InfantReflux.Org Forums: Laura/hellbennt.. ? about Marci kids site

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jmvbell
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Topic: Laura/hellbennt.. ? about Marci kids site
Posted: 11 September 2011 at 2:01pm

If anyone else can give me any insight on this as well, it is very much appreciated... Just figured Laura would know :)

Is the Marci kids website ever going to be back up? I found an old thread from February that said it was back up, but it must have been briefly. My son is doing GREAT on omeprazole with ccmax (it's been a little over two weeks) using marci kids dosing. He has his four month checkup in a couple of weeks, and the dr has no clue that I started him on this. I'm nervous about telling them and want to be prepared with information to show them. I've also gotten some links to journal articles via older threads, but really wanted to be able to access Marci kids site. Thanks :)

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hellbennt
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Posted: 11 September 2011 at 2:09pm

I have no clue! But Contact dr philips directly!

he is amazing and will even speak w/ your dr!

you can copy & post what you put above

email dr philips Dr. Philips: phillipsjo@health.missouri.edu

and/or call the office: (573) 884-0672

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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jmvbell
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Posted: 11 September 2011 at 2:17pm

Thanks!

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hellbennt
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Posted: 11 September 2011 at 4:21pm

please post as to what dr philp's response is :)

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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jmvbell
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Posted: 11 September 2011 at 8:28pm

Will do.

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jmvbell
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Posted: 11 September 2011 at 11:35pm

Wow... Got a response from dr. Phillips within a couple of hours... And on a Sunday! Any who ... He basically said that there have been five recently done very large studies that support the notion that higher and more frequent dosing is needed in infants - that once daily dosing of PPIs doesnt make a difference. He referred me to colleague of his to get more info and to get info on Marci kids. I'll post her email.

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jmvbell
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Posted: 11 September 2011 at 11:37pm

Burnettj@health.Missouri.edu. I'm emailing her in the morning. Let you know what she says.

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hellbennt
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Posted: 12 September 2011 at 7:57am

great!

let them know about our little corner of the world, lol!

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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jmvbell
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Posted: 12 September 2011 at 2:36pm

laura, Haven't heard anything yet, but as I was re-reading his email, I got to wondering about something that he said. He stated, "As you may know, none of the PPI's are approved for infants-none". He then went on to tell me about the studies. In my email to him I explained that I was trying to gather information to take to my pedi and that my pedi was hesitant about prescribing a PPI. So I am wondering if this was his way of saying that I shouldn't give it without full approval of my pedi. Am I reading too much into this? What would you make of this? Sorry, I am a neurotic person to begin with ;) and after everything we've been through, I want to make sure I am doing whats best for my LO (which I know deep down it is). Thanks

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jmvbell
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Posted: 12 September 2011 at 2:58pm

I might add that I knew that, but realize that they are used very often anyway

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Topic: Laura/hellbennt.. ? about Marci kids site
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Author	Message
jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Topic: Laura/hellbennt.. ? about Marci kids site Posted: 11 September 2011 at 2:01pm
	If anyone else can give me any insight on this as well, it is very much appreciated... Just figured Laura would know :) Is the Marci kids website ever going to be back up? I found an old thread from February that said it was back up, but it must have been briefly. My son is doing GREAT on omeprazole with ccmax (it's been a little over two weeks) using marci kids dosing. He has his four month checkup in a couple of weeks, and the dr has no clue that I started him on this. I'm nervous about telling them and want to be prepared with information to show them. I've also gotten some links to journal articles via older threads, but really wanted to be able to access Marci kids site. Thanks :)

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hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 11 September 2011 at 2:09pm
	I have no clue! But Contact dr philips directly! he is amazing and will even speak w/ your dr! you can copy & post what you put above email dr philips Dr. Philips: phillipsjo@health.missouri.edu and/or call the office: (573) 884-0672
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
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jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Posted: 11 September 2011 at 2:17pm
	Thanks!
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hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 11 September 2011 at 4:21pm
	please post as to what dr philp's response is :)
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
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jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Posted: 11 September 2011 at 8:28pm
	Will do.
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jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Posted: 11 September 2011 at 11:35pm
	Wow... Got a response from dr. Phillips within a couple of hours... And on a Sunday! Any who ... He basically said that there have been five recently done very large studies that support the notion that higher and more frequent dosing is needed in infants - that once daily dosing of PPIs doesnt make a difference. He referred me to colleague of his to get more info and to get info on Marci kids. I'll post her email.
	IP Logged

jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Posted: 11 September 2011 at 11:37pm
	Burnettj@health.Missouri.edu. I'm emailing her in the morning. Let you know what she says.
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hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 12 September 2011 at 7:57am
	great! let them know about our little corner of the world, lol!
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged

jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Posted: 12 September 2011 at 2:36pm
	laura, Haven't heard anything yet, but as I was re-reading his email, I got to wondering about something that he said. He stated, "As you may know, none of the PPI's are approved for infants-none". He then went on to tell me about the studies. In my email to him I explained that I was trying to gather information to take to my pedi and that my pedi was hesitant about prescribing a PPI. So I am wondering if this was his way of saying that I shouldn't give it without full approval of my pedi. Am I reading too much into this? What would you make of this? Sorry, I am a neurotic person to begin with ;) and after everything we've been through, I want to make sure I am doing whats best for my LO (which I know deep down it is). Thanks
	IP Logged

jmvbell Newbie Joined: 22 August 2011 Location: United States Online Status: Offline Posts: 14	Posted: 12 September 2011 at 2:58pm
	I might add that I knew that, but realize that they are used very often anyway
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