Infantreflux.org | Is he not tolerating the Neocate?

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January 24, 2008 at 8:26 pm #47668

Anonymous
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It’s only been 3 full days on the Neocate, but I’m wondering if he’s not tolerating it. I just read through meladams1979’s thread so I know this is possible. I also know that 3 days is probably not long enough to know.

Despite my better judgement, I switched Matthew from Nutramigen to Neocate cold turkey this past Monday because both our GI doc and the company that makes Neocate said it would be OK. The first 24 hours I though we were on to something good. He had 3 feeds in a row where he just laid in my arms and peacefully drank his bottle. He started smiling more. It was divine.

But the next day we had 2 HUGE spit-up/vomits and lots of smaller ones, plus he started physically struggling during feeds again (arching, stiffening, grunting, wheezing). Also, the first full day he did not poop at all (he normally goes 1-2x per day) and on the 2nd day it was so dark green it was almost black. I called the Neocate people and they said that was normal. In fact I asked them to tell me what to expect and they told me pretty much exactly what had just come out of Matthew’s bottom.

Then today he didn’t poop, but he was having some really horrid smelling gas, like sulphur or rotten eggs. By early evening he was in so much pain with the gas that I finally stuck a thermometer in his butt to see if it would make him poop. Lo and behold it worked. The poop was very very dark in color, but kind of tarry in spots and almost gelatenous (sp?) in other spots. There was also some yellow mixed in, so it’s pretty clear that the Nutramigen is still working it’s way out of his system too.

Does any of this sound like he might have a problem tolerating the Neocate? Or maybe he’s struggling because I switched him cold turkey? The smell of his gas is just really concerning to me. And I hate that he’s in pain. Our GI really wants him on an elemental formula due to a family history of autoimmune bowel disease and autism (my older DS).

January 24, 2008 at 8:39 pm #47670

Anonymous
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That poop and its smell that you described are just what we had with Dagney for the first few months she was on Neocate. There are threads here describing the horrible, noxious, embarrassing smelling poop that our LO’s were having. Maybe going cold turkey would make him a little constipated from the change, but my Pedi said that what went in 2 days ago is coming out today, so I’m sure the Nutramigen is still working its way out. It takes weeks for the Neocate to really show its full effect, so I’d give it a little more time.

Good luck and welcome to the wonderful world of Neocate poop!

January 24, 2008 at 8:55 pm #47675

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I don’t have personal experience but a little girl I watch is on neocate and her poo is that same color as well. When she has solids there are other colors mixed in sometimes..so i think the nutramigen is still in his system. It probably was a just a big change for him and that is why he is more gassy.. his system needs time to adjust.

Goodluck with the neocate and let us know how it continues!

January 24, 2008 at 9:12 pm #47676

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Denise and Lauren, thank you SO much for your reassurance. Yes, I would definitely call the smell embarrassing!!!!! At least now I know it’s ‘normal’. I’m still going to email the GI to get his take on it, but for sure I won’t lose any sleep tonight.
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