Doctors: the good, the bad, the ugly
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Topic: Doctors: the good, the bad, the ugly
Posted By: hellbennt
Subject: Doctors: the good, the bad, the ugly
Date Posted: 19 October 2009 at 8:13pm
Put City and State at the top of your post, please Hi everyone, I thought I'd start a thread where we can we can recommend, rant, rave and forewarn about all kinds of doctors, not 'just' ped GIs... I imagine most will be ped specialists, but if you have others, for adults, then why not list them, too? Thanks! ~laura finding a ped GI: file:///C:%5CDOCUME%7E1%5CTHEBEN%7E1%5CLOCALS%7E1%5CTemp%5Cmsohtml1%5C04%5Cclip_filelist.xml - - forum_posts.asp?TID=660 - - http://www.infantreflux.org/forum/forum_posts.asp?TID=2607&a mp;KW=going this thread has a great conversation about Speech Language Pathologists in the New York City area- I think it covers Feeding Therapy and related topics: Swallow/speech/nyc/thais: forum_posts.asp?TID=9445&PID=82094#82094 - http://www.infantreflux.org/forum/forum_posts.asp?TID=9445&PID=82094#82094 ------------- ~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen! |
Replies:
Posted By: monty123
Date Posted: 19 October 2009 at 8:41pm
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MOSTLY CONNECTICUT
Love the following:
Dr. Marvin Natowicz - Cleveland Clinic - Pediatric Neuro-genetics
Dr. Laura Ment - Yale New Haven (CT) - Pediatric Neurology
Dr. David Karas - Madison, CT - Pediatric ENT
Dr. Robert Greenstein - UCONN (west hartford, CT) - Pediatric Genetics
Dr. Fayhee - Yale New Haven (CT) - Cardiology
Dr. Scott Rivkees - Yale New Haven (CT) - Pediatric Endocrynology
Dr. Regina Palazzo - Guilford, CT - Pediatric Pulmonology
Dr. Sandra Escalera - North Haven, CT - Pediatric GI
Dr. David Feingold - Bloomfield, CT - Physiatrist (adult and pediatric)
Dr. Calderon - Yale New Haven (CT) - Immunology
Dr. Donna Nimec - Boston Children's Hospital - Orthopedics/Physiatrist
OK, and I am sure there are more, but these are just the ones we see now!!!!!! we have been discharged from Cardiology and Immunology and just see ENT as needed, but the rest is probably the best team I could ask for. Anyone that would like more information on any of them, please let me know and I would be more than happy to answer any questions......
Thanks! ------------- Ann Marie Dylan 2/28/03 (27 wkr, past GERD, NEC, ROP, GBS/meningitis, brain bleed) Carter 3/25/06 (29 wkr, past GERD, Cardiac arrest w/Immunizations, syndromic features?, all neg tests so far) |
Posted By: Cooper's mom
Date Posted: 19 October 2009 at 10:04pm
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Central Virginia:
Ped: Morgan Mandeville - Lynchburg ENT: Andrea Kittrel - Lynchburg Endocrinologist: Alan Kauppi - Lynchburg Ped GI: Michael Hart - Roanoke/Lynchburg We are so lucky that we have only had to have Cooper see the ped and the ped Gi but the other 2 are great in their fields and well they are friends of mine as well which is always nice! Dr Hart we only saw once but he was fabulous and he comes from Roanoke to Lynchburg which is nice since I didn't have to travel. Our ped... I LOVE her! She is fantastic and she listens... her youngest son was allergic to eggs and is still sensitive to nuts so she has that "understanding" with food allergies as well. I don't think there are many of you all in my area but just in case... I recommend these docs! ------------- Beth Cooper 2/07 (former refluxer and MSPI. out grew egg allergy at 3.5yrs old) Caroline 1/10 Reflux FREE!!! |
Posted By: Eli'smom
Date Posted: 20 October 2009 at 11:22am
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Cincinnati, Ohio (I actually live in Idaho, but that's how far I went for this doctor!) Dr. Philip Putnam
3333 Burnet Avenue
Cincinnati, OH 45229 (513) 636-4415 Pediatric gastroenterology is the study and treatment children with disorders of the gastrointestinal (GI) tract. A pediatric gastroenterologist is a physician who treats diseases of the digestive organs, including the stomach, esophagus, intestines, pancreas, liver and gallbladder. This specialist treats conditions such as http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/Dr-Philip-Putnam-MD-D13FC995.cfm# - - abdominal - pain , nausea and vomiting, ulcers, http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/Dr-Philip-Putnam-MD-D13FC995.cfm# - - diarrhea , cancer in the GI tract, and jaundice in infants, children and adolescents. Wow.... haven't been on here for a while!!  He CAN eat whatever he'd like... unfortunately the only food he likes is chocolate milk and PB&J ! We do manage to get some healthy food into him, but going three years on a liquid diet brings complications like crossbite and food aversions that make chewing difficult. SO yes, he's "over" the crisis, but we still deal with the aftermath of it today.
