Lots of questions from a new mom baby!

This is something I sent to Myles’ doctor. I think it helped to sway her because when she finally agreed to the marci-kids’ dose she said something like, “Well, these are non-toxic meds, so let’s give it a try.”

http://www.marci-kids.com/pdfs/dosingppis.pdf

I also printed out the dosing charts from marci kids and some of their general information about PPI meds and the list of research studies.

Good luck on Monday!

I’m not sure if by now your baby is already on meds. Anyway, we used prevacid pkts for my first son and it did no good. The biggest reason is that he was never on a high enough dose. Justice was also put on the prevacid pkts and they never did him any good either. A guy from marci-kids basically explained to me that since you have to split the dose the pkts are pretty worthless because you would basically have to count out all the beads and make sure each dose gets the same amt. of beads. I’m pretty sure they recommend the solutabs. With Justice we eventually started using Zegerid. It was amazing the diff. it made in him. He became a truly happy baby and would actually eat without pulling on me and moving all around. It never helped with his sleep, but I don’t think there is a guarentee that any of them will help with the sleep. I tell everyone that because it can be a huge let down. I always think it’s best to be prepared for the worst. That way if your baby does start to sleep better it will be a great suprise. Also, the reflux could be completly due to the allergy since you said you found blood in the stool. I also did and am still doing dairy free. You might want to also think about cutting out all beef also. Justice and I both and many babies for that matter react to anything from a cow. Oh, and rice milk is a great milk sub. I use the vanilla kind to cook with and for my cereal. I can’t tell a diff. Neither can my very picky husband. Good luck.

The recent law change requiring companies to list allergens has been really helpful, but you still have to check labels pretty carefully. I’ve been doing this with Kaelyn for over a year, and I still make mistakes from time to time.

This post has a link to lots of “safe” foods.

https://www.infantreflux.org/forum/forum_posts.asp?TID=2718&a mp;a mp;PN=1

I also cut and pasted the part about what to avoid:

And here’s a list of ingredients to avoid while on a milk free diet:

artificial butter flavor
butter
butter fat
butter oil
buttermilk
casein (casein hydrosylate)
Caseinates (in all forms)
Cheese
Cream
Cottage cheese
Curds
Custard
Ghee
Half & Half
Lactalbumin
Lactalbumin phosphate
Lactoferrin
Lactulose
Milk (in all forms including condensed, derivative, dry, evaporated, goat’smilk, and milk for other animals, low-fat, malted, milkfat, non-fat, powder, protein, skimmed, solids, whole).
Nougat
Naturlose (sweetener derived from whey)
Pudding
Rennet casein
Sour cream
Sour cream solids
Sour milk solids
Tagatose (sweetener derived from whey)
Whey (in all forms)
Yogurt

According to FAAN, These products DO NOT contain milk:
Calcium Lactate
Calcium Stearoyl Lactylate
Cocoa Butter
Cream of Tarter
Lactic Acid (however, lactic acid starter culture may contain milk)
Oleoresin
Sodium lactate
Sodium Stearoyl Lactylate

Keep in mind that derivatives can be hidden in some unsuspecting places (ie., Hylands Teething Tablets, Trident gum, brown sugar flavoring, canned tuna, some vitamins, some deli meats, some toothpastes, some soap products, etc.) so it is crucial to read every label.

Arggg. How frustrating! I can’t stand it when doctors assume a baby is fine because they are gaining weight. My babies both gained fine but they were miserable and feeding them was an ordeal. My first refluxer suffered for months. Fortunately I found this site when I had my second reflux baby and I made sure I got him on a good dose of Prevacid and once I did things turned around. It was not easy to get him on that high PPI dose, but I persisted and would not give up until he was pain free.

I think I’d try to follow up with your regular ped. Didn’t he say something about trying aother medication if the Zantac wasn’t working? I’d try to get a PPI prescription from him and if that doesn’t work maybe try your family doctor. Many of us have had better luck with family docs. (Myles’ doctor is a family physician). I think it’s because family docs see adult patients with reflux all the time so they are more familiar with reflux meds and they seem to be more empathetic about how painful it is; probably because their adult patients can tell them how much it hurts. Peds too often see fussiness or irritabilty as nothing more than colic.

Be sure to print out the marci-kids information and maybe fax it to your ped before you even talk to him. Include a cover letter describing your baby’s symptoms and requesting to please be allowed to try Prevacid or Zegerid since Zantac is not helping. Then call the office, tell them you sent a fax for Dr. so and so, and ask them to have him call you. This is what I did with Myles’ doctor and it did work for us.

So, I’d try your ped first, family doctor next, and if all else fails make an appointment with a Ped. Gi. Maybe make an appointment now. You can always cancel if you get things worked out in the meantime.

Good luck and don’t give up.

Ditto to everything Christine and Kim said. It is so frustrating when these Drs just don’t listen and don’t understand. Many of us have heard the same old same old…so you are not alone. Just remember you don’t have to be satisfied with this second rate treatment…you are mummy, your instincts are right….follow them and don’t be put of by these types. BTW…it was my husbands family dr who finally prescribed the right meds and dose…not my pead…her approach was “she’ll just grow out of it”…bugger that…she might (and now thankfully it seems like she has) but both of us will be start raving mad by then (OK well I am…but not because of her reflux…because of my dh). hang in there mate.