InfantReflux.Org Forums: i need advice

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shanesmom
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Joined: 02 November 2006
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Topic: i need advice
Posted: 05 November 2006 at 3:00pm

hi everyone,

i have asked a couple moms this question, but i am still not sure as to what the solution is. my son is almost 5 mos. old and on alimentum, and he is still refluxing. not just refluxing but it's still acidic many of the times. also he squirms and moves really weird all night long, some of the times it wakes him up out of no where. anyhow... the good thing is is that he is not in pain at all.. he doesnt cry when he spits up and isnt too cranky all day... (unless he is tired)... compared to the first couple of months of his life when he cried ALL the time. sooo..

what is it? should i be concerned that he is still producing acid, even if not in pain? and he has no other signs of mspi.... do u think he needs to be on alimentum? i cant tell if i should keep him on it or not( he's been on it for 2 mos.)or do you think his meds need to be changed?(the doc won't increase them). or do nothing at all??;)

Edited by shanesmom - 05 November 2006 at 3:02pm

Shane: 6/13/06.. past refluxer
Sienna :12/6/08...neocate.. prevacid 30 mg's .. inhaler daily and nose steroids

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Posted: 05 November 2006 at 3:12pm

when reflux babies are in pain, they become poor sleepers.
the fact that you are still smelling acid is an indicator that the med dose needs to be increased. maybe you can fax your doc the marci-kids.com info about PPI's.

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shanesmom
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Posted: 05 November 2006 at 3:46pm

hey,

ohh i really dont think he is in pain, he just seems so happy all day, and never even blinks when he spitups..but i do agree that there is something wrong at night time.. even though he doesnt cry.. so, i did tell the GI once about marci-kids when i was talking about the dosing... and the nurse got an attitude saying well "who are they?", and that its not what they go by... i really dont think they will budge.. but i'll try.. sooo you think its a med problem and not an intolerance? he just doesnt have any other symptoms at all...

Shane: 6/13/06.. past refluxer
Sienna :12/6/08...neocate.. prevacid 30 mg's .. inhaler daily and nose steroids

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Posted: 05 November 2006 at 6:41pm

i dont know...it seems like if it was intolerance it wouldnt just be at night. it would be all the time.
it sounds like he is having brearthrough acid problems at night...

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Bryce'sMom
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Joined: 18 August 2006
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Posted: 05 November 2006 at 7:11pm

You know, he might not be in pain, but the acid might still be uncomfortable. I definitely don't think it would hurt to try a higher dose. You might try going to a family practice doctor. That's where we got our higher prevacid dose. They seem to be a little more open minded with PPI dosing (I think because they treat adults all the time for it maybe?) Anyway, that might be something to try. Good luck!

Heather

Mom to:
Isaac - 12/22/02
Parker - 09/06/04
Bryce - 12/9/05
<a href="http://lilypie.com">

[IMG]http://b2.lilypie.com/SrtSm7/.pn

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evergreenie
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Joined: 27 October 2006
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Posted: 05 November 2006 at 7:14pm

They are funny these babies- I don't have any trouble with reflux at night at all, Alana sleeps through from 9.30 to 5.30. But boy do we have problems during the day. Moaning and groaning and spewing and sqealing!

They are all different, so maybe he is having more pain during the night and not during the day. Who knows why these little buggers have their funny little patterns!

Is he in a regular pooing pattern? One thing I have wondered about with the whole allergy thing, is are they more affected by it when it is "sliding" through the intestines and things are getting sucked out into the system? Eg if he poos in the morning, is it during the night that the proteins are entering his system and the immune system reacts and he is squirmy. This might be a bit far out, but it is just something I wondered. Our digestive systems slow down overnight, not sure if babies do, but if they are slower, more gets drawn out, more reaction. Anyway, just a thought... Anyone have any comment on my theory - to much time to think maybe (LOL)

Is alimentum an elemental formula or just hypoallergic- cause if it is the later, then it is not really testing the whole protein allergy stuff.

Therese

Alana Nearly 3-Former refluxer and Milk Intolerant. No meds and full milk!

Nick- 8 weeks and milk and soy intolerant (we think!)

