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Total Elimination Diet (TED) Basics
 InfantReflux.Org Forums : Feeding Issues : Total Elimination Diet (TED) Basics
Message Icon Topic: Reidun’s Story and Gathered Information Post Reply Post New Topic
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Heidi T.
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Quote Heidi T. Replybullet Posted: 14 April 2007 at 3:07am

Hello again ! Here are some calculations I’ve done for Reidun’s diet. Hopefully some of you will be able to apply this information to your own little ones. I’m not very sure about my math (never my strongest subject) and I’m not sure if I got the information for my calculations from the most accurate sources. If any of you have access to a dietician, and plan on using any of this info, please double check it with them. Please let me know if you spot anything that needs correcting!

What stresses me the most after doing these calculations (if they were done correctly), if she is receiving the amount of breast milk she is supposed to be getting (impossible to measure when she is getting directly from the breast, but I think she is getting less than the recommended amount), I am giving her above the recommended amount of meat/protein.  I have been giving her almost 4T of meat a day. I am going to lower this to 1T immediately, closer to the recommended amount.

According to this article http://pediatrics.aappublications.org/cgi/content/full/106/5 /S2/1293 “There are no data indicating that a protein intake 3 to 4 times above the requirements has any adverse effects, but only a few studies have focused on the small group of infants receiving a higher protein intake, more than 5 times the requirements. Such intakes might impair water homeostasis during illness and it can not be excluded that they have adverse effects immediately or later in life.” “The protein requirements for infants and young children are higher than for older children and adults when expressed per kilo body weight, mainly attributable to the larger requirements for growth. Revised estimates for a safe intake are 1.09 g/kg for 6 to 9 months of age and 1.02 g/kg for 9 to 12 months”

The reason I started using 4T of meat is because of the Infant Meal Pattern Chart (IMPC), found on pg 3 of this thread, recommended 1 to 4 T of meat at lunch and dinner. According to the above article, the 4T of meat I was giving her (4X the recommended amount) states there is no data indicating this amount will produce adverse effects, but if I were to go up to 8T as the IMPC states I could, this could be dangerous

http://ta-ze.com/infant.aspx According to this article, Reidun should be getting 1.4 grams of protein per kg a day (I trust the above recommendations more)

http://www.unu.edu/Unupress/food2/UID01E/uid01e0d.htm According to the authors of this article, Reidun should be between 7.97 and 9.05kg

How many calories should she be getting a day?According to http://ta-ze.com/infant.aspx, she should be getting around 100 to 116 kcal/kg/day. So 797-1050 calories a day, for weights between 7.97 and 9.05kg.

How many calories are in an oz of milk? 20 kcal/oz

How many grams of protein should she be getting a day? Reidun is 9 months, ~8kg, her weight should be between 7.97 and 9.05kg, so she should be getting somewhere between 8.13-9.23 grams of protein a day. (according to the second article 11.16-12.67)

How much milk should she get a day? According to her pediatrician, she should be drinking 24 oz a day. This is 480 kcal/day.

How many grams of protein a day is she getting from breast milk? 1.1% of human milk is protein. There is 1.6g of protein in 100g of milk. I think 1oz of breast milk equals 28 grams. In 1oz of breast milk, there should be 0.36grams of protein. So, if she is drinking 24oz of milk, she should be getting 7.4-10.75g

How many grams of protein is in 1T of meat? 1oz of meat equals 7g of protein. I think 1T of meat = 1oz of meat, so 7g of protein is in 1T of meat

How many T of meat should she be getting a day? If she is to get 8.13-9.23 grams of protein a day, and she gets 7.4-10.75g grams of protein from 24 oz of milk. She should get -2.6-0.7g of protein or <1T!!!!!!

How much fat should she get a day? Daily needs for fat amount approximately a third of the infant’s total energy need. She should be getting 797-1050 kcal/day, a third of that is 266-350 kcal/day. There are 9 calories in one gram of fat. So 30-39g/day.

