Infantreflux.org | Will this ever be better?

This topic has 5 replies, 1 voice, and was last updated 17 years, 1 month ago by Anonymous.

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September 18, 2009 at 10:51 am #63933

Anonymous
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Leah had an upper GI on Wednesday — the results were good– no significant abnormalities. The doc did see several episodes of reflux during the exam. No blood in her stool– all good things.

BUT she is still so uncomfortable — throwing up out of her nose every day– waking up 3 to 4 times a night uncomfortable. She is exhausted– I am exhausted. I feel like we have worn out our friends and relatives with this ongoing problem. I just want her to feel better and I feel like I am out of options.

It seems like every time there is a medicine change- she does well for a week or so and then it gets worse again. Every new food trial is so stressful– we never know what will make her sick.

Do I just have to wait for her to grow out of this? Will this ever get easier? I feel so overwhelmed.

September 18, 2009 at 1:55 pm #63936

Anonymous
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Yes, it will get better. keep educating yourself, and try to find someone who can help you. Surround yourself with people who understand. It can be hard at times, sometimes you wonder how you will get through, but you will. I never thought that we would get there, but now it’s actually hard to remember the details. HUGS.

September 18, 2009 at 1:58 pm #63937

Anonymous
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Thank you. We started with a new doctor who ordered the GI. He wants to start her on Reglan. But he also told me that the spacing of medicine and meals does not matter (which I know is untrue) and that prilosec can be flavored (also not true).

Do we try a third doctor? Is it worth it? I am scared of Reglan.

September 18, 2009 at 2:04 pm #63938

Anonymous
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It does get better! Unfortunately, everything is trial and error. If she’s still so uncomfortable & vommiting w/pain, then I’d think something wasn’t right for her. It’s so hard! Have you tried cutting out all solids for a little while and see if she does better? My DD didn’t tolerate most solids until she was closer to a year. Some babies just need more time. Sorry, I don’t have any better advice.

ETA: I wouldn’t do Reglan. Ask about erythromycin. It’s used for the same thing, but w/o all the crazy side effects. If your Dr doesn’t seem to know what they’re talking about, then YES, I’d look for another.valentine4mommy2009-09-18 14:05:42

September 19, 2009 at 9:10 pm #63949

Anonymous
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you know, your little one is 9 months, and this is just my opinion, but i think that if she is that old and she is getting as little relief as she is, it is probably time to do some further testing.

when i joined this board i remember thinking that sylvia wasn’t nearly as bad as some of the babies on here when i listened to the difficult times everyone was having. sylvia was my 9th, and we had had a number of fussy babies, she was a little worse than the others, and she wasn’t gaining very well, but i didn’t want to make a 3 hour trip to a ped gi—-my mistake!!! we discovered that her esophagus was getting ulcerated at only 8 months old. she had a fundo just before she turned 10 months old—-it turned out she had a hiatal hernia that had never shown itself during any of her tests. i know her situation is not the norm, but i just think your little one is getting old enough that you should be seeing some sort of improvement in something by now.

September 21, 2009 at 5:04 pm #63971

Anonymous
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Christine has a good point. If you haven’t yet had any testing, you may want to consider it at this point.
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