Home › Forums › Infant Reflux Information › Medicines › Achlorhydra?!?!
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September 25, 2006 at 7:57 pm #14244
Anonymous
InactiveHi!
I’m a new poster but I’ve read almost every post on this very informative website. My son is 2 months old and weighs 11.5 lbs. He is a silent refluxer. We tried Zantac and Reglan but he hated the Zantac taste and the Reglan gave him leg tremors. We were on Prevacid 15mg for 1 month when he started spitting up, hiccuping, refluxing, etc. again.
He is currently on 20mg Prevacid, which was a huge battle with his pediatrician. He was on 15mg Prevacid and I took all of Dr. Phillips information to her. She still was not comfortable with increasing it (called it “internet information”
) and consulted a pediatric gastroenterologist, who said he only felt comfortable with 20mg. They are concerned about achlorhydra, which apparently can be a result of these PPIs. I briefly googled it but my pediatrician said that these PPIs can neutralize the stomach acid too much, resulting in a bacterial infection of the stomach. Has anyone ever experienced this or heard of any of the such? Is this a legitimate concern or is this a nice case of my pediatrician/pediatric gastroenterologist trying to cover their butts in case something were to happen?BTW, we have an appt with a pedi gastro this Wednesday and I plan on asking him to let us switch over to Zegerid. This 30-minute wait time is become exceedingly harder for him these days, and rightly so. I emailed Dr. Phillips to ask what dosage he thinks my son should be on; I didn’t see a dosage chart for Zegerid.
Any help would be appreciated! This is such a great site. I’ve learned soooooo much, almost too much I think — I think his pediatrician hates me!
September 25, 2006 at 8:11 pm #14246Anonymous
InactiveGreat to have you on board. Education is your best defense against idiot doctors. It sounds like you are doing a GREAT job fighting for your little boy. He is lucky to have you as a mommy!!
I haven’t heard anything about achlorhydra – if you find out anything more, please post about it.
As far as the Zegerid dosing goes, Abby started on 3.5 ml 3 times per day when she weighed just over 8 pounds. There is a dosing calculator on the site where you enter their age and weight and it will calculate it for you. I would suggest the 20mg packets at his age so use that when you do the calculator. Zegerid has been like a miracle to us and we were so grateful to the people at Marci-kids for helping us convince our MD to let Abby try it.
Good luck and please keep us posted!
Robin
Abby’s Mom2006-9-25 20:12:52
September 25, 2006 at 11:55 pm #14259Anonymous
Inactiveyeah, that is a low dose.
i havent heard of anyone on here having trouble with achlorhyda, and many of these moms have had their babies on high doses of PPI for a very long time.
there are probiotics that some moms on here use for digestion. it promotes good bacteria in the stomach. have you considered that?
my son is on zegerid.
at your sons age and weight my son was on 30mg of zegerid-that was dr phillips recommendation.also, the calculator on the marci-kids.com site is wrong about zegerid dosing. joel from marci-kids confirmed this.
i tried it out and it made no sense. it said my son should be on 42 mg of zegerid with the 40 mg packs but 24 mg of zegerid on the 20 mg packs.
the mg shouldnt change like that.
anyway, he is on 42 mg of zegerid right now. also, dr phillips suggested the 40 mg packs because you get twice as much for the same price.
good luck.September 26, 2006 at 12:30 pm #14281Anonymous
Inactivei have 3 children with reflux. while none of them has had problems with achlorhydra, two of them have had a problem with esophageal thrush. people think esophageal thrush is not very common, but the ped gi says it is more common that people realize, especially in someone with a chronic condition such as reflux.
achlorhydra is probably not a very common complication from using a PPI, but give your docs credit for considering it. since it is not very common,and so rarely mentioned, somewhere there is someone that has it, and is furious because their doctor never mentioned it as a possibility.
as far as your doc being wary of marci-kids info—-she’s right, it IS internet information and it is obviously not the AUTHORITY of reflux info, or every ped gi out there would be aware of it. marci kids has a lot of very good info, but remember that the doc that physically examines your child should be the one that treats them—not someone you exchange e-mail with.
kevieb2006-9-26 12:36:33
September 26, 2006 at 1:23 pm #14293Anonymous
Inactivekevieb wrote:
i have 3 children with reflux. while none of them has had problems with achlorhydra, two of them have had a problem with esophageal thrush. people think esophageal thrush is not very common, but the ped gi says it is more common that people realize, especially in someone with a chronic condition such as reflux.
achlorhydra is probably not a very common complication from using a PPI, but give your docs credit for considering it. since it is not very common,and so rarely mentioned, somewhere there is someone that has it, and is furious because their doctor never mentioned it as a possibility.
as far as your doc being wary of marci-kids info—-she’s right, it IS internet information and it is obviously not the AUTHORITY of reflux info, or every ped gi out there would be aware of it. marci kids has a lot of very good info, but remember that the doc that physically examines your child should be the one that treats them—not someone you exchange e-mail with.
the doctors that physically examined my son were morons and would of only worsened his condition. at first, i was not getting any meds for him, on “ar lipil” formula. what a joke.