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shanesmom
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Posted: 05 November 2006 at 7:51pm

well, i dont think its just at night where he is uncomfortable.. it seems to be whenever he goes to sleep.. like his naps.. he squirms and wakes up after a half hour!!! but otherwise during the day he is great and happy.... ugh. i would love to change his formula to goodstart, we just cant afford the alimentum if its for nothing.

but i am nervous that he is intolerant and the protiens will build back up... to any of the experts...he poops reguarly, has never really had any gas and doesnt act like he is in any stomach pain, and has no rashes, except miner dry skin on his legs, but my mom said i had that too.... if he doesnt sound like mspi, please let me know

Shane: 6/13/06.. past refluxer
Sienna :12/6/08...neocate.. prevacid 30 mg's .. inhaler daily and nose steroids

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Posted: 05 November 2006 at 8:10pm

alimentum is "hypoallergenic" and still contains milk proteins.
my son couldnt tolerate it. but he was miserable all day long from it. he also had mucous in stools and reflux was horrendous even though he was on a high dose of PPI.

i truly think a higher med dose could help him out....

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hellbennt
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Posted: 05 November 2006 at 8:42pm

there was a mom who posted, lovemysophia, and she swore the main symptom of mspi that she noticed was what you're describing for sleep...you can search & read her posts (search button is in upper right hand corner of the screen)

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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ndrose
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Joined: 18 February 2006
Location: United States
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Posts: 4564

Posted: 05 November 2006 at 9:00pm

I'd defintely work on getting his Prevacid increased. 15 mg is a pretty low dose. I'd try that first before even considering changing his formula. Faxing the marci-kids information along with a nice cover letter explaining that he is still uncomfortable, not sleeping well, and has acidic smelling spit up (all of which are symptoms of untreated or under treated reflux), and asking to please let him try a higher dose may help. The marci-kids information did finally sway my son's doctor and the higher dose did turn things around for him.

Is he sleeping on an incline (head of mattress elevated)? That may help some, but I don't think you'll see great results until he's on a higher dose.

Christine

LIZA, 1/02 Princess/Tomboy
ELIANA 9/03 Genius/Comedienne
(silent reflux; outgrew it at 9 months)
MYLES 9/05 My Little Prince
(reflux; outgrew it at 9 months)

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InfantReflux.Org Forums : Infant Reflux Information : Miscellaneous

Author	Message
shanesmom Junior Member Joined: 02 November 2006 Location: United States Online Status: Offline Posts: 1643	Topic: i need advice Posted: 05 November 2006 at 3:00pm
	hi everyone, i have asked a couple moms this question, but i am still not sure as to what the solution is. my son is almost 5 mos. old and on alimentum, and he is still refluxing. not just refluxing but it's still acidic many of the times. also he squirms and moves really weird all night long, some of the times it wakes him up out of no where. anyhow... the good thing is is that he is not in pain at all.. he doesnt cry when he spits up and isnt too cranky all day... (unless he is tired)... compared to the first couple of months of his life when he cried ALL the time. sooo.. what is it? should i be concerned that he is still producing acid, even if not in pain? and he has no other signs of mspi.... do u think he needs to be on alimentum? i cant tell if i should keep him on it or not( he's been on it for 2 mos.)or do you think his meds need to be changed?(the doc won't increase them). or do nothing at all??;) Edited by shanesmom - 05 November 2006 at 3:02pm
	Shane: 6/13/06.. past refluxer Sienna :12/6/08...neocate.. prevacid 30 mg's .. inhaler daily and nose steroids

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Guests Guest	Posted: 05 November 2006 at 3:12pm
	when reflux babies are in pain, they become poor sleepers. the fact that you are still smelling acid is an indicator that the med dose needs to be increased. maybe you can fax your doc the marci-kids.com info about PPI's.
	IP Logged

shanesmom Junior Member Joined: 02 November 2006 Location: United States Online Status: Offline Posts: 1643	Posted: 05 November 2006 at 3:46pm
	hey, ohh i really dont think he is in pain, he just seems so happy all day, and never even blinks when he spitups..but i do agree that there is something wrong at night time.. even though he doesnt cry.. so, i did tell the GI once about marci-kids when i was talking about the dosing... and the nurse got an attitude saying well "who are they?", and that its not what they go by... i really dont think they will budge.. but i'll try.. sooo you think its a med problem and not an intolerance? he just doesnt have any other symptoms at all...
	Shane: 6/13/06.. past refluxer Sienna :12/6/08...neocate.. prevacid 30 mg's .. inhaler daily and nose steroids
	IP Logged

Guests Guest	Posted: 05 November 2006 at 6:41pm
	i dont know...it seems like if it was intolerance it wouldnt just be at night. it would be all the time. it sounds like he is having brearthrough acid problems at night...
	IP Logged