How much fat does she get from my breast milk a day? 4.5% of human milk is fat. The average fat content of human milk is 1.2 grams/oz. If she drinks 24 oz of milk, she should get 28.8 grams of fat.

How much additional fat should she be getting a day? 1.2-10.2 grams, I think there is 12g of fat in 1T, and 4g in 1t, so aim for 1/3-2 ½ t of extra fat a day.



Edited by Heidi T. - 15 April 2007 at 12:58pm

Multiple Food Protein Intolerance (MFPI) to dairy, soy, egg, nuts & grains
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Quote Heidi T. Replybullet Posted: 14 April 2007 at 3:22pm

I was curious,

(1) How many T of meat a day should she have, if she didn't have milk (don't worry not planning on stopping milk), and meat was her only source of protein? If she is to get 8.13-9.23g/protein/day and 1T=7g/protein, the answer would be 1.16-1.32T,

(2) How many T or t of fat a day should she get a day? If she is to get 30-39g/fat/day and 4g=1t, and 12g=1T, she should get 7.5-9.75t/fat/day or 2.5-3.25T/fat/day



Edited by Heidi T. - 15 April 2007 at 12:34pm

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Quote TnBEich Replybullet Posted: 14 April 2007 at 4:17pm
Heidi:  Congratulations on taking this MFPI and making it work for you and Reidun!  Carson is still MSPI.  He is 20 months.  When he sleeps well I have a much better outlook on life!  I am wondering if you have been told or know of any information as to when the MFPI will dissapate?  Carson was skin prick tested and I will do so again near his 2nd birthday and will post those results to show what a year's difference made in the testing.  I just wish there was a MAGIC date when all of this would go away.  We were told a year, then 18 months then 2.  Now our spec says that with severe MSPI/MFPI it could be closer to 3 but I read on the internet that most children with MSPI/MFPI outgrow it by 10.  If this lasts until he is 10 I may not make it!  What info were you given?  Just curious.  If you haven't asked/been down that road yet please don't dig up info for me - I do have some in my favorites that I could post - don't want to take you away from Reidun!  Just curious what you were told.  Thanks! 

Edited by TnBEich - 14 April 2007 at 4:18pm
Brenda-SD
Talon:16
Jeremy:12
Carson:MFPA,DGE,FTT
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Heidi T.
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Quote Heidi T. Replybullet Posted: 14 April 2007 at 4:31pm

Good news, it has been less than 2 weeks since our 9 month check up with the MD--since that time she has gained 8 oz, more weight than she gained in the total three months prior. Now she is in the 25th percentile for weight instead of the 15th. It's great to see the improvements she is making with this new diet!! 

And my DH looked over my math, he thinks everything looks good, I'd trust his math over mine any day.

P.S. I think I am going crazy with all these posts! I'm trying to hold back, but I can't, I'm addicted!!



Edited by Heidi T. - 14 April 2007 at 10:09pm

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Quote Heidi T. Replybullet Posted: 14 April 2007 at 5:58pm
Brenda: Thanks for the post. I too have been researching when these kiddos usually outgrow their intolerances. Unfortunately, like you, I have not been able to find that magic date. I've read anywhere from 6 months to 10 years or more. Some never outgrow their intolerances. I think it would be wonderful of you to post the information you have found. It would be awesome to find data on how many children have protein intolerance, and what percentage outgrow it and when (but I don't think enough data has been collected on this subject yet). 
 
For me, boards like this have been a real sanity saver. I didn't find this board until Reidun was around 7 months old. I thought her condition was too rare to have enough people together talking about it. I felt so alone and frustrated. I still have not found anyone in Oregon or Washington with protein intolerance, I know they are out there! It is sad to think about lost mothers out there (like we all were once) looking for support, like the excellent support from parents on this board, and not being able to find it!
 
