InfantReflux.Org Forums: what's up with you?

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s&h's mum
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Joined: 30 October 2005
Location: Canada
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Posts: 5797

Posted: 10 July 2007 at 4:00pm

Christine,

I am humbled in reading your message. I can hardly handle two children most of the time, I honestly don't know how you do it. Your children sound amazing.

LORI, mom to:

Sarah-09/03-My sweet princess.

Hailey-05/05- My funny little girl. 4 years old, but still my baby.
Past feeding aversion. Now typical eater, off prevacid for 1.5 years!

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pkkb
Senior Member

Joined: 17 August 2004
Location: United States
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Posts: 3200

Posted: 10 July 2007 at 8:41pm

Rony, it was great to hear from you!

Christine, as always, I'm amazed by your ability to handle everything that comes your way! It sounds like you have a wonderful family!

Kim
Kaelyn 6-04 reflux- Off prevacid -- Outgrew Allergies to wheat, milk, peaches, and apples
Alexandra 6-06 - 36 weeks, reflux, laryngomalacia, asthma, no allergies!!

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matthewmama
Junior Member

Joined: 21 October 2005
Location: United States
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Posts: 1357

Posted: 13 July 2007 at 11:56am

Good thread!

Where to start... so many things have happened lately.

We got back from Kennedy Krieger about a month ago. Matthew was sick for a while but is back to eating what he was eating at KKI, so we are doing pretty well. This boy loves cheese and chocolate milk... he would be happy to only be fed that at every meal. Have not used his tube in what... maybe 7 or 8months? we will leave it in this winter and if he continues to do well, it will be coming out next spring!!

Found a great speech therapist that confirmed he has dysarthria -- which is a neurological condition that affects muscle - ie it is really low muscle tone and muscle weakness... so we are starting a treatment program to treat it for both feeding and speech and looking for a therapist able to implement it. He is doing amazing regardless and is the sweetest, cuddliest and best behaved little kid around LOL... never ever complains, never cries and sleeps really well these days!! He even asks to go na-na (which is night night) after dinner most nights... His stomach si still producing a ton of acid... they were amazed at KKI and now we have zantac to supplement should we need it.

I am now 22 weeks... with a BOY!!

We have a scare a while back but everything is back to normal we hope. Matthew's GI is wonderful and will take care of this kid from day 1. We are starting with either Alimentum or Neocate and the GI will be ready to do some tests right after the baby is born if we notice any little thing (we are hoping not)... the GI is hoping to catch anything really early... and even talks to my belly asking the baby to be good LOL. we will also do a speech eval hopefully by one of the people that treat preemies in the hospital... with Matthew's current muscle weakness, the speech therapist thinks that someone should have noticed this at birth... it would have been pretty evident because he was unable to breastfeed (i learned a lot about what type of suck you need to breastfeed vs bottle feed, which is pretty different)... so hopefully if there is some weakness we can start treating it straight away.

Ok... i think that is it? been really busy - nice to see everyone's updates

Thais
Matthew 8/8/05, NG tube; Gtube since 6/06, 30mg Prevacid, Periactin

William 11/6/07

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Anne
Junior Member

Joined: 16 February 2005
Location: United States
Online Status: Offline
Posts: 1079

Posted: 04 August 2007 at 12:48am

Hi everyone! Lucas and I were at my parents house for two months this summer and no internet....I missed seeing all of you! Lucas is nearly three, mostly reflux symptom free, but on 40mg of zegerid each day to keep it that way. He's getting his last two teeth and still waking on average once a night, but so much better than it used to be!! He is still off dairy, soy, gluten and beef and a host of highly acidic foods (but we've given a few of these in small doses and he's been okay-- like a bit of orange juice or some tomato). I really got crazy and gave him a few bites of homemade dairy ice cream recently and those few bites didn't seem to affect him. We're waiting on the teeth to do formal food trials. He LOVES to talk, is very inquisitive and a normal fun great little boy to be around. He went to a preschool program at our local community college's child development center last year and this fall starts going four mornings a week and I go one morning with him.

I think I must be going insane but I'm actually thinking of having another child...??? Have I LOST my mind?

I've only been sleeping since late April (my definition of "sleeping" is only waking once and sometimes -- maybe twice a week-- making it the whole night with no wakings).

We hope everyone is well and it's great to see everyone's update!

Anne-37 Ryan-40
Lucas 9/18/04
Hiatal hernia, mult protein intol
Zegerid, probiotics
Bfed 2 yrs still no dairy/gluten/oats
Norah- 9/12/08 zeg., b-fed 2 yrs,
no dairy/nuts/corn/soy
Night waking

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Palmersmom
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Joined: 27 March 2004
Location: United States
Online Status: Offline
Posts: 977

Posted: 16 November 2007 at 9:46am

Wow -- it's great to read so many updates from people! I haven't logged onto the forum for months and wasn't sure where to start, so it was nice to *see* so many familiar *faces* here!

