Doctors: the good, the bad, the ugly

[hellbennt]

Put City and State at the top of your post, please

Hi everyone,

I thought I’d start a thread where we can we can recommend, rant, rave and forewarn about all kinds of doctors, not ‘just’ ped GIs…

I imagine most will be ped specialists, but if you have others, for adults, then why not list them, too?

Thanks!
~laura

finding a ped GI:

https://www.infantreflux.org/forums/topic/looking-for-a-gi-in-your-area/

and here’s how to fight insurance, write an insurance letter,
get neocate covered, etc. It’s called:
Going to the Top!

https://www.infantreflux.org/forum/forum_posts.asp?TID=2607&a
mp;KW=going

this thread has a great conversation about Speech Language Pathologists in the New York City area- I think it covers Feeding Therapy and related topics:Swallow/speech/nyc/thais: https://www.infantreflux.org/forum/forum_posts.asp?TID=9445&PID=82094#82094

hellbennt2009-10-19 20:14:45

[Anonymous]

MOSTLY CONNECTICUT

Love the following:

Dr. Marvin Natowicz – Cleveland Clinic – Pediatric Neuro-genetics

Dr. Laura Ment – Yale New Haven (CT) – Pediatric Neurology

Dr. David Karas – Madison, CT – Pediatric ENT

Dr. Robert Greenstein – UCONN (west hartford, CT) – Pediatric Genetics

Dr. Fayhee – Yale New Haven (CT) – Cardiology

Dr. Scott Rivkees – Yale New Haven (CT) – Pediatric Endocrynology

Dr. Regina Palazzo – Guilford, CT – Pediatric Pulmonology

Dr. Sandra Escalera – North Haven, CT – Pediatric GI

Dr. David Feingold – Bloomfield, CT – Physiatrist (adult and pediatric)

Dr. Calderon – Yale New Haven (CT) – Immunology

Dr. Donna Nimec – Boston Children’s Hospital – Orthopedics/Physiatrist

OK, and I am sure there are more, but these are just the ones we see now!!!!!! we have been discharged from Cardiology and Immunology and just see ENT as needed, but the rest is probably the best team I could ask for. Anyone that would like more information on any of them, please let me know and I would be more than happy to answer any questions……

Thanks!

monty1232009-10-19 20:56:09

[Anonymous]

Central Virginia:

Ped: Morgan Mandeville – Lynchburg

ENT: Andrea Kittrel – Lynchburg

Endocrinologist: Alan Kauppi – Lynchburg

Ped GI: Michael Hart – Roanoke/Lynchburg

We are so lucky that we have only had to have Cooper see the ped and the ped Gi but the other 2 are great in their fields and well they are friends of mine as well which is always nice! Dr Hart we only saw once but he was fabulous and he comes from Roanoke to Lynchburg which is nice since I didn’t have to travel. Our ped… I LOVE her! She is fantastic and she listens… her youngest son was allergic to eggs and is still sensitive to nuts so she has that “understanding” with food allergies as well. I don’t think there are many of you all in my area but just in case… I recommend these docs!

[Anonymous]

Cincinnati, Ohio (I actually live in Idaho, but that’s how far I went for this doctor!)

Dr. Philip Putnam

3333 Burnet Avenue
Cincinnati, OH 45229
(513) 636-4415

Specialties

Pediatric Gastroenterology

Gender

Male

Education information, including: Medical School attended, years since graduation, and Residency, are all available in the Detailed Report.

Years SinceGraduation

25

Five-Star Recognition

HealthGrades Recognized and Five-Star designations are available in the Detailed Report.

State License Information

Licensed in Ohio

What is Pediatric Gastroenterology?

Pediatric gastroenterology is the study and treatment children with disorders of the gastrointestinal (GI) tract. A pediatric gastroenterologist is a physician who treats diseases of the digestive organs, including the stomach, esophagus, intestines, pancreas, liver and gallbladder. This specialist treats conditions such as abdominal pain, nausea and vomiting, ulcers, diarrhea, cancer in the GI tract, and jaundice in infants, children and adolescents.

Wow…. haven’t been on here for a while!! That’s a mixed blessing! I miss all the wonderful, supportive women (and Roni) who helped me through one of the most difficult periods of my life. THANK YOU ALL for your uplifting support when things were very grim.

On a happier note, life does go on after GERD, Eosinophelia, and FPIES!! I’m happy to say that Eli is now a “normal” six year old boy!! Well…. normal is a very subjective word, isn’t it? He CAN eat whatever he’d like… unfortunately the only food he likes is chocolate milk and PB&J ! We do manage to get some healthy food into him, but going three years on a liquid diet brings complications like crossbite and food aversions that make chewing difficult. SO yes, he’s “over” the crisis, but we still deal with the aftermath of it today.

Anyway…. sorry… I can ramble on… I’m here to talk about Doctors, right??

Dr. Putnam was INCREDIBLE ! We searched high and low for someone to figure out Eli’s problem, and Dr. Putnam did it! I’d HIGHLY recommend him to anyone who’s tried every other route and come up empty handed diagnosis-wise. Cincinnati Children’s was wonderful to us as well….. Best of luck all… and remember… there is a light at the end of the tunnel… it’s just hard to see it when you’re exhausted and worried. All the best~ Tracy Eli’smom2009-10-20 11:23:10

[Anonymous]

Dr. Ann Kessel – Ped. GI – Richmond, VA

She was wonderful through our whole reflux ordeal.