I think I am emotionally prepared if Reidun doesn't outgrow her intolerances. But I REALLY hope she outgrows them soon! I have always been one of those "prepared for the worst, but hope for the best" sort of people. The diet isn't that bad, now that I am use to it. The convenience factor is a real drag, but it has forced our family to eat less processed, healthier foods. I still really miss lattes though, I dream of having one daily! I tell myself, once I'm done with this diet, I can have a latte every day, for the rest of my life. I use to feel guilty with the amount of money I was spending on lattes, but now I feel like I have done enough penance to drink enough lattes for a life time without guilt!  

Multiple Food Protein Intolerance (MFPI) to dairy, soy, egg, nuts & grains
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Heidi T.
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Quote Heidi T. Replybullet Posted: 14 May 2007 at 5:20pm

My milk supply is starting to run low, so I needed to find out Reidun's  calcium needs so we can start supplementing. We can't use rice milk. Perhaps we will use those algae vitamins I posted about earlier? Or just use higher calcium veggies--but most of these you are supposed to wait a year to introduce :/ 

http://www.keepkidshealthy.com/nutrition/calcium_requirement s.html


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Quote ndrose Replybullet Posted: 14 May 2007 at 7:55pm
That's a great link. Thanks for posting it.
Christine

LIZA, 1/02 Princess/Tomboy
ELIANA 9/03 Genius/Comedienne
(silent reflux; outgrew it at 9 months)
MYLES 9/05 My Little Prince
(reflux; outgrew it at 9 months)
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Heidi T.
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Quote Heidi T. Replybullet Posted: 24 May 2007 at 6:21pm

I've ordered this powdered hypoallergenic calcium from Kirkman Labs for Reidun, hopefully she'll be able to tolerate it. It seems other parents here have been able to use it with good results :)

http://www.kirkmanlabs.com/products/minerals/calcium/H_Calci um_P_8_Spec036.html



Edited by Heidi T. - 24 May 2007 at 6:21pm

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Quote tlin Replybullet Posted: 16 June 2007 at 1:46pm

Thank you very much for posting all detail information.  I, too have allergic baby, and I wish I know that I have to avoid major allergen while I was pregnant.  I stop breatfeeding him at 1 year, I shouldn't have!

Currently my baby is trying Neocate and Elecare (cannot tolerate other milk).  Seems like Neocate doesn't work well with him.. this is the first day of his Elecare.  Hopefully Elecare works. 

Lin

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Quote Heidi T. Replybullet Posted: 26 July 2007 at 4:35pm
 

Day 1

Day 2

Day 3

Day 4

Meat

1 Tablespoon three times a day (has calcium mixed in)

Veal

Ham

Chicken

 

Lamb

Turkey

Starch

Three times daily. Can be used as finger food, or mashed.

Sweet Potato

Yam

Rutabaga

Squash

Potato

Vegetable

2 or more different vegetables a day. Must have at least one green vegetable daily.  Total amount of vegetables a day to exceed fruit, but it doesn’t have to be by much.

Green Beans

Okra

Peas/Beans/Lentils

Jicama

Kale

Broccoli

Cabbage

Cauliflower

Brussel Sprout

Celery

Carrot

Asparagus

Avocado

Onion

Garlic

Mushroom

 

Spinach

Beet

Lettuce

Bell Pepper

Artichoke

Eggplant

Tomato

Fruit

2 or more different fruits a day.

Apple

Pear

Pineapple

Fig

Current

Gooseberry

Grape/Raisin Blackberry

Raspberry

Strawberry

Papaya

Kiwi

Citrus: Orange, Lemon

 

Blueberry

Cranberry

Banana

Melons

Peach

Apricot

Plum/Prune

Cherry

Date

Coconut

Mango

Guava

Oil

Canola

Cod Liver & Flaxseed

Olive

Safflower

Sunflower

 

 
This is Reidun's 1-year-old Rotation Diet, the foods that are italicized are foods we have not tried as of yet with her or we have tried them in the past and she showed some type of intolerance.


Edited by Heidi T. - 26 July 2007 at 4:55pm

Multiple Food Protein Intolerance (MFPI) to dairy, soy, egg, nuts & grains
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