Palmer's doing really well. He's still as big and as athletic as ever. He never stops growing -- at 43" tall now and not quite 4 years old. But unfortunately his weight is still at only 36 lbs. His ped is talking about increasing his prevacid to 30mg/day if his weight isn't up by his 4 yr appointment, but I really don't want to do that. He eats a lot (says he's hungry & eats 6-8 times a day), but he's constantly on the run & I just think he has really high metabolism. He loves his preschool, and is still totally into sports. He played t-ball & basketball for parks & rec, but he'll have to move up to the 5-6 year old league next year (even though he'll only be 4) because his skill level is so advanced. Besides that he's as fun and playful as ever!

I've loved staying home with Palmer since we moved to Indiana in January. Sometimes I miss my work and the challenge of the classroom -- and I definitely miss my great colleagues, but the rewards of being more involved in Palmer's development more than balance that. We've had our ups and downs of course, but all in all it's been a great year!

Christine -- mom of silly boy Palmer, 1/2/04 (on meds: prevacid 15mg/day, allegra, nasonex, miralax -- but all no big deal)! My growing, athletic, love of my life (besides dh Todd of course)

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pkkb
Senior Member

Joined: 17 August 2004
Location: United States
Online Status: Offline
Posts: 3200

Posted: 16 November 2007 at 6:49pm

It's great to hear from you Christine! It sounds like Palmer is an amazing little boy!

Kim
Kaelyn 6-04 reflux- Off prevacid -- Outgrew Allergies to wheat, milk, peaches, and apples
Alexandra 6-06 - 36 weeks, reflux, laryngomalacia, asthma, no allergies!!

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monty123
Senior Member

Joined: 03 August 2003
Location: United States
Online Status: Offline
Posts: 2673

Posted: 18 November 2007 at 11:35am

I can't believe that Palmer is going to be 4!!!!! Great to hear from you, Christine! He will be a professional athlete some day!

Ann Marie
Dylan 2/28/03 (27 wkr, past GERD, NEC, ROP, GBS/meningitis, brain bleed)
Carter 3/25/06 (29 wkr, past GERD, Cardiac arrest w/Immunizations, syndromic features?, all neg tests so far)

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kevieb
Senior Member

Joined: 02 December 2003
Location: United States
Online Status: Offline
Posts: 3539

Posted: 20 November 2007 at 7:12pm

christine, i have thought about you a number of times---but i didn't know what had happened to your e-mail address. i have wondered how the celiac diet is going for you. it is good to hear that palmer is doing so well. sylvia is about as wild as a march hare. she turned 4 in october and still only weighs about 35 lbs and is just barely over 39 inches tall. i keep worrying that she might have celiac like the other kids-----especially with the enamel problems with her teeth. she also seems to have circles under her eyes these days. it is time to test the other kids blood levels again---so i think i need to test sylvia again. now that she is over 4, the test should be more accurate than when she was younger.

we have just moved into a large house with 6 bedrooms and a large family room----it is nice to have more space for the kids to spread out.

christine

leif 83
daisy 85
ian 89
kassandra 91 reflux celiac
tianna 91 reflux celiac
molly 95 celiac
elliot 97
samantha 99
sylvia 10/6/03 fundoplication hiatal hernia repair 7/29/04

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hellbennt
Admin Group

Joined: 28 August 2003
Location: United States
Online Status: Offline
Posts: 13403

Posted: 20 November 2007 at 10:35pm

waving hello christine

So good to read your post!!!

go Palmer, go!

~laura

~laura~
Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos
Ari 7/06 REFLUX FREE, so miracles do happen!

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Palmersmom
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Groupie

Joined: 27 March 2004
Location: United States
Online Status: Offline
Posts: 977

Posted: 24 November 2007 at 8:33pm

Thanks for all the great hellos Kim, Ann Marie, Christine, and Laura!! I can't believe that most our little kids are already (or almost) 4! I hope everyone had a wonderful and happy holiday!

Christine -- Sylvia's weight seems pretty good for her height, but I definitely understand your concern about weight and about celiac. I haven't been great about the diet and I know that I need to do better. Generally I feel pretty good just doing a mix of grains, but I'm sure I could cut out a lot of my sinus/cold issues if I went cold turkey on gluten. I'd love to "talk" with you more off forum. The best email address for me these days is attached to my profile. If you can't get me through that let me know here. Congratuations by the way on the bigger house! It must be nice having more room for everyone.

