make sure that they take alot of biopsies in the duodenum when they test for celiac. celiac damage can be very spotty—plus, the scope can only reach about 6 feet into the small intestine, which is about 22 feet long—-that is alot of small bowel that can’t be biopsied. i really don’t understand why they consider it the “gold standard” for diagnosing celiac.
as long as they are going to check for celiac, i would ask to have the blood tests done also—even though they are not particularly accurate at her age.
why do they suspect celiac? any particular symptoms that stand out? of course, all 3 of my girls had different symptoms—-one of them had NO systems.
kassie showed no damage—but they weren’t looking for celiac, either. she was the one that had what would be considered the closest to the old “classic” symptoms of celiac.
tianna’s symptoms were rashes and she had a positive celiac screen, but her biopsies showed no damage, only one area of increased intraepithelial lymphocytes.
the doc did not even bother to biopsy molly since i had 3 girls with positive blood tests.
soooo, is all this about as clear as mud?
kevieb2008-12-11 21:00:32
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