My 8 week-old was diagnosed with reflux after doing a swallowing test and since then it seems as if nothing has gotten better...Here is the time-line...
Around 4 weeks-old he had an episode where he started choking, milk came out through his nose and mouth, we had to turn him over and hit his back and then suction stuff out...this occurred around 3 more times before I said this isn't normal, I am done...I wasn't sleeping, scared that my baby was going to choke to death and didn't want to be left alone with him in case he choked...
We then went to the doctor who just listening to the symptoms gave us zantac and sent us home, upon giving him the zantac we would have crying and screaming fits, called the dr and the dr said lets change his formula and so we did, this still continued the choking, crying, gas...so, I said we are getting a new doctor.
Went to a new dr who did a swallowing test and my son was diagnosed with reflux, this doctor took us off zantac and then put us on enfamil a.r., after a week of that he stopped spitting up but would have episodes of making "huuuh" sounds and swallowing and then he would cry and scream.
We took him back to the dr was put on a different formula...which didn't work...and then was put on Similac alimentum with added rice and given a prescription of .3 of pepcid (we started out on a higher dose and he slept and slept and slept, so I called the doctor to make sure this was okay and he said although this is not a normal side-effect, it can happen and so he lowered the dose)..this worked immediately and it was like a had a new baby he was smiling and happy, he was sleeping..and then after 3 days he developed a white mucus in the back of his throat, this mucus you can hear when he is breathing, eating, ect...he finally had 2 episodes of literally choking when the white mucus-like stuff came up through his mouth and nose, he is now fussy again....
I called the doctor and the doctor said that we should give the pepcid longer and that the mucus was normal...you cannot tell me mucus that is making my child choke is normal...so, now here we are and all I want to do is cry...I spend hours on the internet searching for answers, my husband is frustrated and says he will grow out of it and that I need to leave it alone, my 7 year-old feels neglected and I am at my wits end..I hurt for my baby and just want answers. I am scared to death of the choking and feel like when we get over one hurdle, we hit another one. I feel like my doctor is tired of this and not listening anymore and that I am fighting a losing battle all alone.
So in conclusion, I am scared and frustrated and need help. I am holding him up 30min after ever meal if not more, even at night. I am exhausted. We have elevated his bed (we bought a co-sleeper because I am scared to leave him alone). We do small feedings and frequent burpings. We are on hypo-allergenic formula (alamentum) and we are on pepcid. What else can I do??!! I need to get rid of this mucus-like stuff..its not a cold, he has no fever, his nose is not runnying, and there is no congestion in his chest. Just this crazy phlegm in the back of his throat. He is now not wanting to eat and I think it is because of the phlegm, things I have read says that GERD can cause excessive mucus...if this is the case how do I get rid of it, we have saline drops (no results) and we are currently using a cool-mist humidifier, we suction what we can but it is directly in his throat...someone please help me....has anyone else had a thick, white mucus problem in the back of baby's throat?? What did you do?