Infantreflux.org | Tell me your experience

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November 14, 2007 at 11:30 am #45445

Anonymous
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I would like to find out your experience with prevacid solutab and zegerid. Which worked for you and how long it took especially for zegerid?

Here is my original post about my: https://www.infantreflux.org/forum/forum_posts.asp?TID=9879

This is our update. For a week we have been giving DS who’s 10lb13oz last week 2ml compound prilosec 2x a day. We have also been giving him zantac 1.5ml 2x a day at least 4hrs from the prilosec as recommended by this board. The painful episodes while nursing seem to be better and gotten less frequent (knock on the wood), but he still doesn’t sleep or nap well. He grunts constantly when he sleeps, then writhes in pain and scream/cry few min after we put him down. We pick him up and frequently hear him burping, swallowing, gagging, and gurgling in his mouth. At night, he has one 2 hr stretch, the rest of the night we have to pick him up every 15min to an hour. The last few nights he slept on DH, but sometimes still screams within an hour. Today I called our pharmacy about the compound prilosec that we’ve been
giving to DS. It turns out that the pharmacist mixed according to the
drug company’s recommended protocol which was not mixed with sodium
bicarbonate and it was flavored!

I’m not sure the improvement we saw with nursing is from zantac or prilosec. I called the GI doc and left a message asking to change the compound prilosec to something else. I also mentioned zegerid. I did some search on this board regarding zegerid and have a sense that most kids are on prevacid solutabs. Could you please post your experience with either drugs and how long it took for you to see improvement particularly with sleep. And please tell me it will get better. I start working this Friday. My MIL leaves Dec 1 and I’m not sure if our nanny will be able to handle all of this.

Thank you!

November 14, 2007 at 2:01 pm #45447

Anonymous
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Hi there. We used the Prevacid solutabs, and once we had the right dose things turned around after about 10 days. (Most moms on the board report that it takes about two weeks). One problem with these meds is that most docs under dose. Take a look at http://www.marci-kids.com and see if you can convince your son’s doc to up his dose. Myles was on a too low dose of Prevacid for many weeks with no improvement. Once I got him on the marci-kid’s things finally improved.

About Prilosec; many times this drug is not compounded properly by the pharmacy and then it’s like your baby is on no meds at all because if it’s not compounded properly it loses effectiveness right in the bottle. Here’s a link about this topic.

https://www.infantreflux.org/forum/forum_posts.asp?TID=4505&KW=pharmacy+compounded+

My guess is that the little relief he’s getting is probably from the Zantac because the Prilosec is not being made properly. Zantac is a very weight sensitive drug, though. So babies quickly outgrow their dose and they often don’t get lasting relief from it. I’d try to work on getting him on Prevacid or Zegerid, unless you can get a pharmacist to make his Prilosec properly. Also, if he stays on Prilosec check to see that his dose is high enough.

Good luck and hang in there. I’ve been through it with two babies, and it really does get better. Especially if and when you get the meds right.

November 14, 2007 at 4:50 pm #45455

Anonymous
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We are currently on the solutabs and have been now for about 5.5 months. It took 3 dose increases before we were at 30mg/day and then I saw a happy baby, probably 7-10 days with the first dose before I saw a difference just not one that I was happy enough with to keep him there and each time we increased it only took a day or 2 to see a change.

November 14, 2007 at 10:52 pm #45467

Anonymous
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Zegerid has worked better for us than the Soluatb. Kendra reacted to the lactose and aspartame in it.

Unfortunately with reflux, is a “try and wait” thing. I hope you find one that will work best for LO soon.

November 15, 2007 at 9:19 am #45474

Anonymous
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Hi Kendrasmom,

How long did it take for zegerid to work? Did you notice improvement on the same day or did it take a few days?

Thanks!

November 15, 2007 at 9:36 am #45480

Anonymous
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Well,

we were on the solutab for quite sometime before switching to Zegerid, so i am not sure if it affected how fast it worked.

I noticed improvment (specially bm’s wise) in about a week. She was on 5ml twice daily now she is just on 5ml at night now. Zegerid can cause constipation, so wacth out for that. I started giving her epsom salt baths to help this (it has magnesium in it). i am also suplementing with a lillte magnesium to keep her bowels moving (with my ped approval of course).

leo

hope taht helps

November 15, 2007 at 7:37 pm #45500

Anonymous
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We did Zegerid with our lo also. First I will say that I loved it. I didn’t have to worry about timing around feeds and I could mix a bunch at a time and put it in the fridge and while traveling I could put enough for the trip in a syringe and give it as needed.

It took 2 weeks to see results, but if your baby is already on a ppi I would think it wouldn’t take that long. As for the sleep well that never got better for us until he was 10 months old and I did some gentle sleep training. My belief for my son is that he got so used to waking frequently due to the pain that he just never learned how to fall back to sleep on his own. The hard thing about any sleep training is that you have to make sure your baby is not in pain and it took us until he was 10 mos to feel he wasn’t in pain anymore. Again, I love zegerid and would highly recommend it. ESPECIALLY if your nursing.
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