Bryce'sMom Junior Member Joined: 18 August 2006 Location: United States Online Status: Offline Posts: 1543	Posted: 05 November 2006 at 7:11pm
	You know, he might not be in pain, but the acid might still be uncomfortable. I definitely don't think it would hurt to try a higher dose. You might try going to a family practice doctor. That's where we got our higher prevacid dose. They seem to be a little more open minded with PPI dosing (I think because they treat adults all the time for it maybe?) Anyway, that might be something to try. Good luck!
	Heather Mom to: Isaac - 12/22/02 Parker - 09/06/04 Bryce - 12/9/05 <a href="http://lilypie.com">[IMG]http://b2.lilypie.com/SrtSm7/.pn
	IP Logged

evergreenie Junior Member Joined: 27 October 2006 Location: Australia Online Status: Offline Posts: 1608	Posted: 05 November 2006 at 7:14pm
	They are funny these babies- I don't have any trouble with reflux at night at all, Alana sleeps through from 9.30 to 5.30. But boy do we have problems during the day. Moaning and groaning and spewing and sqealing! They are all different, so maybe he is having more pain during the night and not during the day. Who knows why these little buggers have their funny little patterns! Is he in a regular pooing pattern? One thing I have wondered about with the whole allergy thing, is are they more affected by it when it is "sliding" through the intestines and things are getting sucked out into the system? Eg if he poos in the morning, is it during the night that the proteins are entering his system and the immune system reacts and he is squirmy. This might be a bit far out, but it is just something I wondered. Our digestive systems slow down overnight, not sure if babies do, but if they are slower, more gets drawn out, more reaction. Anyway, just a thought... Anyone have any comment on my theory - to much time to think maybe (LOL) Is alimentum an elemental formula or just hypoallergic- cause if it is the later, then it is not really testing the whole protein allergy stuff.
	Therese Alana Nearly 3-Former refluxer and Milk Intolerant. No meds and full milk! Nick- 8 weeks and milk and soy intolerant (we think!)
	IP Logged

shanesmom Junior Member Joined: 02 November 2006 Location: United States Online Status: Offline Posts: 1643	Posted: 05 November 2006 at 7:51pm
	well, i dont think its just at night where he is uncomfortable.. it seems to be whenever he goes to sleep.. like his naps.. he squirms and wakes up after a half hour!!! but otherwise during the day he is great and happy.... ugh. i would love to change his formula to goodstart, we just cant afford the alimentum if its for nothing. but i am nervous that he is intolerant and the protiens will build back up... to any of the experts...he poops reguarly, has never really had any gas and doesnt act like he is in any stomach pain, and has no rashes, except miner dry skin on his legs, but my mom said i had that too.... if he doesnt sound like mspi, please let me know
	Shane: 6/13/06.. past refluxer Sienna :12/6/08...neocate.. prevacid 30 mg's .. inhaler daily and nose steroids
	IP Logged

Guests Guest	Posted: 05 November 2006 at 8:10pm
	alimentum is "hypoallergenic" and still contains milk proteins. my son couldnt tolerate it. but he was miserable all day long from it. he also had mucous in stools and reflux was horrendous even though he was on a high dose of PPI. i truly think a higher med dose could help him out....
	IP Logged

hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 05 November 2006 at 8:42pm
	there was a mom who posted, lovemysophia, and she swore the main symptom of mspi that she noticed was what you're describing for sleep...you can search & read her posts (search button is in upper right hand corner of the screen)
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged

ndrose Senior Member Joined: 18 February 2006 Location: United States Online Status: Offline Posts: 4564	Posted: 05 November 2006 at 9:00pm
	I'd defintely work on getting his Prevacid increased. 15 mg is a pretty low dose. I'd try that first before even considering changing his formula. Faxing the marci-kids information along with a nice cover letter explaining that he is still uncomfortable, not sleeping well, and has acidic smelling spit up (all of which are symptoms of untreated or under treated reflux), and asking to please let him try a higher dose may help. The marci-kids information did finally sway my son's doctor and the higher dose did turn things around for him. Is he sleeping on an incline (head of mattress elevated)? That may help some, but I don't think you'll see great results until he's on a higher dose.
	Christine LIZA, 1/02 Princess/Tomboy ELIANA 9/03 Genius/Comedienne (silent reflux; outgrew it at 9 months) MYLES 9/05 My Little Prince (reflux; outgrew it at 9 months)
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