Hi everyone,
I am a mother who has had an very asthmatic son for over two years. My primary doctor always told me that it was allergies and asthma. He got diagnosed with pneumonia a few times and after years of several repeated antibiotics and steroids, nothing changed. I asked my doctor, i know it’s something more, i just feel it in my gut that it’s not asthma. He refused to help me and downplayed his health and said it was just asthma and didn’t do further tests for our family.
I changed my primary and came in my new doctor’s office feisty, frustrated, concerned and aggressive. Trying all the medication already she decided to give me an esophogram to give me piece of mind that it was just asthma. The results came back and sure enough it wasn’t asthma. They had diagnosed him with VASCULAR RINGS, RIGHT AORTIC ARCH, which is pretty much a blood vessel that was there at birth but now is bigger and it’s pinching my son’s windpipe.
He had a CT angiogram Scan after to confirm the diagnosis and then a heart X-ray i just had done today to confirm the Right Aortic Arch (It’s supposed to be going left)
My emotions are completely a wreck. I’m trying not to cry in front of the kids and be strong but these past two weeks have been the most scariest in my life. This diagnosis is RARE and very uncommon but I’m reaching out and hopefully trying to find anyone who has gone through this or something like this.
Linda
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