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 InfantReflux.Org Forums : Infant Reflux Support : HELP!!!
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hellbennt
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Quote hellbennt Replybullet Posted: 19 June 2012 at 10:01am

Reasons a breastfeeding mother might think her baby is reacting to something in her milk:

*poop that is not 'normal' mustardy yellow, seedy breastfed baby poop

*mucous in poop; mucous can look like: snot, jelly, cottage cheese, stringy like the inside of a banana

*foul-smelling poop

*stinky, foul-smelling painful gas

*straining and grunting to poop and, when baby finally does poop, it's soft

 
If you think it's something in your diet (the above feels/sounds 'true'), then

the TED takes two weeks and then you start adding foods in to see what you CAN eat.

Research all you can! You are your baby's best advocate!

Erin's sticky: http://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126

More Erinhttp://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395

Erin post: http://www.infantreflux.org/forum/forum_posts.asp?TID=13576

probiotics, brands used:

 http://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1

 

erin posts that mentions enzymes:
http://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme


http://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzyme



http://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme



Post from me:
http://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzyme

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!
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Quote Happy Mom Replybullet Posted: 19 June 2012 at 11:29pm
If you are interested in looking for a probiotic/enzyme supplement other than the one I recommended, I can give you some ideas of what to look for in a product to ensure it is of good quality.
Martha, mom to Quinton, Jackson, & Shiloh

My blog-
Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!
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Quote caetlin_h Replybullet Posted: 19 June 2012 at 11:40pm
My husband went to the co-op today and purchased something called complete gest. It has amylase, protease, lipase, lactase, phytase, cellulase, sucrase and maltase in it. It says to take 1-2 capsules three times a day, so I'm thinking half a capsule twice a day for a 2 week old? Gave him and I our first doses tonight. Although I'm sure there's no connection, about an hr after giving it to him he had one of the scariest episodes yet, where he stopped breathing several times, and every inhale was this sharp squeeky noise, as if he couldn't catch his breath. Now I'm too paranoid to go to sleep for fear he might stop breathing in the middle of the night. I also gave him 15 mg of prevacid this morning (solutab) but wondering if I should just start him out at 30 mg? is that too much for such a small baby? Also, I'm confused, even after going through this with my first daughter, just because the PPI shuts down acid production, doesn't mean that they actually stop refluxing? So when he relfuxes over and over to the point where he stops breathing, is prevacid actually going to help with that? should we be looking into something else in addition to a PPI? I'm completely shocked at how quickly things have turned with this kid.
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Quote Happy Mom Replybullet Posted: 20 June 2012 at 2:09am
Oh WOW!! That does sound scary!! I'm going to call the company where I get my supplements from and ask if they think there is any way that enzymes could make a child get worse. I'm sorry things have gotten bad so quickly. :(

I looked up the product Complete Digest and found it very interesting. It says right on the bottle after each ingredient, what pH levels they can live in. I googled what the average pH level of the stomach is and I read that the average is between 1 and 2. I copied and pasted this from a site that sold the CompleteGest.

Carbohydrate Digestion:     pH Range**     
Amylase                    4-6     
Phytase                    5-7
Lactase I, II             3-6
Cellulase I, II             4-6     
Sucrase                    3-6     
Maltase                    3-8     
Protein Digestion:
Protease      I        6-9
              II        5-10
              III       2-6
              IV        2-3

Fat Digestion:
Lipase     I            6-8
           II             4-8

**pH range over which enzyme is optimally active.

I wonder if these are going to be very beneficial because it looks like they will all die from the stomach acid before they can be of much help. :(

To ensure you are getting high quality enzymes...

Look for ones that are pH stabilized and can live in the low pH level of the stomach.

Also make sure they are plant based and not animal based. (CompleteGest are plant based.) The body will become dependent on animal based ones whereas with plant based ones the body views them as food.

They should include the major enzymes (protease, amylase, lipase and cellulase) and also the minor enzymes (peptidase, lactase, glucoamylase and malt diastase). (CompleteGest has most of these). The minor ones help to assist the major ones to work better.

I don't know what kind of probiotics you are using but make sure they have at least 8 different strains in them. Twelve or more is even better. Make sure it has the strain "Streptococcus thermophilus" in it because it produces lactase and is very efficient in breaking down milk products.

Make sure that they also are pH balanced and pH activated. Some probiotics are activated by heat and thus have to be refrigerated to stay alive. But they will highly likely die in our warm bodies before being of much help. Ones that are pH activated means they stay "dormant" until they reach the correct pH level where they need to be of assistance and then become activated.

If you decide to continue trying the CompleteGest then yes, I would start with a half of a capsule a day. I do not know if this is true of their product or not but at Core Health Products they say that there really isn't such a thing as overdose with the Digestive Health. It's just all in how bad your problem is and how many you need to help your system recover.

