We’re back!

Hi Brandy. Yeah, we just moved from Olathe to FL. I changed my profile after my post. We also went to Children’s Mercy. In fact we were regulars there for many reasons including the reflux. I must say I loved them. If we were still there I would call her ped. GI and start there. I too loved the nurse practitioners. They always got right back to me and did a lot over the phone. Zegerid was just coming out when we were last on meds. I’ve heard it’s great. What’s an EGD? Interesting that both of our girls toss and turn at night. It’s so hard to know if it is reflux or just restless sleeping for other reasons. Thanks for offering to exchange #s. Good luck w/your Emma. I really thought I’d be done w/this a long time ago. I’m sure you did too. My mother’s instinct is telling me something still isn’t right.

Thanks for the responses. We our outside of Orlando so Miami is a good 4 hours from here. I thought about Tums today since she chews her vitamins everyday. The thing is she never complains about it I can just hear it and I know it wakes her some at night. I may just start by giving her tums or mylanta before bed and see if she is less restless. In the meantime I’m trying to get set up w/a pediatrician for her. Then we can go from there if more is needed. I like the diary idea. I should do that.

Ok, I know what an EGD is then. Emma had one along w/the biopsies. She had an upper GI done before the endoscopy. She also had chest x-rays done when we took her to the ER. All were done at Children’s Mercy. The chest x-ray was because she wasn’t breathing one night when I went to check on her. She had asperated on her spit up and choked. The x-ray showed a hiatal hernia but the other tests didn’t. I guess it can come and go. The ped. GI said it really didn’t matter because it is treated the same way as reflux it just could explain her reflux. So I wonder if sometimes she has a hiatal hernia and sometimes she doesn’t. The tests all showed severe reflux and no milk intolerance. Everything else looked fine. I think I would hold off before more tests since she has had them already. She’s been through a lot in hospitals already (she was hospitalized w/a stomach flu that sent us to the ER 2 times w/dehydration, she had an allergic reaction to hay at Halloween last year and had problems breathing, and she cut her head open when she fell, all in addition to the GI tests and ER trip for that) and has bad memories from them all. Unless it’s necessary I don’t want her to do anymore. Like I said we know Children’s Mercy very well!

My Emma has always pooped strange too. I’ve been told she falls w/in the normal aspect of things. She can be really runny and then be constipated all w/in a few days. Her stomach sticks out at times too but we have noticed it is always right before she grows up. She grows out in her belly and then her height catches up w/it.

Reflux can make the vomiting when they are sick out of control. Whenever my Emma throws up she literally doesn’t stop. She throws up several times an hour for days and can’t keep a thing down. The first trip to the hospital they rehydrated her orally and sent us home. We came back 2 days later and she was so dehydrated and her blood sugar was low we stayed for 3 days. They kept trying the oral rehydration but it just made her reflux fare up. I finally said no to it and they finally listened! She should have gone to the hospital a second time but we tried everything at home first knowing they would do the oral hydrating first. Our Dr. perscribed a supository (she was over a year old then) and said if she throws up one more time to go to the hospital. Well, it worked. Now whenever she throws up she gets a supository. It helps a lot.

Funny you can’t get a hold of anyone. How annoying! I am glad we did the tests the first time around. We didn’t do it right away but after several tries at med. failed. I felt a lot better after it. I was amazed at how quick the endoscopy was. Good luck. It is scary when they put them uner but it was so short. I assume you are having it done at Children’s Mercy?

There is something called a sliding hiatal hernia. I guess it just slides in and out of position. That’s what they said it probably was since it was clearly on the x-rays but not on the upper GI or endoscopy. No one really was worried about. I may ask again about it once we get a new dr. here.

Thanks for the suggestions Laura. I remember lovemysophia. She and I both had babies that were up all the time! I’ll search the posts for szvilla’s recommendation. You are amazing at what you remember!

The suppository is to stop the vomitting. Her doctor said w/her it is best to go ahead and give her one the first time she vomits. Once she starts she doesn’t stop. It usually takes 2 suppositories (1 every 6 hours) to kick in and she is vomiting for the first few hours but after the 2nd suppositories she stops. It is trimethobenzamide. It is an anti-nausea medication. So it stops the vomiting which keeps her from getting dehydrated.

I gave Emma a tums last night before bed. She loved it. She was still up 4 times last night tossing and turning and moaning. I must confess we had pizza last night. It’s hard to break a familyy tradition of Friday night pizza. Although this morning she has a stuffy, bloody, crusty nose that she says hurts her. Maybe she’s getting a slight cold. We’ll see. Thanks for all the suggestions.