InfantReflux.Org Forums: GI said to stop BF for 3 days

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maevelavon
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Posted: 03 June 2012 at 10:56pm

Okay, so I wil ask for Prevacid capsules in the morning!!!! Thanks you!

So.....formula is wrecking his stomach right now! He is arching like crazy and has been crying for about 3 hours...he finally fell asleep poor baby

We were on probiotics for a while but I thought that they might have been making him worse so I stopped. I read the link to the "bomb" probiotics though and I will order some first thing in the a.m.!

Why are all of the doctors so clueless?????? I am SOOOOOO thankful that I found this website!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Thank you thank you thank you!!!

Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.

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Happy Mom
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Posted: 04 June 2012 at 12:03am

A friend from Canada took a short article that I had written to her doctor. Here is what he told her, "I encourage you to look into this more. We doctors aren't taught about these preventative type medicines, I guess because there is so much more money in conventional medicine," I really admired his honesty.

Someone else made the statement that doctors are taught to REact to problems and to deal with and treat symptoms. They are not taught PROactive medicine and treatments or how to prevent illness.

I am not at all against doctors and love the pediatrician I have now. But I do wish they were taught some things differently.

Martha, mom to Quinton, Jackson, & Shiloh

My blog-
Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!

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maevelavon
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Posted: 04 June 2012 at 12:24am

That is true Martha! I should not take my frustration out on them : ) I know there are soooo many diseases they have to study. I just get really bumbed about the whole thing sometimes but I do know that it could be WAY worse and I AM thankful for the health that he does have!!!!

Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.

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Happy Mom
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Posted: 04 June 2012 at 12:30am

Don't get me wrong... I've been really mad and frustrated with the whole medical world numerous times but it helps to keep me calmed down if I tell myself that it isn't really their fault. :)

Edited by Happy Mom - 04 June 2012 at 1:08am

Martha, mom to Quinton, Jackson, & Shiloh

My blog-
Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!

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hellbennt
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Posted: 04 June 2012 at 7:53am

oh! it's their fault! well, not the pediatricians (I had to correct my own- that's how I even learned I was 'right' about proper zantac dosing!) - but the pediatricians who won't refer & think they can cure everything (or just want to keep receiving your co-pays!)- THEY make me angry!

and the ped GIs who won't listen to parents & the latest research! THEY make me angry, too! Thank G-d our ped GI LISTENED and was fine w/ the higher dosing of PPI and using the product to compound it (now called tummy care- then it was called caracream)

Anyway: you can keep breastfeeding- really read about the TED and how to 'measure' how it's working and how to take away foods & add them in, using gas & poop to 'measure' (use as a 'baseline')

it sounds so hard, but really it's JUST TWO WEEKS - try to stay positive & think of what you CAN EAT and not what you can't - there's a lot of recipes and food ideas in the TED Forum...you can do it!

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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maevelavon
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Posted: 04 June 2012 at 9:56am

OMG, I had an epiphany at 2 this morning! My Synthroid (I am hypothyroid) has LACTOSE in it!!!! How long will it take to clean my system??????? I have not taken it since 7 am yesterday. I am soooo excited, I hope that's it!

Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.

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maevelavon
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Posted: 04 June 2012 at 3:27pm

Grrr!! GI says capsules will not make a difference and won't give an rx for them! He said "he's fussy anyway, what's the difference?" Wow, I wanted to scream! He says he wants to order an upper GI....not sure what that entails, I'll be researching that today. Should I ask for nexium or prilosec rx? I think he needs more than just zantac.

Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.

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hellbennt
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Posted: 04 June 2012 at 5:30pm

ok time to find a new ped GI!

Looking for GI: http://www.infantreflux.org/forum/forum_posts.asp?TID=660

there are recommendations for ped GIs in your area...

& please post yours so others will not waste their time w/ him!

ME, I'd go buy OTC prevacid. again, I cannot tell you to do that (disclaimer- I am not a medical professional- I've just been on this board for just about 9 years now & have learned a great deal through my own experience and through reading about many others' experiences) ...but ME, I'd give it a try at a higher dose and see what happens...you can always back down...

try the ped, too, and some people even find that family practioners can be 'open' to learning/listening, etc...

the upper GI is a snap shot in time - it looks for structural abnormalities- it is NOT a test to determine reflux- if baby refluxes at time of test, ok, they can see it- if baby does not reflux at time of test, that doe NOT mean that baby doesn't have reflux- it just means that baby didn't reflux at time of test...

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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hellbennt
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Posted: 04 June 2012 at 6:16pm

Oh! about synthroid...I take levoxyl (I switched to levoxyl from synthroid due to insurance issues, not due to lactose)...see if it has trace amounts of lactose?

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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hellbennt
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Posted: 25 June 2012 at 2:32pm

how is everything?

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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HELP!!!
InfantReflux.Org Forums : Infant Reflux Support : HELP!!!

