Home › Forums › Special Topics › Special Topics › Possible Eosinophilic Esophagitis?
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June 19, 2011 at 10:25 pm #68538AnonymousInactive
I am beside myself with worry, and every time I stop and think about it, I can do nothing but cry. And here is why.
My son FINALLY saw a GI who did a colonoscopy, endoscopy, and biopsies, yesterday. We met the GI 2 weeks ago and his procedures were done yesterday. There is a strong family history of food allergies, asthma and environmental allergies. She took biopsies from various parts of him, including his esophagus. She showed me pictures of something, that she found in his esophagus. I have been searching online trying to find an image that looks like what was seen, without success.What was in him was, healthy esophagus until a certain point. Then there were all of these perfectly white, equal in size and shape looking ridges/shelves all around the esophagues’ inside wall. I know that makes very little sense, but the GI said she, based on the family history, has a suspicion that he might have eosinophils so she wants to be sure he does or doesn’t. He has had ongoing issues since infancy and he is now just over 5.
Has anyone here seen a picture from a scope? The GI had thought maybe it was candida, but the ONLY medication he’s ever been on more than just short term, is PEG3350. And why candida would be down in his esophagus and not in his mouth is puzzling. She tried to wash it off with no success.
Anyhow, the plan is to start him on Prevacid, which we will do next week. I’m not 100% sure why, but we will do what we need to do. The biopsy will take a month to get the results back, and I’m not sure I can wait that long.
Any thoughts? What if this is EE? How will we manage?
June 19, 2011 at 10:28 pm #68539AnonymousInactiveOh! I just was able to log in under my old user name, which was dragonfly (from a few years back). If no one minds, I’ll continue posting under dragonfly, instead of eharder8.
June 20, 2011 at 3:39 pm #68545hellbenntKeymasterif it’s EE then it is manageable- you’ll have to find out what he’s allergic to- the good thing is that he’s old enough for allergy testing by an allergist…
also: I would say that they should check for thrush- can’t tell you why it might be in esophogus and no where else, but it IS heard of, especially on this board…here are some links- they might not be pertinent since your son is older BUT they will help you w/ explanations, etc.research is key!Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
hellbennt2011-06-20 15:40:36
June 20, 2011 at 4:08 pm #68546AnonymousInactiveThe GI did say at first she thought it might be thrush, but the “stuff” was very clean white, all of the “things” appeared to be the same from what I could see. She said she tried to wash it off and absolutely nothing changed…..she said sometimes thrush will wash off….
I have no idea. And waiting a month is going to be hard. But, as the GI said, we’ve been wondering for 5 years, one more month is nothing. Well it is, but you know what I mean.He’ll start Prevacid tomorrow, 30mgs as far as I know. I’m going to pick it up tonight.Question, for anyone……….how would thrush get there without first being in the mouth? Wouldn’t he have bad breath? A sore throat? A tickle in his throat or a cough?June 21, 2011 at 9:16 pm #68557AnonymousInactiveerin—-two of my children have had esophageal thrush—i’m pretty sure i’ve had it myself, too. sylvia had had it in her mouth–but it had disappeared. she was refusing to eat, or chewing her food and spitting it out. she would nurse–and i had it on my breasts. my family doc said she couldn’t have it without it being obvious—our ped gi told me that she could, that it could be in her esophagus. since he was 3 hourws away, he decided to go ahead and medicate her–she started eating sleeping and gaining weight.
kassie was 14 years old and had been having all kinds of problems with reflux. we were never aware of her having thrush in her mouth, but when she had her scope done, the doc showed me that she had white spots all down her esophagus. he said it was either food allergies or thrush. it was thrush. he said it really is not that uncommon. (like other doctors will tell you) i had MRSA 2 years ago and was on heavy duty antibiotics. i got thrush in my mouth and horrible pain in my chest—i’m sure it was esophageal thrush. i was given a swish and swallow nystatin to use which seemed to take away the pain.i’ve seen a number of pictures from scopes. my most recent scope, done in december, showed that i possibly might have eosinophilic esophagitis i had up to 15 eosinophil per high powered lens…….in doctor-speak i think it means there are enough eos to refer me to a GI and do some further testing–and probably be referred back to the allergist for allergy testing. it is treated either by avoiding the food you are allergic to—if you are lucky enough to figure it out. but, it can also be caused by environmental allergies. it can also be teated and conrolled with either swallowed or inhaled steroids—and they tell me that not much of it is absorbed systemically—–which is a concern for me because i am already on an oral steroid for adrenal insufficiency.i’m wondering why it will take a month to get your biopsies back—we’ve always gotten our results within a week—–and we live in small town USA.i’ll go look at my biopsy pictures and see if i have the ridges—-kassie did not have ridges with her thrush, the patches were white and somewhat circular.June 21, 2011 at 9:37 pm #68558AnonymousInactiveI’m not sure why it will take so long, unless the GI was just saying that as a time frame………I do know that a year ago when my son had his first rectal biopsy to look for Hirschsprungs Disease, we were told two weeks for the biopsy results and it took almost six weeks. I have no idea why. I’m hoping that it doesn’t take the full month. -
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