Up every 1-1/2 to 2 hours still

Thanks for the responses. I know that he is underdosed for the Zegerid, but don’t want to up it anymore without talking to the ped again. (I switched peds and this new one was quickly willing to read up about marci-kids and prescribe Zegerid. I have already upped the dosage myself from 8mg to 12mg, but don’t want to alienate this helpful new dr by upping it anymore before talking to him. I plan on getting an appt this week.)

Andrew is sleeping on an incline. I don’t know if it is helping his reflux or not, but he will at least be comfortable rolling down grassy hills when he gets older – he’s getting lots of practice.

I appreciate the suggestion about the H2 blocker. I will talk to the ped about that. Maybe suggest that we up the Zegerid to the Marci-kids dose first, and then if that doesn’t work then try adding a H2 blocker.

I am still on the Elimination Diet and know that he is not reacting to anything right now. “Thankfully”, one of his responses to intolerances is that he develops a rash – so it makes it quite clear when he is reacting to a food vs. having other problems.

As far as tests, we had an upper GI back in September as part of his FTT issues (before the MSPI dx), but that test was done before his reflux became the monster that it is. Also it was a fasting test, so the reflux might not have even shown.

He hasn’t had an endoscopy done. No doctor has even suggested it. For those who have had it done, what difference has it made in your child’s treatment? Is there a change in medicines after seeing the results of the endoscopy?

I am sorry, Lori, that Hailey’s reflux still flares up at night, but it is helpful to know that “controlled” reflux doesn’t necessarily mean “no” reflux at all.

Last night, actually, was much better than I expected. He woke (like clockwork) every 1-1/2 hours at 11PM and 12:30…and then he slept until 8:30!! I am glad that I didn’t set my alarm to go and pick him up as a proactive measure.

Thanks again for the responses.

Dianne