Christine -- mom of silly boy Palmer, 1/2/04 (on meds: prevacid 15mg/day, allegra, nasonex, miralax -- but all no big deal)! My growing, athletic, love of my life (besides dh Todd of course)

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Keeping In Touch
InfantReflux.Org Forums : Just For Fun : Keeping In Touch

Author	Message
s&h's mum Senior Member Joined: 30 October 2005 Location: Canada Online Status: Offline Posts: 5797	Posted: 10 July 2007 at 4:00pm
	Christine, I am humbled in reading your message. I can hardly handle two children most of the time, I honestly don't know how you do it. Your children sound amazing.
	LORI, mom to: Sarah-09/03-My sweet princess. Hailey-05/05- My funny little girl. 4 years old, but still my baby. Past feeding aversion. Now typical eater, off prevacid for 1.5 years!
	IP Logged

pkkb Senior Member Joined: 17 August 2004 Location: United States Online Status: Offline Posts: 3200	Posted: 10 July 2007 at 8:41pm
	Rony, it was great to hear from you! Christine, as always, I'm amazed by your ability to handle everything that comes your way! It sounds like you have a wonderful family!
	Kim Kaelyn 6-04 reflux- Off prevacid -- Outgrew Allergies to wheat, milk, peaches, and apples Alexandra 6-06 - 36 weeks, reflux, laryngomalacia, asthma, no allergies!!
	IP Logged

matthewmama Junior Member Joined: 21 October 2005 Location: United States Online Status: Offline Posts: 1357	Posted: 13 July 2007 at 11:56am
	Good thread! Where to start... so many things have happened lately. We got back from Kennedy Krieger about a month ago. Matthew was sick for a while but is back to eating what he was eating at KKI, so we are doing pretty well. This boy loves cheese and chocolate milk... he would be happy to only be fed that at every meal. Have not used his tube in what... maybe 7 or 8months? we will leave it in this winter and if he continues to do well, it will be coming out next spring!! Found a great speech therapist that confirmed he has dysarthria -- which is a neurological condition that affects muscle - ie it is really low muscle tone and muscle weakness... so we are starting a treatment program to treat it for both feeding and speech and looking for a therapist able to implement it. He is doing amazing regardless and is the sweetest, cuddliest and best behaved little kid around LOL... never ever complains, never cries and sleeps really well these days!! He even asks to go na-na (which is night night) after dinner most nights... His stomach si still producing a ton of acid... they were amazed at KKI and now we have zantac to supplement should we need it. I am now 22 weeks... with a BOY!! We have a scare a while back but everything is back to normal we hope. Matthew's GI is wonderful and will take care of this kid from day 1. We are starting with either Alimentum or Neocate and the GI will be ready to do some tests right after the baby is born if we notice any little thing (we are hoping not)... the GI is hoping to catch anything really early... and even talks to my belly asking the baby to be good LOL. we will also do a speech eval hopefully by one of the people that treat preemies in the hospital... with Matthew's current muscle weakness, the speech therapist thinks that someone should have noticed this at birth... it would have been pretty evident because he was unable to breastfeed (i learned a lot about what type of suck you need to breastfeed vs bottle feed, which is pretty different)... so hopefully if there is some weakness we can start treating it straight away. Ok... i think that is it? been really busy - nice to see everyone's updates
	Thais Matthew 8/8/05, NG tube; Gtube since 6/06, 30mg Prevacid, Periactin William 11/6/07
	IP Logged

Anne Junior Member Joined: 16 February 2005 Location: United States Online Status: Offline Posts: 1079	Posted: 04 August 2007 at 12:48am
	Hi everyone! Lucas and I were at my parents house for two months this summer and no internet....I missed seeing all of you! Lucas is nearly three, mostly reflux symptom free, but on 40mg of zegerid each day to keep it that way. He's getting his last two teeth and still waking on average once a night, but so much better than it used to be!! He is still off dairy, soy, gluten and beef and a host of highly acidic foods (but we've given a few of these in small doses and he's been okay-- like a bit of orange juice or some tomato). I really got crazy and gave him a few bites of homemade dairy ice cream recently and those few bites didn't seem to affect him. We're waiting on the teeth to do formal food trials. He LOVES to talk, is very inquisitive and a normal fun great little boy to be around. He went to a preschool program at our local community college's child development center last year and this fall starts going four mornings a week and I go one morning with him. I think I must be going insane but I'm actually thinking of having another child...??? Have I LOST my mind? I've only been sleeping since late April (my definition of "sleeping" is only waking once and sometimes -- maybe twice a week-- making it the whole night with no wakings). We hope everyone is well and it's great to see everyone's update!
	Anne-37 Ryan-40 Lucas 9/18/04 Hiatal hernia, mult protein intol Zegerid, probiotics Bfed 2 yrs still no dairy/gluten/oats Norah- 9/12/08 zeg., b-fed 2 yrs, no dairy/nuts/corn/soy Night waking
	IP Logged

