Home › Forums › Infant Reflux Information › Medicines › Seeing a Specialist and questions?
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September 21, 2007 at 2:56 pm #43057
Anonymous
InactiveThis is my first post. I have a 2 month old that at 3 wks old had a positive barium test for reflux. Our regular doc is not familiar with Reflux in infants nor does our Ped (small town). We are now seeing a Pediatric specialist at the Mayo Clinic in Rochester on Monday.
We had her on Zantac for two weeks, helped a little but wore off quickly. THen the doc put her on Prilosec for the past 3 1/2 weeks it has gotten horrible again. She screams and won’t/can’t fall asleep. Yes…it is still better then in the beginning but not great.
Do any of you have suggestions of things to check on with the specialist? Experience with better medication? I have read about Zegerid; what is your experience.
It crushes my heart to see and here her in so much pain. Not that I want anyone else to go through or have gone through the same thing but it is good to hear about it. Thank you in advance.
September 21, 2007 at 4:06 pm #43062hellbennt
KeymasterSeptember 21, 2007 at 5:20 pm #43071Anonymous
InactiveHi there. I’m sorry to hear that your little one is having a hard time. My guess is that likely her prilosec dose is too low, and that if it’s a compound, it’s not being made properly. Compounds are notoriously made incorrectly. (But I’m definitely bias b/c we had a bad experience with that). Also, since you say that your doc doesn’t know much about reflux, I’d guess that he also gave a very low dose of PPI. Check out http://www.marci-kids.com for some dosing guidelines- the recommended doses on that site are pretty much the highest I’ve ever heard of, but it gives you an idea of where to aim.
Laura posted a link for you in your other thread about how to properly compound PPIs. If the prilosec is a compound, is there any flavour in it? How much is she on a day? How many mg/ml is the solution.If it’s a capsule that you break open, then it needs to be given on an empty stomach and followed with a meal 30 minutes later- only the capsule, not the compound.I personally would go with zegerid over prilosec, but I’ve never tried zegerid, just heard good results on the site. Otherwise, I’d go with prevacid solutabs… they’re easy to give, only hard part is that you have to wait the 30 minutes before feeding. Good luck. And about your question from your other thread- no it doesn’t matter if you give it at the same time of day or not, but most people doing two doses choose morning and then evening/before bed, and people doing three doses usually add in a midday dose.s&h’s mum 2007-09-21 17:23:32 -
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