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Stuff I Just Want to Talk About
 InfantReflux.Org Forums : Just For Fun : Stuff I Just Want to Talk About
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kevieb
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Quote kevieb Replybullet Topic: just stuff about us
    Posted: 23 October 2004 at 12:43pm

hi all,  we've got the tonsils out now.  molly seems to be doing a bit better than tianna---but that is to be expected--molly is 9 and tianna is 13.  sylvia seems to be happiest eating if she can feed herself.  i put her in the high chair yesterday with a bowl of cereal and a spoon.  i don't think she got much in----but seemed pretty pleased to try.  she continues to sleep poorly, but i guess we'll just figure that one out in time. i talked to the ped gi again on thurs.---i just needed a little reassurance. when i mentioned that everyone says she has bad habits, he said "it's what you had to do."  i was glad to hear him say that---you get tired of feeling like you might have done something wrong.  he says that he thinks sylvia has "attitude" and he says that's good.  sylvia has started walking and is quite pleased with it.  for a long time she has done this funny "scootch".  she is on one knee and one foot--kind of like they sit when posing for a sports picture with the ball on their knee.  she steps forward with her foot and then slides her knee along behind.  it is really funny and cute. she did it in the gravel at a soccer game.  kevin said it looked like a worm trail behind her.

some time back i posted that one of my twins has had shortness of breath.  this is also the twin that has reflux.  i discussed this with the ped gi.  he said that, yes, shortness of breath is one of the symptoms of reflux.  he told me i could give her my protonix for a couple of weeks (she would take the same dose) to see if it helps her.  he said that sometimes the airway can get damaged, and there was another reason it can cause shortness of breath, but i can't remember what it was.   i am hoping our doc will prescribe her a PPI.  he had checked her before and didn't feel like there was anything wrong. once again i can see the need for a specialist.

i have the feeling that we may look at doing a fundo for kassie and maybe even myself eventually----with our insurance change i just don't know how we can afford to keep taking the PPI's.

this reflux thing is such a beast!!!!!

christine

leif 83
daisy 85
ian 89
kassandra 91 reflux celiac
tianna 91 reflux celiac
molly 95 celiac
elliot 97
samantha 99
sylvia 10/6/03 fundoplication hiatal hernia repair 7/29/04
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trigrl
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Quote trigrl Replybullet Posted: 24 October 2004 at 8:59am

christine--loved hearing about the family (even the not so good parts)!  i've often thought we should have a "diary" page where we can do this sort of posting.  sylvia sounds like a doll.  sorry you've recieved so many disparaging comments.  people are so interesting to me . . . how can the possibly judge?  i'm learning this too. 

oy vey, reflux abounds!  i'm sprinkling good karma on your whole family as i write.

Gina
Riley 3.18.04 previous refluxer
Madelyn 5.26.08 allergies to dairy, soy, wheat, corn and many other sensitivities; breastfed
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3under3
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Quote 3under3 Replybullet Posted: 24 October 2004 at 2:31pm

Christine, 

I don't know that your situation is like but this might be useful information to you. Many prescription drug manufactuers have special programs where they give drugs for free to patients who need them. Even to people who have health insurance. You have to meet certain income criteria- but that is based on family size. You also have to have an insurance plan that does not pay for 100% of the prescription.

This is how my boys receive their PPI. If not it would cost us $130 per month just for their PPI, not to mention everything else. The process was actually quick and easy. I called the company, was told that we meet the guidelines and they mailed me a packet. I filled it out, brought it to the doctor- they filled out their part and faxed it in. A week later I picked up the boys prescription at the doctor. 

I am not sure if that will help you or not but I wanted to share the information.

 

Laurie

Jack and Matthew- May 04 Lactose intolerant
Egg allergy

Julianna March 02- diagnosed w/ reflux & lactose intolerance at 3 yrs.
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hellbennt
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Quote hellbennt Replybullet Posted: 24 October 2004 at 3:08pm

Chiristine,

thanks for sharing with us! I oftentimes try & picture your busy household...

~laura

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!
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