then, i received zantac and when that didnt work was given a script for reglan. are you kidding me? my son doesnt have a motility problem. i was told “ppi’s are not for babies”
if it wasnt for the people i exchanged emails with, my son wouldnt be on zegerid and would probably be on a feeding tube right now with a severe feeding aversion.
nataliachick72006-9-26 13:23:47September 26, 2006 at 1:41 pm #14296Anonymous
Inactivekevieb wrote:
i have 3 children with reflux. while none of them has had problems with achlorhydra, two of them have had a problem with esophageal thrush. people think esophageal thrush is not very common, but the ped gi says it is more common that people realize, especially in someone with a chronic condition such as reflux.
achlorhydra is probably not a very common complication from using a PPI, but give your docs credit for considering it. since it is not very common,and so rarely mentioned, somewhere there is someone that has it, and is furious because their doctor never mentioned it as a possibility.
as far as your doc being wary of marci-kids info—-she’s right, it IS internet information and it is obviously not the AUTHORITY of reflux info, or every ped gi out there would be aware of it. marci kids has a lot of very good info, but remember that the doc that physically examines your child should be the one that treats them—not someone you exchange e-mail with.
Wow, most people have been very helpful with their posts but I must say I’m not finding that yours is. You are very negative and a little harsh.
I completely realize that it is “internet information” but when my pediatrician can physically call Dr. Phillips to discuss it with him……that’s a little different. He’s very open to being contacted and has a lot of studies backing his literature. I honestly don’t think that it is the AUTHORITY on infant reflux either; I don’t think I ever said that but they have do have substantiated literature. Obviously it is mostly correct or else so many of you wonderful ladies wouldn’t have been praising Dr. Phillips so much. Make sense?

And yes, some doctors are morons! Some are good, some arn’t. I can appreciate a doctor that is looking out for us and will tell me about a possible side effect. I thanked my doctor immensely because I do want to know the downside of these meds. Obviously I was concerned about it enough to post a question about it. But if it’s just a slight chance, I’d rather still increase my son’s dosage and take that chance than him suffer with the reflux on too low of a dose. That’s why I specifically asked if anyone on here had experienced the achlorhydra.
Oh, and BTW, the pedi gastro that increased his Prevacid dosage to 20mg has never physically examined my son yet. Kind of funny how our pedi who has examined my child in person wouldn’t increase it but the pedi gastro who hasn’t seen him would. Ironic!
September 26, 2006 at 3:15 pm #14328Anonymous
Inactiveso which part was negative and which part was harsh?
September 26, 2006 at 3:33 pm #14334Anonymous
Inactivewell, i dont know if it is what you are referring to but what did you find about achlorohydra??? It is actually a side effect of PPIs – they neutralize acids and sometimes there is so little acid that i believe tha condition can happen (isn’t that what PPIs are for??). Most of the timie, it is temporary and it requires no treatment. Other times, because of all the medicines, and lack of acid, can lead to bacterial overgrowth. Some babies do suffer from recurrent infections.
Is this waht you are talking about?
Also, Christine needs no defense but what i have found is that different people rely on different sources of information – unfortunately, reflux is not a disease where there is a clear protocol. Some babies do great on prevacid and horrible on zegerid or on prilosec. Some do better with lower doses because high doses create bacterial overgrowth and crapms and others do better with lower doses. People on this forum rely on marci-kids, people on other forums rely on other sources and really, feeding clinics do their own research and find their ways and if you speak to GIs who have been doing this for 20+ years have different views. I believe that people are here to give you advice and unfortunately, what is right for someone may not be right for you.
September 27, 2006 at 10:13 am #14399Anonymous
InactiveChristine,
With all due respect,
Marci-Kids is a pioneer in treating kids with reflux. The team members are educated Dr.’s and Pharmacists that dedicate their lives to treating children. It should not be considered just “Internet information”! It’s unfortunate that not everybody has the means to travel to Missouri to get the treatment they seek. MARCI-Kids has been generous enough to create a website to be used as a portal to educate parents and Physicians.
I am not hear to point fingers or create drama, as that is not the point of this great website. I just want other mom’s out there to know that MARCI-Kids is a reputable actual physical Institution and not just “internet information”.
mom2evan2006-9-27 10:25:52
September 27, 2006 at 12:43 pm #14419Anonymous
InactiveI wish that marci-kids would be better at disseminating their results. It’s so frustrating that they’re doing research on these things and making recommendations that are not well disseminated to medical professionals out there. I’ve often wondered why all this information was not published in reputable GI journals. If it were, then it wouldn’t be such a fight with doctors. (In fact, I think I’ll ask the new Joel- can’t remember his name- why the information hasn’t been better disseminated). I think what Thais says is really true though… when you go to specialists with tons of experience who are considered “gurus” in their fields, and feeding clinics with world renowned reputations, they often follow different protocol, yet they come with an amazing reputation. I think the problem with reflux and pediatric treatment is that there seem to be so many inconsistencies from professional to professional. I really respect marci-kids, and I think it’s great that they are doing all this research b/c it’s a very important topic. But doing the research is only one part of the puzzle- if the results aren’t well disseminated and shared with doctors and professionals who work in the field via professional journals and other sources of information sharing, then it isn’t as valuable as it could be. I find it really frustrating!