Palmersmom Groupie Joined: 27 March 2004 Location: United States Online Status: Offline Posts: 977	Posted: 16 November 2007 at 9:46am
	Wow -- it's great to read so many updates from people! I haven't logged onto the forum for months and wasn't sure where to start, so it was nice to see so many familiar faces here! Palmer's doing really well. He's still as big and as athletic as ever. He never stops growing -- at 43" tall now and not quite 4 years old. But unfortunately his weight is still at only 36 lbs. His ped is talking about increasing his prevacid to 30mg/day if his weight isn't up by his 4 yr appointment, but I really don't want to do that. He eats a lot (says he's hungry & eats 6-8 times a day), but he's constantly on the run & I just think he has really high metabolism. He loves his preschool, and is still totally into sports. He played t-ball & basketball for parks & rec, but he'll have to move up to the 5-6 year old league next year (even though he'll only be 4) because his skill level is so advanced. Besides that he's as fun and playful as ever! I've loved staying home with Palmer since we moved to Indiana in January. Sometimes I miss my work and the challenge of the classroom -- and I definitely miss my great colleagues, but the rewards of being more involved in Palmer's development more than balance that. We've had our ups and downs of course, but all in all it's been a great year!
	Christine -- mom of silly boy Palmer, 1/2/04 (on meds: prevacid 15mg/day, allegra, nasonex, miralax -- but all no big deal)! My growing, athletic, love of my life (besides dh Todd of course)
	IP Logged

pkkb Senior Member Joined: 17 August 2004 Location: United States Online Status: Offline Posts: 3200	Posted: 16 November 2007 at 6:49pm
	It's great to hear from you Christine! It sounds like Palmer is an amazing little boy!
	Kim Kaelyn 6-04 reflux- Off prevacid -- Outgrew Allergies to wheat, milk, peaches, and apples Alexandra 6-06 - 36 weeks, reflux, laryngomalacia, asthma, no allergies!!
	IP Logged

monty123 Senior Member Joined: 03 August 2003 Location: United States Online Status: Offline Posts: 2673	Posted: 18 November 2007 at 11:35am
	I can't believe that Palmer is going to be 4!!!!! Great to hear from you, Christine! He will be a professional athlete some day!
	Ann Marie Dylan 2/28/03 (27 wkr, past GERD, NEC, ROP, GBS/meningitis, brain bleed) Carter 3/25/06 (29 wkr, past GERD, Cardiac arrest w/Immunizations, syndromic features?, all neg tests so far)
	IP Logged

kevieb Senior Member Joined: 02 December 2003 Location: United States Online Status: Offline Posts: 3539	Posted: 20 November 2007 at 7:12pm
	christine, i have thought about you a number of times---but i didn't know what had happened to your e-mail address. i have wondered how the celiac diet is going for you. it is good to hear that palmer is doing so well. sylvia is about as wild as a march hare. she turned 4 in october and still only weighs about 35 lbs and is just barely over 39 inches tall. i keep worrying that she might have celiac like the other kids-----especially with the enamel problems with her teeth. she also seems to have circles under her eyes these days. it is time to test the other kids blood levels again---so i think i need to test sylvia again. now that she is over 4, the test should be more accurate than when she was younger. we have just moved into a large house with 6 bedrooms and a large family room----it is nice to have more space for the kids to spread out.
	christine leif 83 daisy 85 ian 89 kassandra 91 reflux celiac tianna 91 reflux celiac molly 95 celiac elliot 97 samantha 99 sylvia 10/6/03 fundoplication hiatal hernia repair 7/29/04
	IP Logged

hellbennt Admin Group Joined: 28 August 2003 Location: United States Online Status: Offline Posts: 13403	Posted: 20 November 2007 at 10:35pm
	waving hello christine!! So good to read your post!!! go Palmer, go! ~laura
	~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen!
	IP Logged

Palmersmom Groupie Joined: 27 March 2004 Location: United States Online Status: Offline Posts: 977	Posted: 24 November 2007 at 8:33pm
	Thanks for all the great hellos Kim, Ann Marie, Christine, and Laura!! I can't believe that most our little kids are already (or almost) 4! I hope everyone had a wonderful and happy holiday! Christine -- Sylvia's weight seems pretty good for her height, but I definitely understand your concern about weight and about celiac. I haven't been great about the diet and I know that I need to do better. Generally I feel pretty good just doing a mix of grains, but I'm sure I could cut out a lot of my sinus/cold issues if I went cold turkey on gluten. I'd love to "talk" with you more off forum. The best email address for me these days is attached to my profile. If you can't get me through that let me know here. Congratuations by the way on the bigger house! It must be nice having more room for everyone.
	Christine -- mom of silly boy Palmer, 1/2/04 (on meds: prevacid 15mg/day, allegra, nasonex, miralax -- but all no big deal)! My growing, athletic, love of my life (besides dh Todd of course)
	IP Logged

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