of florescent green mucas and blanket full of vomit with specks of blood.  The doctor wouldnt even look at the diaper or the blanket.  He told me that we had a healthy thriving baby boy (never mind that he dropped from the 97th percentile in weight to 26 at that point).  He said I needed sleep.  When we walked out of the office my husband said "That is great news.  That has to make you feel so much better." Lets just say he was really lucky that I had the baby in one arm and the diaper bag in the other. I didnt talk to him for the rest of the day. The next day I got Ryan into the GI, he took one look at the diaper and told me that he was lactose intollerant.  I have never taken my DH to the doctor with me again.   Each time I have taken him to the ER for fluids he thought I was crazy and that he was not deydrated.  Each time he was and had to get IVs.  He doesn't question me anymore.   YOU are the mother.  God gave you the gutt instincts.  Trust them, follow them and take action when you feel like you need to.  No one knows your baby better than you.  Get the 2nd opinion. There is nothing at all wrong with that. Remember that a doctor is just another person with an opinon.  You are free to take, leave it, or get another opinion.  Stay strong!!

Edited by vigilantmom - 20 November 2009 at 9:17pm

so glad to read your news!
Please post the dr that you did NOT like as well as the one you like (so far)!
so you can help others who might come along later who live near you-
here's the link to finding a ped GI near you
http://www.infantreflux.org/forum/forum_posts.asp?TID=660

THANKS!

Hi!

My daughter has been suffering with reflux for 3+ months now. Her general pediatrician also put her on the combination of Zantac & Reglan. It worked like a charm for about 3 weeks and then just stopped working, and doesn't work at all now. I'm hoping you have better luck with it!! I didn't see any side effects with her, except that with the Reglan, it causes stomach cramps and tightening & I did notice that a little with her.

 

Good Luck! :)