[Anonymous]

tracy!! i would love to talk, as my little one has some issues you may be able to shed some light onto. can i email you?

sorry to stealing, guys! our experience with peds GI with riles was ‘eh’ so not worth mentioning. we love our hematologist (mads has a platelet disorder) so anyone who needs one, Kate Gowens, Cleveland Clinic is FABULOUS. love her.

take care!

[Anonymous]

Kennedy Kreiger Institute, Baltimore, MD.

Center for Autism and Related Disorders (CARD)
Toll-Free Referral: (888) 554-2080
Local Referral: (443) 923-9400

Kennedy Kreiger Institute, Baltimore, MD.

Pediatric Feeding Disorders

Toll-Free Referral: (888) 554-2080
Local Referral: (443) 923-9400

KKI is awesome in all areas!!

Chesapeake Ear, Nose & Throat (Pediatric ENT) Dr. Michael Weiss

Westminster, MD (he’s awesome!!) 1-410-356-2626, the other 2 ENT’s in the practice are also good!!! The Surgi-Center for ENT related surgeries is ALSO WONDERFUL!!!

[Anonymous]

Geisinger Clinic. Danville, PA

The doctor my son and I have seen here is Dr. Mahmoud Sabri

Pediatric Gastroenterologist. I have not been super happy with my infant sons care here and am currently switching to Childrens Hospital of Philadelphia.

I have also gone to the feeding clinic associated with Geisinger at Janet Weis Childrens Hospital with minimal results. No help given regarding my sons allergies to milk and soy. They told me to feed him Pediasure, a milk based drink, as a supplement. This was only one of many things recommended at our visit that went against my sons allergies and feeding issues.

[Anonymous]

Wow…so glad to see someone else is unhappy with geisinger….my son also has dr sabri for a gi and i very disappointed with the care my son is receiving..

Betty

[hellbennt]

from here:

https://www.infantreflux.org/forum/forum_posts.asp?TID=14532

[quote=livalil319 I live near Raleigh NC. We saw Triangle Lactation (Ann Conlin-Smith) and our ENT is Magda Pugh of Carolina ENT.

Our feeding therapist is at Carolina Pediatric Dysphagia- Joan Comrie. This place is awesome…it’s where we took our soon 2 years ago.

hellbennt2011-10-03 17:27:18

[Anonymous]

Pediatrician: Dr. Eileen Kramer in Newton, MA. Dr. Kramer has been wonderful with general pediatric issues, but was conservative when it came to treat her GERD. She did recognize this and referred us to another doctor in the practice who is a GI. We decided to go with another referral for the GI.

Ped GI: Dr. Elisabeth Hait, Children’s Hospital, Boston, MA. Dr. Hait was so helpful in explaining what was probably going on (prematurity, antibiotics in NICU, feeding tube, etc), we instantly felt at ease with her. She has been following our LO for almost 2 months now and we are pleased. She has great bedside manner and helps put anxious parents at ease.

This is not a doctor but a compounding Pharmacy:
America’s Compounding Center 153 California Street Newton, MA
Our GI specifically recommended this place for our Prilosec and so far we have not seen a drop off in efficacy.

[hellbennt]

AUSTIN TEXAS – PEDIATRICIAN – Capital Pediatric Group

Posting from another forum (I’m always on the lookout for feedback about doctors!)

Ok! Austin, TX-Capital Pediatric Group:

Drs. Jayashree Mani and Allan Frank.

Dr. Mani has been DD1’s doc for 4 years, has a great bedside manner and is very attentive. Now with DD2 (11 weeks tomorrow), we’ve together been troubleshooting her suspected GERD since about 3 weeks of age. First course of attack, she prescribed Prevacid Solutabs, and was comfortable adjusting dose.

Dr. Frank is another of the 7-8 Pediatricians in the practice. When I took DD2 in on the weekend during urgent care hours because of continuing GERD pain, he immediately prescribed the Zegerid/Water/MCS compound, and the instructions given were those of MARCI-Kids (that being said, he had DD2 start at 3ml dose whereas Dr. P suggests anything less than 3.5 is a waste of time).

Dr. Mani was hesitant to increase the Zeg dose up to 3.5 before DD hit the correct weight, explaining how some acid is necessary for the destruction of bad bacteria in the gut, and noting higher doses may also cause stomach irritation, but had alternative methods to try in the short term (thickening of formula, addition of H2RA in between PPI doses).

Dr. Mani always takes time in consults to make sure all of your questions are answered, never speaks “down” to you as a mom or is condescending, and is never dismissive (in my experience). If she disagrees with something, she offers an explanation why. She also (which I think is GREAT) mentioned in our last consult that what just a decade or so ago was mostly dismissed as colic was probably actually reflux…that colicky babies actually have a signature “colic cry” that differs from GERD babies. To me, that shows that she PAYS ATTENTION. Conservative approach with meds, but willingness to experiment and partner with parent to problem solve. Great doctor. (Laura, please feel free to edit this down if this is too lengthy for the database!). (GERD aside…I highly recommend this pediatrics practice for Austin parents. Although I’ve never had my kids see her personally, this is the office where Dr. Ari Brown, the co-author of the “411” series of parenting books, practices. The office has great, friendly staff and amazing hours.)

[Author]

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