Home › Forums › Infant Reflux Support › HELP!!! › Any advice?
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December 5, 2006 at 2:35 pm #19611
Anonymous
InactiveI am at my wit’s end with reflux… I posted awhile ago about my twins with reflux and feeding aversions. They were better for awhile, but now one of them is actually getting worse. They just turned 13 months old and receive feeding therapy. One twin’s weight gain has slowed tremendously. He is throwing up constantly for the last week and is irritable all the time. It amazes me how easily food comes up. It’s like it’s just sitting there in his throat. He just walks around with his mouth open screaming until he ends up throwing up. He has been on Axid for quite awhile now and just tried the latest prescribed combo from the GI- Axid and Erythromycin- with a horrible feeding after the first (and last) dose. We’ve tried Zantac, Prevacid, Zantac/Reglan, Axid, and Nexium starting since he was around two months old. He’s had an upper GI with no abnormal findings. The GI doc told us if the latest meds don’t work, he would want to do a scope. I really don’t want to put him through that because the upper GI was a horrible experience for him and has caused him to have major stranger anxiety, especially towards doctors. He’s regularly a happy little guy and sleeps great. It’s always been the chronic vomiting and weight concerns. He was small at birth so this has just caused more problems. We just changed over to milk from AR formula, and he did fine for a week or two. His brother has also thrown up a few times this week which is unusual for him so we thought they might have a stomach bug, but it seems more like the reflux is worsening again. This doesn’t help his feeding therapy progress since both boys have an aversion to textures/chunky foods and finger foods. If anyone has any ideas to help, it would be greatly appreciated. I think we are going to try going back to Prevacid. Sometimes that has worked for short periods. Does this sound like only reflux or something else?
Thanks!
Jana
Kaden 10/30/05 currently med-free!
Kael 10/30/05 Axid 3ml 2x/day, Erythromycin 1.25ml 2x/day
December 5, 2006 at 4:02 pm #19619Anonymous
InactiveIts possible they are reacting to the milk. I really think a ppi like zegerid might help. With zegerid you won’t have to worry about the timing around food. Axid and Zantac have been known to just quit working. I hope you find the answers.
December 5, 2006 at 5:49 pm #19624Anonymous
InactiveI agree with the above post. Also teething and any kind of illness can make the reflux worse. I recently thought Justice’s reflux was back with a vengence, but come to find out he had a double ear infection. All of the symptoms were the same though.
I hope you figure it out soon. I know your frustration. Well, sort of i only have one so I can’t fully understand. i do however understand the frustration of just not knowing what is going on. I felt like I was going to go crazy. I sure hope my kids don’t remember the bad times at this time in their lives.
December 6, 2006 at 6:16 am #19679Anonymous
InactiveI would also try a PPI again- it might not help the vomitting much but at least he won’t be in pain. With feeding aversions it’s very important to make feedings pleasurable which isn’t possible if they are vomitting and in pain. Like Kathleen said, it could be an MSPI issue. I would actually consider the scope, if that’s what the doc suggests. It really was easier than the UGI because she was sedated- first by gas and then by IV once asleep. I was also worried about the stranger anxiety issue b/c Hailey had MAJOR issues, but I found that she was fine. In fact the anaesthesiologist showed me studies showing that before age 3, they have no recollection short term or long term that the procedure took place after they wake up from the anaesthetic. So they don’t even remember that they went into the room, that they got the gas, the IV, nothing. They only start remembering when they wake up in the recovery, which is partly why sometimes they wake up so confused. If things are not getting better, than a scope might give the missing piece of the puzzle- whethere there’s damage or not. Some people also choose to do a probe at the same time, but given the fact that he’s vomitting outright and not silently refluxing, it might not give any additional information. Good luck.
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