Anyway.... sorry... I can ramble on... I'm here to talk about Doctors, right??
Dr. Putnam was INCREDIBLE ! We searched high and low for someone to figure out Eli's problem, and Dr. Putnam did it! I'd HIGHLY recommend him to anyone who's tried every other route and come up empty handed diagnosis-wise. Cincinnati Children's was wonderful to us as well..... Best of luck all... and remember... there is a light at the end of the tunnel... it's just hard to see it when you're exhausted and worried. All the best~ Tracy ------------- Tracy 40 ID Larry 47 Casey '86 Asthma,enviro-allergies Jessica '88 GERD Emily '91 Corinne '98 Jared '00 Eli 9/03 NO GERD,FPIES controlled,some asthma,food allergies,eczema NO MEDS!! neocate |
That's a mixed blessing! I miss all the wonderful, supportive women (and Roni) who helped me through one of the most difficult periods of my life. THANK YOU ALL for your uplifting support when things were very grim. Posted By: pkkb
Date Posted: 20 October 2009 at 10:59pm
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Dr. Ann Kessel - Ped. GI - Richmond, VA She was wonderful through our whole reflux ordeal. ------------- Kim Kaelyn 6-04 reflux- Off prevacid -- Outgrew Allergies to wheat, milk, peaches, and apples Alexandra 6-06 - 36 weeks, reflux, laryngomalacia, asthma, no allergies!! |
Posted By: trigrl
Date Posted: 21 October 2009 at 1:45am
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tracy!! i would love to talk, as my little one has some issues you may be able to shed some light onto. can i email you? sorry to stealing, guys! our experience with peds GI with riles was 'eh' so not worth mentioning. we love our hematologist (mads has a platelet disorder) so anyone who needs one, Kate Gowens, Cleveland Clinic is FABULOUS. love her. take care! ------------- Gina Riley 3.18.04 previous refluxer Madelyn 5.26.08 allergies to dairy, soy, wheat, corn and many other sensitivities; breastfed |
Posted By: jilly78
Date Posted: 05 November 2009 at 1:59pm
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Kennedy Kreiger Institute, Baltimore, MD. Center for Autism and Related Disorders (CARD)
Toll-Free Referral: (888) 554-2080 Local Referral: (443) 923-9400 Kennedy Kreiger Institute, Baltimore, MD.
Pediatric Feeding Disorders
Toll-Free Referral: (888) 554-2080
Local Referral: (443) 923-9400 KKI is awesome in all areas!!
Chesapeake Ear, Nose & Throat (Pediatric ENT) Dr. Michael Weiss
Westminster, MD (he's awesome!!) 1-410-356-2626, the other 2 ENT's in the practice are also good!!! The Surgi-Center for ENT related surgeries is ALSO WONDERFUL!!! ------------- Jill: Kaden 12/20/04 former GERD, dairy free and Landen 3/1/07 former GERDling, MFPI, back to drinking potato based milk. Both boys take probiotcs + digestive enzymes |
Posted By: Maximus'Mom
Date Posted: 05 October 2010 at 6:50pm
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Geisinger Clinic. Danville, PA
The doctor my son and I have seen here is Dr. Mahmoud Sabri Pediatric Gastroenterologist. I have not been super happy with my infant sons care here and am currently switching to Childrens Hospital of Philadelphia. I have also gone to the feeding clinic associated with Geisinger at Janet Weis Childrens Hospital with minimal results. No help given regarding my sons allergies to milk and soy. They told me to feed him Pediasure, a milk based drink, as a supplement. This was only one of many things recommended at our visit that went against my sons allergies and feeding issues. ------------- Heather |
Posted By: geppetto07
Date Posted: 22 December 2010 at 12:28pm
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Wow...so glad to see someone else is unhappy with geisinger....my son also has dr sabri for a gi and i very disappointed with the care my son is receiving..
