oh my god, i just want to yell and scream out of the windows. my daughter is 7 weeks old and i am trying to get the video of her having her sandifers episodes on this site so i can get some feed back. youre poor little guy it's just an awful thing. i am not sure of his previous history. what was he like when he was first born. did he do this sandifers when he was a baby or did it just start? best wishes keep us posted

eileen

Aiden 12/01

Grace 8/06 viral meningitis, gerd, sandifers, prevacid 30mg/day, enfamil AR

Hi there, thanks for all of the responses. I posted this video in hopes of getting other moms some type of relief. My first 2.3 years of my oldest sons life was the hardest trial I've ever been through. It wore hard on my young marriage and my husband and I pulled through it.  Sean's reflux was silent and it wasn't diagnosed until he was 15 weeks old. From day 1 that he was born, he was the loudest child in the nursery and cried 24/7. He never "latched" well onto a breast. He would always arch his back and sway his neck far back. At 15 weeks the dr said we could try Zantac but no gntees. The next 2 weeks made my husband and I feel like we were sane again. What followed is what most of you tenured GERD parents know. The Zantac wore off and we were back to no sleep, screaming, and eyes rolling back in his head, and a lot of back arching. The doctor uped his dosage of zantac for the next 9 months. Didn't do a darn bit of good. We decided to move out of state closer to my husbands family for support as EVERY night Sean would be up with the "VIDEO" events and it was so hard for us. Upon meeting my new pediatrician I cried in his office and begged for a referral to a GI. Instead he put Sean on Prevacid, it helped a little, but the episodes at night still continued. I decided I had enough, my inner mom told me what was going on was him trying to show me how much pain he was in and couldn't possibly be normal. I decided to break out the digital camera and I recorded it. At my son's next dr's appointment upon review, the dr immediately diagnosed him with Sandifer's syndrome and put him on reglan. (still no referral to a GI). We had him on reglan for about 4 months and my husband and I decided the seizures it was putting him into was worse than the night episodes and we weened him off the reglan. He eventually improved, however still doesn't sleep though the night. And he does the odd eye rolling thing all the time. It's really hard on me because he wimpers in his sleep. What is wrong with my child, and why have I been in this nightmare for 3 years? Finally I asked his most recent pediatrician and they are running tests. They started off with his brain to make sure he's not having real seizures. So far the CT Scan came back normal and the EEG results haven't come in after a week. I feel for all of you moms of gerdlings. It's really hard to see your baby hurt. there is a light at the end of the tunnell, keep faith, and if need be keep pushing your doctor or switch. Video taping is a good idea I've decided. Sandifer's isn't resolved by reglan, they said kids outgrow it. But like the other posts say, it more than just reflux. A lot of back arching to almost a U shape and throwing the head/neck back in a very awkward position. Eye rolling is common as well. I wish I had a video to look at when I was so miserable typing on the reflux boards, I could have mentioned something to my pediatrician.  My second son has worse reflux and he is eye rolling as well. At least I've been down the road before. I'd give each mom a hug that has a child w/reflux.