Zegerid-Question for Erin

HI jenay

I’ve noticed that your evan was on zantac but it did not work.My question is does the mylanta work better?and what kind of mylanta r u giving him?cuz my jewelee is on zantac and it is not working at all niether is the reglan.

I wish you lots of luck and hope that zegrid works for him.

Hooray!!! Good for you for going to the doctor so well prepared and ready to advocate for your baby. Please keep us posted!

Jenay and everyone,

Hi! Finaly got back to my computer. We had a disruption in cable service

here.

Yes, the ped did give us a script for Zegerid. I had printed out all the

MARCI-

kids info and organized it into a presentaion/portfolio. He was a bit

relunctant, but conceeded when I showed him the specific section on

Zegerid from the website.

However, he did refuse to perscribe it at the dose recomended by MARCI-

kids. I was a bit , but having won the battle of just getting

the meds, I relented and am taking care of it myself.

But…..there is a BIG problem.

Hannah cannot (at all) tolerate the taste. Just a drop in her mouth and

she is gagging, retching and throwing it all up. It is VERY VERY

sweet. I’m so upset becuase she didn’t even do this with the Zantac and

that stuff is HORRIBLE tasting to me.

I’ve tried diluting it further, but that doesn’t affect the taste at all, and just

makes more to get down. I’ve tried mixing it with something bitter like

thinned plain yogurt…no go…just thicker vomit. I tried mixing it with

sugar, brown sugar, maple syrup and honey (the doc okayed the honey as

long as I got it fresh- and there is a honey farm a block a way from my

house) to try to give it a real sugar taste instead of the sucralose taste of

the Zegerid. All to no avail. I’ve been sobbing the past few days…trying

to do anything. Her pain is so pronounced in the evenings…she screams

inconsolably for hours until she falls asleep. I give her the zantac

sometimes if there has been enough time passed since our last attempt at

the Zegerid.

Joel, does this seem like a situation in which it would be deemed

appropriate for me to get Caracream? And can anyone describe to me

what caracream tastes like (how sweet, flavor, etc) so that I don’t spend $

$$ on it only to have her throw it up, like I have with the Zegerid?

So that’s the scoop. The doc actually called me to thank me for all the

info I gave him. Thank you so much, everyone, for your stories and

support!!!!!!!!!!

Jenay,

Good luck to you. My advice is to go slow, because once he throws it up

once…well we all know how hard it is to taste something once we’ve thrown

it up. I think that’s what is happening now with Hannah.

I’m going to pick up some mylanta, but slomething tells mr she won’t like

that either. I’m still interested to know what caracream tastes like.

Erin, you should be able to get CaraCream Jr EZ Mix kits from your pharmacy. They can order it from a flavoring company called FlavoRx. I would try a pharmacy other than Walgreens, since they seem to have trouble getting it. We can distribute it through FlavoRx because we have a little study set up with them, which makes it “for research purposes”.

Ask specifically for the CaraCream Jr EZ-Mix kits and make sure that they have the most recent instructions for them – as they have changed recently. Email me if you go this route and I will send you the mixing instructions to take to them. If, for some reason, you cannot get CaraCream through a pharmacy, email me and we will figure something out.

andrewsjj@missouri.edu