Hi everyone,
I am a mother who has had an very asthmatic son for
over two years. My primary doctor always told me that it was allergies
and asthma. He got diagnosed with pneumonia a few times and after years
of several repeated antibiotics and steroids, nothing changed. I asked
my doctor, i know it’s something more, i just feel it in my gut that
it’s not asthma. He refused to help me and downplayed his health and
said it was just asthma and didn’t do further tests for our family.
I
changed my primary and came in my new doctor’s office feisty,
frustrated, concerned and aggressive. Trying all the medication already
she decided to give me an esophogram to give me piece of mind that it
was just asthma. The results came back and sure enough it wasn’t
asthma. They had diagnosed him with VASCULAR RINGS, RIGHT AORTIC ARCH,
which is pretty much a blood vessel that was there at birth but now is
bigger and it’s pinching my son’s windpipe.
He had a CT
angiogram Scan after to confirm the diagnosis and then a heart X-ray i
just had done today to confirm the Right Aortic Arch (It’s supposed to
be going left)
My emotions are completely a wreck. I’m trying
not to cry in front of the kids and be strong but these past two weeks
have been the most scariest in my life. This diagnosis is RARE and very
uncommon but I’m reaching out and hopefully trying to find anyone who
has gone through this or something like this.
Linda
.