Betty
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Posted By: hellbennt
Date Posted: 03 October 2011 at 5:25pm
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from here:
http://www.infantreflux.org/forum/forum_posts.asp?TID=14532 - http://www.infantreflux.org/forum/forum_posts.asp?TID=14532
------------- ~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen! |
Posted By: helenm
Date Posted: 02 December 2011 at 9:48am
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Pediatrician: Dr. Eileen Kramer in Newton, MA. Dr. Kramer has been wonderful with general pediatric issues, but was conservative when it came to treat her GERD. She did recognize this and referred us to another doctor in the practice who is a GI. We decided to go with another referral for the GI. Ped GI: Dr. Elisabeth Hait, Children's Hospital, Boston, MA. Dr. Hait was so helpful in explaining what was probably going on (prematurity, antibiotics in NICU, feeding tube, etc), we instantly felt at ease with her. She has been following our LO for almost 2 months now and we are pleased. She has great bedside manner and helps put anxious parents at ease. This is not a doctor but a compounding Pharmacy: America's Compounding Center 153 California Street Newton, MA Our GI specifically recommended this place for our Prilosec and so far we have not seen a drop off in efficacy. ------------- Helen M (MA) Sofia, 7.5 weeks early, silent reflux Formulas tried: Enfacare, Enfamil AR, Alimentum, Gerber Good Start. Current Formula: Neocate Meds: Zantac transition to Prilosec, Mylanta |
Posted By: hellbennt
Date Posted: 28 March 2013 at 4:49pm
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AUSTIN TEXAS - PEDIATRICIAN - Capital Pediatric Group
Posting from another forum (I'm always on the lookout for feedback about doctors!) Ok! Austin, TX-Capital Pediatric Group: Drs. Jayashree Mani and Allan Frank. Dr. Mani has been DD1's doc for 4 years, has a great bedside manner and is very attentive. Now with DD2 (11 weeks tomorrow), we've together been troubleshooting her suspected GERD since about 3 weeks of age. First course of attack, she prescribed Prevacid Solutabs, and was comfortable adjusting dose. Dr. Frank is another of the 7-8 Pediatricians in the practice. When I took DD2 in on the weekend during urgent care hours because of continuing GERD pain, he immediately prescribed the Zegerid/Water/MCS compound, and the instructions given were those of MARCI-Kids (that being said, he had DD2 start at 3ml dose whereas Dr. P suggests anything less than 3.5 is a waste of time). Dr. Mani was hesitant to increase the Zeg dose up to 3.5 before DD hit the correct weight, explaining how some acid is necessary for the destruction of bad bacteria in the gut, and noting higher doses may also cause stomach irritation, but had alternative methods to try in the short term (thickening of formula, addition of H2RA in between PPI doses). Dr. Mani always takes time in consults to make sure all of your questions are answered, never speaks "down" to you as a mom or is condescending, and is never dismissive (in my experience). If she disagrees with something, she offers an explanation why. She also (which I think is GREAT) mentioned in our last consult that what just a decade or so ago was mostly dismissed as colic was probably actually reflux...that colicky babies actually have a signature "colic cry" that differs from GERD babies. To me, that shows that she PAYS ATTENTION. Conservative approach with meds, but willingness to experiment and partner with parent to problem solve. Great doctor. (Laura, please feel free to edit this down if this is too lengthy for the database!). (GERD aside...I highly recommend this pediatrics practice for Austin parents. Although I've never had my kids see her personally, this is the office where Dr. Ari Brown, the co-author of the "411" series of parenting books, practices. The office has great, friendly staff and amazing hours.) ------------- ~laura~ Jonah 7/03:GERDfree@12mos! Silent Reflux@birth(apnea episodes/NICU);Past Sandifer Symptoms, breastfed->15mos Ari 7/06 REFLUX FREE, so miracles do happen! |