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September 11, 2008 at 7:20 pm #56442AnonymousInactive
Well, we went to the ENT this afternoon. He said that since the 9 month hearing test came back okay, there was no need to test his hearing at this appt. He did recommend tubes. He said that their office’s rule of thumb is usually 6 infections in 12 months, but the fact that Jackson has had 4 in 8 months is enough- especially since that time includes the summer. He said that if he were his child, he would go forward with tubes. After he gets the tubes and things are drained, he said that they would check his hearing again. So, we are getting tubes! Will keep everyone posted on the EI appt.
September 11, 2008 at 8:43 pm #56445AnonymousInactiveI’m late to this thread & haven’t had time yet to read all the responses yet(but I will when I have more time b/c autism is my background) but wanted to chime in real quick.
My oldest son Brodie did not BABBLE, POINT, WAVE OR CLAP until 16mths old. When EI did his initial review @13mths old & his evals @ 15mths old he looked really bad on paper (age equivalents of 3-9 mth old ). He was also very very social, made good eye contact, etc. We also had many ENT appts, etc.Anyway, he’s 2yr 4mths now & almost caught up. The only thing we are really concerned about (speech wise) is his articulation. Just wanted to share that really quick.September 11, 2008 at 9:05 pm #56447AnonymousInactiveThank you for sharing Erin! I am so interested in what you have to say. Jackson is babbling, but is not saying any words. He is so social and happy. He makes good eye contact and just loves playing with us. He gets clingy to us when we are around strangers, gets excited when we walk into a room and cries when we leave a room- so, he definitely has formed attachments and he is definitely a social baby. Please fill me in on any information that you have. I am particularly interested since you have a background in such things. Thank you so much!
Just wanted to add one thing- Jackson is a big clapper. He claps every day. Does that mean something?
klmccart2008-09-11 21:05:49
September 11, 2008 at 9:30 pm #56450AnonymousInactiveJust wanted to add that we had our 18 month well today and I asked how many words should an 18 month old say and he said about 12, but it is perfectly normal for an 18 month old to say zero words as long as they are trying to communicate. NOt necessarily by pointing but Ccying or grunting for their needs is considered communicating.
September 11, 2008 at 10:43 pm #56454AnonymousInactiveTo tag on to what Katie just said about talking at 18 months.. I remember when we were in for our 12 month check back in Feb the ped asked me if Cooper had 3 words yet! So that to me meant she only expected him to have 3 words… Cooper had many more, but I know 2 babies currently who will be 1 in the next 3 wks and neither of them are using words yet.. just babbling. They are both the youngest in their families so I don’t know if that has anything to do with it or not, but neither is talking. One is in Cooper’s preschool class and from what I have seen there and out and about as her mom and I are friends is that she cries and “whines” more than she does anything else. HTH.
September 12, 2008 at 12:32 am #56457AnonymousInactivei’ve had 2 late talkers. the oldest did appear to have some problems—echolalia, he babbled in gibberish with speech intonations but no words, and he had some self-stimming behaviors. he went to a developemental preschool for two years.
the younger one made up his own sign language and he is as smart as a whip at almost 11.your son really doesn’t sound like he is particularly delayed—–especially since he was an early crawler and walker. children will often put one thing on hold while they develope another—such as a child who talks early but is late at walking, or early at walking, but late with speech.i don’t think i would worry too much at this age.September 12, 2008 at 10:24 am #56470AnonymousInactiveWhen you say self stimming behavior, what are you referring to? Jackson shakes his head from side to side. Usually just briefly. Sometimes he will laugh when he does it. He will do it when he is walking almost causing himself to fall down. He started this at about 9 or 10 months. He has gone through times when he does not do it- a week here or there- but he seems to always go back to it. It freaks my husband and I out and I wish he would entertain himself differently!
September 12, 2008 at 11:39 am #56473AnonymousInactivekatie, not to take your question away from Christine, I am curious for her answer as well….but when Jackson shakes his head back and forth is it when he is around something he doesn’t like? I may have missed something in the thread if you already mentioned it. I thought you said he looked happy when he did it. Just curious.
Kaden self-stims but only around food. He will do pretty much anything to avoid eating something he isn’t comfortable eating. Shaking his head, spinning, clapping his hands, patting his hands in his lap, repeating songs, etc. If it is a food he is comfortable with he is happy to eat it and he does not self-stim nearly as bad. He also does this type of behavior if his socks are not right or in the bathtub. At our dev. pedi appt, we were told kids might have a self-stimming type of behavior if there is a sensory problem. Just wondering if there is a noise around him when he is doing it (TV, lights, food, etc etc) anythign you can think of that might help you figure that one out. 🙂 It was a LONG time before we started to figure Kaden out. lolcoming back to edit/add: kaden has been “trying” to eat a PB sandwich since 11am. It is 11:44 right now and he is stimming RIGHT now. I am about to videotape him and upload it to YouTube so you guys can see what I go through on a daily basis. He is humming and banging his hands on the table.jilly782008-09-12 11:46:58
September 12, 2008 at 2:00 pm #56483AnonymousInactiveThanks, Jill. Jackson does his head shaking randomly. I do not think that there is any consistency in when he does it. He does “sing” (open mouth) while he does it sometimes. He does not seem to be sensitive at all to noises or other sensory type things. He is a fairly easy baby these days besides the finicky eating and the lack of communication. I can take him to new places and he does fine. He loves to smile at people and look at other kids. He handles new sensory situations quite well. Not sure what the head thing is! I will say though that he probably does it most frequently, but not exclusively, in his high chair.
