Excessive Eating/ Begging for Food

[Anonymous]

i used to aid in special ed and we had a boy with prader willi syndrome—-but this kid could would put ANYTHING in his mouth—-rocks, sticks—–he also would regurgitate his food and chew on it again.

this is another symptom that people with celiac disease will get sometimes——they just are not able to absorb nutrients from their food because of intestinal damage, so they are always hungry.

if you decide to have her tested for celiac, make sure that the ped gi you see is up-to-date on celiac info and the newest info and tests. some docs just are not well-informed enough about it and are still running the old tests which are not as accurate. the NIH has launched an awareness campaign about celiac to get the word out to the medical community—but i don’t know how long it will be before it gets to all of them.

kevieb2007-1-1 13:53:39

[Anonymous]

Sarah, I know that you had some testing done for Quinn, but have you seen a metabolic geneticist? Our ped, who also is a metabolic geneticist, suggested a panel of tests for Hailey. But her problem was very different because she wasn’t eating.

I think that all babies are different- Sarah, my older one, liked to eat tons and tons and begged and cried when she saw other people eating. But she was also very VERY FAT!… almost 27 pounds at a year and 36 pounds at age 2. Now at age 3, she is still 36 pounds, so she’s levelled of a bit to her set point.

In your case, I wouldn’t be as concerned about the eating if she was also gaining, but when you put this together with her being FTT and her reflux, I think that it warrants further investigation, even if just to prove that she’s fine and rule things out.

If it makes you feel any better, my niece who is 3 weeks older than Hailey eats non stop and was FTT for quite a bit of her first year. She was over yesterday and during dinner she ate two ENTIRE pieces of pizza, a cup of milk, a bowl of corn and peas, a pile of carrots, 2 big squares of chocolate, several mandarin slices, more milk, some cake, and a few cookies. (This was at the same time that Hailey ate two bites of pizza- which she spit out, a few sips of milk, a few bites of corn, threw her carrots overboard- mashed her chocolate all over her tray, tossed her mandarin oranges, declined cake and cookies, and called it a meal for the night!) So like I said, there’s a wide range of normal (not that Hailey’s normal). But given the whole story, I would definitely look for some answers. I hope that you can find some. Good luck.

s&h’s mum2007-1-1 15:40:2

[Anonymous]

Hey thanks for the information. We have not had a panel of tests done. She did have some abnormal labs back in November, but we had to move. Our old pedi was sending her to the hospital to have all sorts of testing done. we were going to neurology, a geneticist, ENT, etc… she was going to run all sorts of tests on her. But I had to move pretty abruptly. This new pediatrician just doesn’t seem to care too much for the care she was receiving before and wants to start fresh. So it really sucks. I’ve been looking for a new pediatrician but I keep running into a dead end. Most of them look at me like I’m nuts. The last pedi we went to, Quinn weighed only 16 pounds and she didn’t seem to care at all.

I’ll push for the current pedi to look into it further. She sees GI Feb. 8th. Her one year check up is Jan. 30th.

I’m going to do some research on the Prader Willi Syndrome.

-Sarah

Ps. Anybody got any tips on how to get a pedi to take me seriously? Especially when they don’t think her medical history is relevant?

[Anonymous]

Here’s my tip on how to get the pediatrician to take you more seriously. Put it in writing! I’d write a letter outlining your concerns, your previous pediatricians recommendations, and your request for testing and/or a referral to a ped Geneticist. I think most doctors would be fearful of ignoring a written request because if down the road the child suffered complications that could have been prevented by earlier diagnosis and treatment, they could be liable.

[hellbennt]

yes! write a letter, fax it AND send it in the mail. HA! to them!

alos: maybe some sort of malabsortion? from the ‘main’ mspi page (stickied inthe MSPI forum) if you scroll through, there is a link (or links?) to misdiagnoses posts…HTH

[Anonymous]

I would definetly look into the celiac issue though as well since you are going to a specialist anyways.

My son (now 2.5) was like that from 6-12 months he would eat any and everything and actually lost weight–he was never satisfied….once he went gluten free he got back up to normal and shot up in height (hes now 50% for weight and 98% for height!) and like christine said, make sure the dr is up to date on celiac…our first dr didnt run the correct tests and it was a nightmare….

good luck

shan15232007-1-9 2:18:59

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