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We took our 2 yr old in for her check up with the GI dr. He said she only gained 1 oz(she weighs 22.11) in the last 2 months! He has labeled her FTT. He said grudgingly that she is not malnourished now, but would be later. He blames it on- in a round about way- my still b/f her and excluding milk products. I have explained to him that we tried milk products on 3 seperate occassions with the same results: She does well for a few weeks and then she gulps all day long as her acid flares, so we stop milk products and she gets better. He refuses to acknowledge that milk aggravates reflux, he insists that only happens to babies under a year. He also insists that breastmilk after the first year has no value
. He needs to get acquainted with LLL and WHO.
He had us talk to a dieticion again, and she admitted that milk CAN aggravate reflux (thank you!) but that we need to find out if it is the milk protein or the lactose she can’t tolerate, instead of eliminating everything. She wants us to give her Pediasure since it’s lactose free and see if she develops symptoms. She also forgot to mention what to give her, if she wouldn’t take the Pediasure. My husband thought it was a good idea, but it makes me upset that no one believes me. I just hate to put her through anything. But I agreed to do it, I don’t want them saying I am sabotaging my dd health. Now, she won’t drink the Pediasure, and we have to go back to the GI in a month so they can monitor her weight gain.
The worst part is we were supposed to try weaning her from Prevacid, but we can’t do that now. If we did then we wouldn’t be able to tell what would be causing her acid flare(if it happened) the milk or the wean
. I just don’t know what to do anymore. Please someone help me.
I’m sorry that you’re going through a hard time. Having a child with a feeding aversion, we’ve had to be very conscious of weight gain, so I know what that’s like.
I hate to comment on other people’s doctors, but I’d personally wonder about a doctor (and a GI of all things!!) who isn’t afraid to say that BF after age 1 is of no value…. maybe his name and address need to be “secretly” given to both the WHO and the LLL, so some reading material can mysteriously arrive at his office.
I don’t knoww too much about breastfeeding beyond the infant stage, but maybe Laura can hook you up with some links or forums where they can offer you some suggestions about how often and increasing weight gain in BF toddlers.My personal philosophy about weight gain after what we’ve been through, is that if the child is eating/drinking happily in that they come to the table happily, they eat a normal amount for them (no matter how big or how small), and that they’re not in pain when eating, then you probably don’t have to worry. I think that most babies and children will self-regulate and will eat as much as they have to reach their setpoint, no matter how low that is. The other side of that is that I do believe that children who are in pain or with feeding aversions might not be able to gain enough to reach their set points due to fear of eating or pain. What is your daughter’s eating like? How often does she nurse?The other thing I’ve learned is that when you have to eliminate certain food groups from a child’s diet, even if they’re a decent eater, it can be hard to get them to gain weight. But MANY MANY kids with allergies and intolerances do it, so I don’t think that you should have to worry about malnutrition. Weight gain really slows around your daughter’s age, and we actually had a bit of a loss rather than a gain somewhere between the first and second year in Hailey’s case. She picked back up, but only gained a couple of pounds through an entire year, and all the doctors we saw (and it was A LOT) told us that it’s not a problem.Given the severity of your daughter’s reflux by pH probe, I’m assuming that she had an endoscopy. If not, that might be something that you want to consider to make sure that you’re not dealing with EE. Also, given that her reflux still flares at age 2 with dairy, I wonder if an allergist might be of any value.About dairy trials, maybe if you paste this thread under there to make sure the right people see it, maybe others will be able to help you. We were told by several GIs and feeding specialists that lactose intolerance is very rare in babies, and typically lactose intolerance presents itself with bloating, gas, and diarrhea vs. MSPI. That’s only what we were told (and I know that can often be wrong!).I don’t really know what to suggest about the pediasure trial. Intuitively it sounds like a fine idea to me, but I don’t know that much about food trials. If you need some high calorie ideas to add into her diet, I’d suggest adding flax seed oil and non-dairy margarine (as long as she tolerates soy) to her food for calories. What does she like to eat? Does she drink anything from a cup? I know that some people use rice milk or almond milk, but it’s not so heavy on the calories. We do soy, and we’ve added fillers for calories, like duocal. Your dietician should be able to help you with that if you’re interested. Also, you can ask your dietician about the neocate splash juice boxes or resource juice boxes- they’re supplements, and the neocate ones are definitely free of most allergens. You can check out their website. You can also make high calorie smoothies with fruit, soy yogurt, flax seed oil, etc. I know a mom who used to also add chocolate syrup for calories (not that healthy, I know). Also, I would ask the dietician about adding a multivitamin to ensure that she gets all that she needs, since she’s over age two.Good luck.Kevieb: No the Gi hasn’t suggested that because he said her reflux is mild. He said it didn’t matter how many episodes she had because it wasn’t extremely acidy and it didn’t last long. He said she was able to neutrelize it with her salivia.
We try to give her soy milk very vanilla, and she hardly drinks it. She doesn’t like soy/rice milk, or juice. She just likes water and breastmilk.Ironically she will eat a lot of her “favorites” such as chips, wheat thins, french fries (store bought, home made, fast food), cookies, some veggies, grapes, watermelon and graham crackers.There would be no problem if she would eat her meat the same way. Really fustrating. When we gave her some vanilla pediasure she tasted it and said yucky. She later poured the whole bottle on the table.
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