AnonymousI am looking for suggestions as things aren’t getting ANY better. Here’s the situation:
- From birth “colic” with lots of spitting up. MSPI/MFPI dx at 7 mths. Is 10-1/2 months old now.
- Breastfeeding and supplementing during the day with Neocate. Currently eating 3-4 jars of baby food each day plus some finger foods.
- Painful reflux began at 8 months. Inclined his bed. Compounded Prevacid helped for about 2 weeks. Then nighttime wakings became increasingly frequent. Continued on C-Prevacid for 2 months.
- Tried Prevacid Solutabs for 2 days. Horrible painful reaction – likely to the dairy in the Solutabs.
- 12/21/06 Switched Pediatricians. New dr was willing to hear about Zegerid and read about it on Marci-kids. Prescribed 40 mg packets of Zegerid (after reading about potential reaction to the buffer in the 20 mg pkts). However, didn’t use the dosage calculator for some reason and only prescribed 8 mg twice a day = 16 mg (calculator calls for 14 mg 3x day = 42 mg). Am using equal dose of Mylanta as a buffer.
- After 4 days on Zegerid, Andrew slept through the night for first time in 6 weeks! But that was the only night. Immediately descended again into multiple wakings.
- After about 10 days, tried upping the dose to 12 mg twice a day. No difference.
- Generally waking 3-6 times a night in pain. Mylanta sometimes helps, but often have to nurse him since nothing else stops his arching of his back, twisting in my arms, and crying while still asleep in my arms. Sometimes have given so much Mylanta through the night that it causes diarrhea the next day.
- Last Friday, upped the dose to 16 mg at night. Three hours after giving the med, woke in worse than normal pain. Nursing didn’t help. HORRIBLE night!! Decided that maybe no medicine would be better than a night like that again. Don’t know if the dose was too high, but I’m trying anything now.
- Sat and Sun without meds. Both nights, he was in much less pain – woke twice each night but was back in bed peacefully in 15 mins max. Not the continual thrashing, arching and crying. Not the typical crying as soon as I unlatched him after he falls asleep.
- Monday without meds. Back to the old routine of lots of nighttime wakings and pain. Gave 12 mg Zegerid plus Mylanta at some point in wee hours.
- Have been giving 12 mg Zegerid at night on Tues and tonight. Haven’t given it in morning. Last night he was in bed finally at 10 PM, awake at midnight, 1:30, 3:30, and 7:00. Most of those wakings were about 30 mins of burping, Mylanta, walking/bouncing, and finally nursing when all else failed.
What do I need to do???? I am so tired and not coping well. I can’t believe that I can have this happy, crawling and cruising baby during the day and this monster filled with pain at night. Generally his naps haven’t been affected, but today he woke in pain after only about 45 mins. I guess I need to give a morning dose as well, but what else do I need to do to get this under control?
He is not reacting to any foods with his MFPI right now. That reaction shows up differently than reflux – he gets a skin rash and he is happily awake all night (not crying in pain).
I want to talk to my ped again, but although he is nice, he doesn’t know too much about this situation or medicine. I feel like I need suggestions from you more experienced moms to try first or to bring to the ped as possible ideas.
Thanks, Dianne