September 27, 2006 at 12:53 pm #14421Anonymous
Inactivejenay, until and unless marci kids is able to publish and send out their information to every ped gi out there—-they are still going to be “internet information”. this does not mean that they are bad or wrong. there is just so much information on the internet that doctors do not have the time to go online and sort it all out according to what is legitimate and what is not. what i have been seeing over and over again on this board is that people keep referring to their doctors as idiots, or morons, or stupid, or some other derogatory name because they don’t know, or don’t use the marci kid information. there are other sources of inormation out there and other people out there that are also doing research and treating children with reflux.
i have a tendency to be point blank and not mince words sometimes—-so i guess if it is not what people want to hear, it is considered negative and harsh.
September 27, 2006 at 1:17 pm #14428Anonymous
InactiveChristine,
To some degree I agree with you….but I always point people towards marci-kids because ultimately their recommendation is what worked for my child. Nothing else worked. It’s only natural to point people in the same direction in which you yourself found answers.
I do wonder why they (marci kids) don’t get their research out there where it can help more people.
Lori,
I think the guy who took Joel’s place is named Chad. Please let us know if you get any answers.
September 27, 2006 at 1:19 pm #14430Anonymous
Inactivekevieb wrote:
jenay, until and unless marci kids is able to publish and send out their information to every ped gi out there—-they are still going to be “internet information”. this does not mean that they are bad or wrong. there is just so much information on the internet that doctors do not have the time to go online and sort it all out according to what is legitimate and what is not. what i have been seeing over and over again on this board is that people keep referring to their doctors as idiots, or morons, or stupid, or some other derogatory name because they don’t know, or don’t use the marci kid information. there are other sources of inormation out there and other people out there that are also doing research and treating children with reflux.
i have a tendency to be point blank and not mince words sometimes—-so i guess if it is not what people want to hear, it is considered negative and harsh.
many of these people that you claim are doig research and treating children with reflux are obviously doing a crappy job. so many moms on here and other boards come on and wonder why is the doc not prescribing anything? why is the zantac not working? why cant i get a PPI? the PPI is not working?!
i was told my son was gaining weight, and he was fine. he didnt need meds since his weight was “normal”
ER visit after ER visit i was sent home disappointed. my son was in pain and screamed during and after every feeding.
zantac didnt do much, and i was told to try reglan.
when i declined, because i knew my son didnt have DGE, not to mention they didnt even bother testing him for DGE before giving me the script, i was told “you are not a doctor, what do you know”
i pleaded for a PPI because i knew that is what my son needed.
the doctors were so arrogant and useless. im sure they hadnt been updated on infant reflux in years, and the best part: they didnt give a damn. all they wanted to do was hand out scrpits for reglan without any DGE testing and make their money.
simply put, these doctors think theyre treating infant relfux but in reality theyre making it worse. making the babies suffer longer than they have to by not giving PPI’s when needed and not giving the correct dosing.
all of the doctors i have encountered have been true arrogant ignorant morons, excpet our PED, because she was open mineded enough to listen to Dr Phillips and throw reglan and zantac out the wirnow.
i realize these meds work for some, but so many babies need much more, and these docs arent willing to help much. its not right.
nataliachick72006-9-27 13:21:49September 27, 2006 at 1:24 pm #14433hellbennt
Keymastercan we end it here?
everyone has stated their opinions.
let’s get back to achloryda
and, if not, then this thread is done.
Thank you!
[returning to regularly scheduled programming
]September 29, 2006 at 8:46 am #14582Anonymous
InactiveWe went to the Pedi Gastro on Wednesday and I inquired about achlorhydra and told him my concerns. He said that it’s inevitable with these meds that our children will have achlorhydra. They are on such high doses, which subsequently neutralizes the acid in their stomachs. He also said that he has never seen a bacterial infection as a result of the achlorhydra and specifically said, “Please don’t worry about that. That would be just another thing to worry about and it’s not needed.” The time it would be a problem is if our children ingested salmonella or e coli or some other potent bacteria, which is not likely to happen. So, I guess most of our children do have the achlorhydra but it’s not too much to be concerned about unless they are being exposed to foods that potentially carry these types of bacteria.
He said that Jackson’s reflux should be 75% better by 5-6 months of age so hopefully we won’t have to worry about reflux, achlorhydra and bacterial infections of the stomach by the time he is eating solid foods.I also told my pedi about it. She was the one that forewarned me about the bacterial infection part and made it sound like much more of a possibility of occurring than the pedi gastro did. I don’t think she honestly knew that it is quite rare so I think she felt much better about him being on the higher dose of Prevacid.
She also referred my son to the physical therapist for his torticollis (wry neck). Thank goodness for early intervention! I just wish the hits would stop coming.
Just thought I would update!!! Sorry to have started such a controversial thread!
It was not my intent! ali gal2006-9-29 8:48:2
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