Gracie's Story

 
 
Karen,
I was so pleased to find your site.  I have debated for quite a while on doing something just like you did.  I have had 3 children - all with acid reflux.  I have learned a great deal with each one of them & I would be glad to share some things with some of your readers that worked for me.
 
 - The [reflux] sling - that worked great for us - I highly recommend it.  We did not use a "wedge"  - the sling we ordered just went over our mattress in our crib.  We just hiked up the crib with blankets, pillows, etc. to get it to a 45 degree angle.   
 
 - We started out with Zantac as well, and I never thought it worked well.  My pediatric GI specialist told me that the prevacid or nexium works better than the prilosec.  They all work the same way by stopping the stomach from producing acid, but the prevacid or nexium absorbs more of it.  My 6 mo. old started on nexium when she was about 8 weeks old.  I thought that it did work better for us.  We get it in a capsule form - I just dump the beads into her mouth & then wash it down with a medicine dropper of water.  We tried a liquid prilosec, which did not work for us at all - I found out later that it does not work as well in the suspension form.  Also, any kinds of these medications need to be given at least 20 minutes before a meal.
 
 - Reglan did not make a big difference for us either - it also has a lot of undesirable side -effects.
 
 - Carafate did not work well for us - My GI ped said that it somehow counteracts with the nexium & weakens it effect on reducing the acid.
 
 - Maalox - we have gone through this by the gallons!!  I think it works best when they are having a "fit", it seems to calm them down & give them some instant comfort from the acid coming up.  We have used adult strength, cherry flavor - it has has anti-gas in it.  I would put it in a binky-medicine dropper & she would suck it down easier that way.  I always felt I was gagging them with a regular medicine dropper trying to force it in while they were crying.  Note:  never give maalox within an hour of an acid-reducer like the zantac, prilosec, or nexium - they basically counteract each other.
 
 - We used Dr. Brown's bottles - I'm not sure if it made a big difference, but they did a great job of creating a vacuum in the bottle - no extra air. You can find these at Babies-R-Us.
 
 -Our 3rd baby  had a hiatal hernia, which made things more difficult.  She squirmed all the time & never entered a decent sleep.  She still doesn't sleep well.   Something happens at 40min., because that is when she wakes up - definitely not ready.
 
 - I carried my babies around in a sling next to my stomach for the first several months - that seemed to be the only way they could sleep - plus I could accomplish a few things - especially with my 3rd - sitting and rocking all day were not an option!
 
 - Lastly, I know this might sound crazy, but we took our 3rd baby to a chiropractor.  My mom was seeing this chiropractor & she was telling him about Gracie.  He said he knew he could help her.  I reluctantly brought her in - searching for anything to make a difference.  It really did help a great deal.  He explained it that these certain vertebrates were out (T6 & T7).  These vertebrates were connected to the stomach muscles.  Anyway, by keeping those in place, it would help strengthen the muscle that let the acid flow back up her esophagus.  My husband & I were huge skeptics, but I will tell you that it made a dramatic improvement!  I'm sure there are many different kids of chiropractors out there, but this one made a huge difference in Gracie's life.  If you are from the Kansas City, MO area, e-mail me & I will be glad to get you more information about him.
 
 - I hope that something here can help someone.  If you are dealing with a reflux baby right now - I am so sorry.  It was one of the hardest things I ever experienced.  I had heard that it was more common in boys, so when we found out our 3rd child was a girl I was certain that we were in the clear.  She was one of the hardest of them all.  When I realized that she was showing symptoms as early as 6 days old, I was overwhelmed - my doctor even put me on some anti-depressants for a while - and I am a very"in-control" person.  Please feel free to e-mail me if you have any questions.     
 
 
Sincerely,
Kelly    

kfiler@casstel.net

 

Reprinted with permission.

 

 

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Disclaimer: By viewing this page, you are acknowledging that you have read and agree with the Terms of Use.  This website is not intended as medical advice.  Please consult your physician with any questions you may have regarding your child's condition.  This site was last updated May 30, 2007All contents copyright © 2007 InfantReflux.Org.  All rights reserved.