September 12, 2008 at 2:29 pm #56486AnonymousInactiveKatie – the head shaking could be a type of stim, but not all stimming is associated with some form of developmental delay or disorder. We all stim to some degree or another. Do you ever find youself bouncing your leg up and down when you’re sitting, or tapping a pen against something, or biting your nails when you’re stressed or concentrating hard… these are all stims.
The most common self-stimulatory behaviour seen in autistic spectrum disorders are spinning (either themselves or objects), hand flapping when excited or upset, rocking, humming, tapping, toe-walking, or basically anything done over and over whithout a real purpose. There are also visual and verbal stims. My son doesn’t really have any physical stims, but he used to have lots of visual stims (watching the wheels on toy cars turn, getting down and watching his toys at eye level, lining them up into neat lines, etc.).The best thing you can do is try and observe when and why he might do the head shaking and perhaps make some notes for when you have your EI appointment. Make note of how long he will do it, how often, if he seems to want to make himself dizzy or fall down, if there are certain stressors that bring it on, or conversely, if he does it when very excited, etc. This will all be helpful for the evaluator. You could even videotape it if you like.Jill – I’ve been there! I’m sorry, it is so hard. But I can’t even begin to tell you how much better Ben is since we’ve gone GFCF and treated him for yeast overgrowth. His sensory aversions are at least 90% gone. He will eat almost anything now, when he used to mainly just eat crackers and milk. He used to have an absolute meltdown at the mere suggestion of trying a vegetable – we’re talking screaming, kicking, flopping on the floor, hysterical crying, hour long fit. And that vegetable would never actually touch his lips. It was like we were trying to make him eat dog poop or something – the thought to him was so revolting. However, last night he ate chicken stirfry with broccoli and cauliflower in it. And he said “Mama, I eat the broccoli all by myself!”.September 12, 2008 at 2:36 pm #56488AnonymousInactiveThanks Sheri. I videotaped him today at lunch. I am trying to get DH to help me upload it to YouTube and I am going to send it to you. If it’s what Ben would do before the diet, I might try GFCF. I’ve also been researching the difference between GFCF & SCD. it would be “cheaper” to do the SCD diet, but I don’t want to put him on one unless it will help. I cannot take him back to KKI, insurance will not cover anything more for him.
and Katie- sorry for the hyjack! I agree with Sheri. she has such knowledge in this area. I also think the tubes will help Jackson immensely. Also, the EI appt will tell you if anything else is going on, but he sounds so normal to me!!! 🙂jilly782008-09-12 14:39:02
September 21, 2008 at 10:09 pm #56962AnonymousInactiveGlad you are getting the ball roling on EI they are great and do a good job. Jedd is now considered to be “normal” well if youcan call only him normal…LOL hahahaha Anyways. By 6 omnths of age Jedd was NOT:
holding his head uptrying to sit up/sitting uprolling overcooingbabblingmaking noiseseating anything (all in tube)playingPretty much he would do nithing at all but lie there and breathe. Seriiously he was STILL sleeping IN the BASSINET at 8.5 months old and not even trying to get out.Todya he is completely caught up and fine. His speech is NOT the greatest but with EI ST they have gotten him within the limit hat he does NOT qualify for serviecs for eth first tiem in the ST dept…WHOOHOO!!!!Physcially he is completley caught up as well.I said all that to say this, GERD can reek havoc on a hcild’s life BUT it does get better. I promise.EI is the first step. NOW don’t be surpirsed if there is an area that you do not quailfy for.Jedd’s speecha t 11 onths when they evaluated him was at about a 4-5 months old level. Because he didNOT show enough of a delay he did NOT qualify for speech services even though I BEGGED fo rit because Jedd was 100% tube fed.Children who are 100% tube fed noramly slide WAY FAR behind in ST dept. I had to wait 6month for our IFSP review. At that time he was 15months old and had the speech of a 6 month old. YIKES!!!!!He got ST 1x per week since 15 months old and he is now all caugth up at 23months old.EI does great work. I cannot say anymore GREAT things about them.September 25, 2008 at 5:19 pm #57116hellbenntKeymasterSeptember 27, 2008 at 1:22 pm #57148AnonymousInactiveKatie, My son was also born on August of 2007, and he says mama, tata(dad in croatian), and that’s it. He is imitating sounds and sounds like he is speaking his own baby language. I am not worried because he seems like he understands things I tell him like when it’s bath time, time to change his diaper(he runs away), drink his milk (he’ll drink from his cup). The doctor seemed to take note that he wasn’t saying more words and it somewhat got me thinking. The doctor said that maybe it’s because we are teaching Fernando a second language and that kids that have 2 languages spoken to them take a little longer to figure things out. Well, from now on, I am only speaking English to him and dad speaks in Croatian. I am curious, how does reflux affect some children’s speech development? Fernando is doing well, doesn’t spit up anymore, drinks cow’s milk, still has trouble during some nights – but which babies don’t, right? Anyway, keep us posted Katie, hope everything works out with Jackson.
Luzaria2008-09-27 13:24:11
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