Infantreflux.org | Need help with refluxing twins

This topic has 4 replies, 1 voice, and was last updated 19 years, 2 months ago by Anonymous.

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June 11, 2007 at 6:07 pm #36332

hellbennt
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welcome!

I have a LOT to say & I say it here: Groupie Intro: my intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853&am p;am p;PN=1&TPN=1

please please read/scroll/skim this, as there is a lot to help you

so glad you found us!

~laura

June 11, 2007 at 10:16 pm #36392

Anonymous
Inactive

protonix is a ppi and the reglan is for stomach emptying. Aaron has gained a lot of weight since being put on the reglan so it is working for him.

I will talk to the gi about an endoscopy. I was thinking that was the next step but hoping for some sort of miracle cure. The ped suggested we could add zantac to what they’re taking but it just doesn’t sound very effective for babies.

I not only have the twins but I have a very active 2 year old and a 9yo with ppd/autism

June 11, 2007 at 10:54 pm #36395

Anonymous
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a celiac test is not likely to be very accurate at this age—–babies and young kids don’t always produce the antibodies until they are older.

have they recommended testing, such as an endoscopy, a ph probe? they’re not gaining weight and they are throwing up way too much.

have they suggested taking them off all solids and putting them neocate only?

i don’t know if my twins were much bigger than yours at that age. they have always been so small and thin. they were diagnosed with celiac 1 1/2 years ago. i don’t THINK they had it when they were little, but no one ever thought to check, either.

June 12, 2007 at 6:11 am #36411

Anonymous
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Zantac may add something in combination with the Protonix. At one time Alana was on 30mg of Prevacid and it wasn’t helping as much as we would have liked. When we added the max dose of Zantac (10mg per kilo) it made a difference. It might not in all situations but it did help for us.

June 12, 2007 at 6:31 am #36419

Anonymous
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Wow, you have a lot going on! I don’t have much to add, but I wanted to say that it sounds like you have your hands full and you are handling it amazingly well!

Hang in there! There is a wealth of support here!!!

Ann Marie
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