Author	Message
maevelavon Newbie Joined: 02 June 2012 Location: United States Online Status: Offline Posts: 10	Posted: 03 June 2012 at 10:56pm
	Okay, so I wil ask for Prevacid capsules in the morning!!!! Thanks you! So.....formula is wrecking his stomach right now! He is arching like crazy and has been crying for about 3 hours...he finally fell asleep poor baby We were on probiotics for a while but I thought that they might have been making him worse so I stopped. I read the link to the "bomb" probiotics though and I will order some first thing in the a.m.! Why are all of the doctors so clueless?????? I am SOOOOOO thankful that I found this website!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Thank you thank you thank you!!!
	Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.
	IP Logged

Happy Mom Fan Joined: 04 May 2012 Location: United States Online Status: Offline Posts: 406	Posted: 04 June 2012 at 12:03am
	A friend from Canada took a short article that I had written to her doctor. Here is what he told her, "I encourage you to look into this more. We doctors aren't taught about these preventative type medicines, I guess because there is so much more money in conventional medicine," I really admired his honesty. Someone else made the statement that doctors are taught to REact to problems and to deal with and treat symptoms. They are not taught PROactive medicine and treatments or how to prevent illness. I am not at all against doctors and love the pediatrician I have now. But I do wish they were taught some things differently.
	Martha, mom to Quinton, Jackson, & Shiloh My blog- Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!
	IP Logged

maevelavon Newbie Joined: 02 June 2012 Location: United States Online Status: Offline Posts: 10	Posted: 04 June 2012 at 12:24am
	That is true Martha! I should not take my frustration out on them : ) I know there are soooo many diseases they have to study. I just get really bumbed about the whole thing sometimes but I do know that it could be WAY worse and I AM thankful for the health that he does have!!!!
	Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.
	IP Logged

Happy Mom Fan Joined: 04 May 2012 Location: United States Online Status: Offline Posts: 406	Posted: 04 June 2012 at 12:30am
	Don't get me wrong... I've been really mad and frustrated with the whole medical world numerous times but it helps to keep me calmed down if I tell myself that it isn't really their fault. :) Edited by Happy Mom - 04 June 2012 at 1:08am
	Martha, mom to Quinton, Jackson, & Shiloh My blog- Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!
	IP Logged

hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 04 June 2012 at 7:53am
	oh! it's their fault! well, not the pediatricians (I had to correct my own- that's how I even learned I was 'right' about proper zantac dosing!) - but the pediatricians who won't refer & think they can cure everything (or just want to keep receiving your co-pays!)- THEY make me angry! and the ped GIs who won't listen to parents & the latest research! THEY make me angry, too! Thank G-d our ped GI LISTENED and was fine w/ the higher dosing of PPI and using the product to compound it (now called tummy care- then it was called caracream) Anyway: you can keep breastfeeding- really read about the TED and how to 'measure' how it's working and how to take away foods & add them in, using gas & poop to 'measure' (use as a 'baseline') it sounds so hard, but really it's JUST TWO WEEKS - try to stay positive & think of what you CAN EAT and not what you can't - there's a lot of recipes and food ideas in the TED Forum...you can do it!
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged

maevelavon Newbie Joined: 02 June 2012 Location: United States Online Status: Offline Posts: 10	Posted: 04 June 2012 at 9:56am
	OMG, I had an epiphany at 2 this morning! My Synthroid (I am hypothyroid) has LACTOSE in it!!!! How long will it take to clean my system??????? I have not taken it since 7 am yesterday. I am soooo excited, I hope that's it!
	Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.
	IP Logged

maevelavon Newbie Joined: 02 June 2012 Location: United States Online Status: Offline Posts: 10	Posted: 04 June 2012 at 3:27pm
	Grrr!! GI says capsules will not make a difference and won't give an rx for them! He said "he's fussy anyway, what's the difference?" Wow, I wanted to scream! He says he wants to order an upper GI....not sure what that entails, I'll be researching that today. Should I ask for nexium or prilosec rx? I think he needs more than just zantac.
	Mother to my SWEET baby boy, Waylon born 1/28/12(on his due date). Reflux, suspected MSPI. Prevacid 7.5 2/day, Zantac 1ml 3/day, EBF'ing on dairy/soy elimination diet. Have tried Elecare, Allimentum.
	IP Logged

hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 04 June 2012 at 5:30pm
	ok time to find a new ped GI! Looking for GI: http://www.infantreflux.org/forum/forum_posts.asp?TID=660 there are recommendations for ped GIs in your area... & please post yours so others will not waste their time w/ him! ME, I'd go buy OTC prevacid. again, I *cannot* tell you to do that (disclaimer- I am not a medical professional- I've just been on this board for just about 9 years now & have learned a great deal through my own experience and through reading about many others' experiences) ...but ME, I'd give it a try at a higher dose and see what happens...you can always back down... try the ped, too, and some people even find that family practioners can be 'open' to learning/listening, etc... the upper GI is a snap shot in time - it looks for structural abnormalities- it is NOT a test to determine reflux- if baby refluxes at time of test, ok, they can see it- if baby does not reflux at time of test, that doe NOT mean that baby doesn't have reflux- it just means that baby didn't reflux at time of test...
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged

hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 04 June 2012 at 6:16pm
	Oh! about synthroid...I take levoxyl (I switched to levoxyl from synthroid due to insurance issues, not due to lactose)...see if it has trace amounts of lactose?
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged

hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 25 June 2012 at 2:32pm
	how is everything?
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged