So my TED journey now:
Like most I was in desperation mode. I had incompetent docs who wouldn’t increase the dose of zantac or change meds and no guidance other than deal with a crying baby.
I started off by cutting out dairy because I remembered my sister saying that dairy made my nephew fussy. We had some improvements, but not major. So I did some quick research, which said to cut out soy as well. Again, no real improvement. My mom (who has severe GERD) suggested I start a food diary to see what was bothering him, but at that point there were too many variables. I did a more intense internet research and found out about the TED diet. (This was still before I knew about the awesomeness of your facebook group.)
I had a hard time finding a vegetable that I could stand eating because I despise squash and zucchini. I basically went veggie free for 3 weeks and that was the first food group I tried bringing back into my diet. Thankfully, lettuce and green beans were fine. I just slowly added more food back into my diet leaving the big intolerances until last or, in the case of dairy, not at all. Much like with trialing new solid foods, I waited at least 3 days between new foods. In the end, our problems were dairy, soy in large quantities, eggs, berries and caffeine.
We had some immediate improvements, but not full improvements until he was properly medicated. When adding egg in: try it baked in something as an ingredient first…cooked 20 minutes…then, if that doesn’t work try just the egg white baked, then just the yolk baked (or vice versa), then try the actual egg…He was never initially tested for blood in the stool (see above with incompetent military doctors!) and by the time we switched to a civilian ped, I had been dairy free for over 2 months. We recently tried dairy and had him tested. There was no blood, but lots of screaming and mucousy diapers. So at this point he’s back to dairy free.
The only other thing I forgot was I put one of those calorie counting apps on my phone to make sure I was eating enough calories during the day to keep up my supply. In the beginning, it started to dip because I wasn’t eating enough calories.