I’m sorry she’s having a hard time. I just wanted to tell you that for us, even when things were at their best, it still wasn’t perfect. We would have a few weeks of decent times, and then the arching would start again really badly. Then a few more good weeks. Eventually the good weeks become more and more, and the bad ones less and less.
The zegerid is definitely worth a try, but it is similar to prevacid in CaraCream.
If it doesn’t work, then I’d really start to wonder if she needs some testing (if she hasn’t had it already) like an endoscopy with biopsies and/or an impedance/pH probe to see what’s going on. I’d also wonder about MSPI as the potential cause of the reflux- sometimes the only signs are reflux symptoms, poor feedings, and constipation.
Good luck.