Alright ladies- this is not for me, but for a really cool mom I met through my Cafemom group. She lives in the same city I do in Colorado. Her little girl (one year) has PKU.
Her insurance company WILL NOT pay for her daughters formula. This stuff is so ridiculously expensive ($65 per can). This insurance company doesn’t think its “medically necessary”. People with PKU can’t eat ANY protein whatsoever. I gave her all the links from this forum (“going to the top”) so hopefully she can get somewhere with her insurance. They make just over the limit to qualify for WIC.
My question is: I have read (I believe on this forum) that in some states (New York is the one I remember) you can get reimbursed somehow up to a certain $$ amount for foods if you have food allergies or intolerances. My friend spends a ridiculous amount of $$ on fruits and veggies b/c that’s about all her daughter can have besides the formula. There are really specialized foods for PKU, but it’s so expensive. A cake mix for an one 8 inch cake is $28, a box of mac n cheese $7, the same size as a Kraft mac n cheese.
Where can I find info to give her about food reimbursement? Is this only in NY or other places also? TIA.
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