Need Prilosec Help

Could you print out the stuff from marci-kids and give it to the pharmacist. Alternatively (or also) email marci-kids and see if they will ring the pharmacist. Step three…go to another pharmacy and see if they will do it?

Here I am, Laura! LOL.

Ugh! I hated having to deal with the compounding pharmacy. They told us the same thing. According to marci-kids research on this, unless each dose is going to be 7ml or more (which it rarely is at the doses we’re giving), then it needs to be made with 16.8 percent sodium bicarbonate. (If you are giving 7ml or more each time then you can do 8.4 percent.) The concentration should be somewhere between 2-4mg/ml so that each dose has at least 3.5ml to ensure enough buffer.

Your dose is pretty low, so unless you have it made with the 16.8 percent sodium bicarb, there won’t be enough per dose to protect the drug.

Our compounding pharmacist told us that they followed the compounding association and did use 16.8 percent sodium bicarbonate, but they didn’t believe any of the other rules about flavourings etc.

I would suggest writing all the instructions out on how you want it prepared and ask them to humor you and prepare it this way. If they won’t do it, then I’d either see if marci-kids would contact them, or better yet, just go to another pharmacy. When you do get it made, ask for a printout of all the ingredients used in the compound. We did this, and found out that additional flavouring agents were being added to our supposedly unstable suspension. In the end, it almost drove me batty trying to get the compound made properly.

Can you use zegerid? Then you wouldn’t have to worry about the stability.

s&h’s mum2007-3-18 15:53:23

hmm..maybe w/ the refilling it every 2 weeks and that it’s a liquid you might be able to give more w/o drawing attention…not that I am advocating going against your doctor…but after 2 wks at the 15mgs a day if you don’t seee any improvement you might try a bit higher and if it helps you can then try & ‘reason’ w/ your doctor- but try the 15mgs first-

also: you might want to try splitting the 15mgs ‘unevenly’ w/ a higher dose given at the ‘worse’ time- for us we gave a bit of a higher dose in the evenings

ps: for my ‘lowest’ calculations I get 16.5 mgs a day so your doctor isn’t too far off – I’d feel ‘safe’ going up to this if the 15 didn’t work- but that’s just me…way back in my day (close to 4 yrs ago) 3mgs or 3.5mgs per kilo was considered a high dose…

It is MADDENING that the compounding pharmacies don’t know the info about preparing these compounds. I spoke to Dr. Phillips about it, and he said that they’re still trying to get the results out which can take many years.

The pharmacist is talking about the pH of the medication, which for some reason is the indicator that they use to say whether or not it is stable or not. But that’s only one part of the whole picture.

I would ask the pharmacist for a printout of all the ingredients in the compound. Even when we thought that it was being made properly, it wasn’t, b/c they were adding all kinds of other ingredients.

I hope this works for you. Be sure to shake it REALLY well so that all the sediment comes off the bottom of the bottle. Our pharmacy used a brown bottle so I didn’t realize that most of the buffer was sitting on the bottom of the container!

Good luck.

BTW, You can ask Dr. Phillips to call your doctor if you want, as he has done this for some people. But he recommends zegerid- not sure if you wanted to go that route.