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Hi everyone and Happy New Year
.It’s been forever since I’ve visited the site as we finally finished our move from NYC to the berkshires of Mass. It’s gorgeous here and we love having more space and the grandmother’s around. However, downside is we’re in GI hell and Lauren’s (who was doing beautifully for the last 3 months on Elecare and 30mg of Prevacid) has been having major reflux flareups for the last week and a half. It doesn’t seem to be getting better-she’s arching, crying during feeds, nightwaking, screeching, etc. It’s so upsetting because really she was the easiest baby -eating a ton, sweet and smiley, and sleeping great. We saw a local ped GI and although he seemed nice and competent, he ticked us off with his spook tactics. I wanted to run by what he said with you all to get your thoughts and see if maybe we should go out to Boston to find someone instead.1-I asked him if this was just perhaps a typical 4-6 month peak. Afterall that’s when our son starting vomiting blood from reflux. He said yes, it peaks now but our case was rare and different because although reflux peaks, the pain shouldn’t (rather just the spit up). Damage to the esphogas after it was controlled for so long is not likely reflux but perhaps a bigger problem.2-He asked me if Ian had been tested for esoniphils through endoscopy. I told him yes and twice. Both times were negative. He said he suspects Ian has that because his reflux and mspi (and Lauren’s) are both so rare and severe it should not be getting this bad at this time. He said Ian probably came back negative because he was on Elecare but when he’s older, it will probably come back (even though Ian’s doing wonderful right now-eating everything and no reflux for over a year) when he’s older. He suspects Lauren could have this rare disorder of ee as well. This ticks us off! He doesn’t even know Ian and I asked him, if you think both kids coud have this ee disorder and it came back negative on both endo’s Ian had (during his vomiting blood period), wouldn’t it have showed up then if that was what was causing the reflux?? He says no because he was on elecare, but my argument is then why was he having increased reflux that you’re saying is almost impossible. Surely if ee was the reason, it would show it’s head then even on elecare. Why scare us! He kept saying he didn’t having the time to get into the whole world of ee right now…THEN..why bring that up.3-He said to add mylanta but either taking it 2 hours from the prevacid OR take it exactly at the same time as the prevacid because the ingredients in MYlanta actually aid with the absorption of prevacid. (I’ve never heard this before). Any one else?So, I guess my biggest question to you all is I know many of you have had reflux flareups at this time of 4-6 months. When you’ve seen your children have flareups were they accompanied by pain like Lauren or just spit up, vomiting, etc and pain seemed managed? He has me all freaked that Ian’s going to come out with this rare disorder some day.Thank you! I hope you all are happy and well. Now that we’re settled, I hope to become a bigger presence on the board again!Sorry, don’t know much about ee. But when Alana’s reflux fared it was pain (she was not a spitter)- thats why the meds need to be upped to control the pain (as we all know it usually does nothing for the spitting). I’d stick to your guns, afterall you are pretty much an expert- both in your kids and in reflux.
Tracy,
We saw a peak with both of our kids at the 4 month mark. Actually, that’s when we finally were able to diagnose what was going on with Claire. She was silent refluxer too, and the doc. just thought she was nursing so poorly and arching because of a supply issue. HA! Ben, however, was a HUGE spitter, and his also peaked around this time too. I didn’t really notice more spit up, but he was definitely more uncomfortable. We increased his Zegerid dose at the 4 month mark and haven’t had to do it since. (He had RSV at the time too, UGH!) Anyway, I was breastfeeding, so not on elemental formula, BUT I was on the elimination diet and his reflux still peaked at that time.
My theory is that ALL babies even non-refluxers start to spit more at that age because they are moving around more, becoming more active. Thus, for refluxers, the extra spit, is just too much for the previous meds. to control, pain wise that is. Don’t know if that makes sense.
Ben was also a BIG BOY! So much for the supply issues the doc. thought I had.All that to say, maybe it wouldn’t hurt to try to increase the Prevacid, or maybe add in some Zantac?As for the doc. that really stinks. I don’t think they realize how much eveything they say can really affect us. It seems odd to me that he suspects this for Ian when he is doing so well right now, eating anything and no reflux…Bensmama2008-01-04 10:56:51
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