Prevacid...it can take up to a week or 2 for it to start working. I personally wouldn't give 30mg right away. I just googled "Can Prevacid make reflux worse" and some people felt that it did or could. For my children, Prevacid never made their problems completely go away. It just made them more comfortable. I was worried a lot at times that they would stop breathing but it never actually happened.

I hope that you and your baby are peacefully sleeping right now but I know reality and it might not be happening. I will say a special prayer for you both! I hope that you can soon find something to help!
Martha, mom to Quinton, Jackson, & Shiloh

My blog-
Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!
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Quote Happy Mom Replybullet Posted: 20 June 2012 at 2:37am
In doing a little looking around, I found this discussion. Thought you might find it of interest. https://www.inspire.com/groups/preemie/discussion/for-those-with-babies-taking-ppis-prevacid-zantac-etc/
Martha, mom to Quinton, Jackson, & Shiloh

My blog-
Treating our children's reflux/MSPI with probiotics and enzymes.. NO MEDS!
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Quote hellbennt Replybullet Posted: 20 June 2012 at 8:29am
my son stopped breathing - it was 'officially' called apnea & he was sent home on a monitor.
it's scary!!!
 
For him, it took the maximum doses of PPI (& zantac!) for this to stop happening...
 
I think, for him, that what happens is that it HURTS & their bodies try to swallow everything back down & they choke, etc- if it does NOT hurt (neutralized by the meds like zantac or  less acid production from a PPI) then perhaps they are more 'relaxed' and don't fight it and yes, they're still refluxing, but not in pain & the reflux just 'does it's thing' going up & down the esophogus...don't quote me on this, lol!  but it's not unheard of for a silent refluxer (swallowing reflux back down, a non-spitter) to become a spitter, once on the proper meds...
 
I also WORE my babies practically 24/7...
babywearing SAVED US

http://www.infantreflux.org/forum/forum_posts.asp?TID=1044&PN=1

www.thebabywearer.com/forum

 

please, when you get a chance, can you

go to the top of this page, click on Settings and please then click on Edit Profile, then scroll down to

Signature & put:

baby (name if you want or nickname), age (can put month & yr of birth), meds, doses & forms of meds, breastfed or formula fed

thanks!

 

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!
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Quote caetlin_h Replybullet Posted: 20 June 2012 at 10:24am
This is all very interesting about the digestive enzymes. I don't understand how they could make an effective product that can only survive in a different ph level? Who knows the ph level of their stomach anyway? I have no problem buying the enzymes you used, I was just desperate to get things started and didn't wanna wait for a mail order.

What type of results did you see with your kids and how long did it take? I'm assuming less gas and bloating, more regular bowl movements? There's no doubt this kid isn't pooping enough. 1 MAYBE 2 times in 24 hrs -not enough. I wonder how much the precipitates the reflux?

Also, I'm using biogaia for probiotics. I keep it refrigerated although it says it can be stored up to 77 degrees. It's liquid and made for infants -we saw a big difference with DD with the product, but I'm open to suggestions.
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Quote caetlin_h Replybullet Posted: 20 June 2012 at 10:28am
Yes, he is definitely a hand held baby -we've made good use of the front carriers so far. If I just weren't so darned tired I'd put him in it sooner, but all I wanna do is lie down. We also have the RES-Q wedge from DD which I hate to use again, but it looks like we might have to. Although I agree that it seems careless to give PPI's that shut down acid production that we need, it's hard to imagine that only probiotics and enzymes helping this baby. Having been down this road before, I'd rather start with PPI's in addition to everything else, and try to cut them out a little later down the road. Now I just gotta figure out the proper dosage for the prevacid -don't trust the peds.
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Quote hellbennt Replybullet Posted: 20 June 2012 at 10:32am
 
"A breastfed baby should have six to eight wet diapers a day until around six weeks of age; and five to six wet diapers a day thereafter; and two or more good-sized bowel movements every day for the first 6-8 weeks.

At around the age of six weeks, the stooling pattern of a breastfed baby may change. It is not uncommon for the breastfed baby to skip days between bowel movements. Some babies skip every other day, some go every two or three days, some once every 5 - 7 days, and some babies hold out for up to 11 or 12 days at a time - then have quite a FULL diaper when they DO go!

There is absolutely no reason to intervene and try methods commonly used to "induce" a bowel movement (such as prune or other types of juices, water, glycerin suppositories, or using rectal stimulation). If artificial stimulation is done too often, the baby's system can become dependant upon this stimulation to "go", and no longer is able to have a normal bowel movement on their own.

In most cases, as long as baby is not acting ill (lethargic, crying in pain, etc.), the tummy is soft, not rigid or distended, skipping days between stools is not cause for alarm, however, mother should not hesitate to ask her health care provider to check her baby to be sure there is no physical problem."

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!
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Quote hellbennt Replybullet Posted: 20 June 2012 at 10:36am
oh! if you do start giving the prevacid, stop the gripe water...
~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!
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