Home › Forums › Just For Fun › Stuff I Just Want to Talk About › our family's celiac genetic results
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January 22, 2008 at 6:20 pm #47600
Anonymous
Inactivei finally saw the results of our families gene testing that was done when we entered the celiac study through the university of californi, irvine.
they didn’t tell me leif and daisy’s results because they are over 18—-i asked her to mail the results to both of them. kevin and i both carry one of the genes and every one of the kids also carry one of the genes. we all have the DQ2 gene which is more common than the DQ8 gene. they believe there are other genes involved as well, but just don’t know which ones they are, yet. 30% of the population carries at least one of the celiac genes, but they don’t know why the disease activates in some people and not others. since all of us carry the gene, i wonder what it was that activated celiac in the girls and not in the rest of us. actually, it could be activated in any one of us at any time. so, i guess we all need blood testing once a year—or sooner if we start to show any symptoms.January 23, 2008 at 3:00 pm #47608InactiveThat is so interesting! Thanks for sharing!
January 23, 2008 at 3:40 pm #47611InactiveThat is really interesting. I bet you are glad now that you did the study. I guess the goot thing is that now you can be forewarned if any of the other kids start showing any symptoms. It just is very interesting that you all are carriers now…. Might be worth while to have the future spouses tested as well to help with issues in potential grandchildren… THanks for sharing.
January 23, 2008 at 5:11 pm #47616InactiveHmmm..interesting info.
January 24, 2008 at 1:58 pm #47650InactiveI didn’t realize that so many people carry the genes. Do either of your parents or siblings have it?
January 25, 2008 at 1:41 am #47679Inactiveat least one of each of our parents has to carry it since we both carry it, but as far as we know, no one in either of our families has been diagnosed with celiac. my brother is type 1 diabetic and diabetes type 1 is back to back on the same gene as celiac.
January 25, 2008 at 4:00 pm #47699InactiveThat’s really interesting. Hopefully you won’t have ANY grandchildren with celiac, despite the odds.
February 7, 2008 at 10:53 pm #48103Inactivedaisy called today to get her genetic results. she also carries the DQ2 celiac gene. so far, that is 8 out of my 9 kids that carry the gene. leif has not called for his results, yet. shouldn’t the odds have been a little better for us than this? daisy has a different biological father, but out of the seven kids that kevin and i have had together, every single one carries the gene. since kevin and i only carry one gene each, wouldn’t it have been more likely that only some of the kids would carry it rather than all of them?
February 8, 2008 at 2:17 am #48107Inactivethats very interesting!! maybe many people do carry it!! maybe its VERY common and we have no idea!!??
how do you test for it?? we NEED to do that!February 8, 2008 at 6:12 pm #48125Inactiveceliac disease IS very common. they refer to it as the common disease that no one has heard of. they say it is about 1 in 133 that have it. about 30-40% of the population has one of the genes for it, they just don’t know what activates the disease in some people and not in others.
to be tested for celiac you need to have a total IgA serum test and a Ttg IgA test done. a Ttg test is the most accurate test, but you need to make sure that you are not IgA deficient, or the test is worthless. i know that some people refer to a celiac panel, which has about 5 different tests that are run—-but part of them are the old tests that are not that accurate. also, celiac testing is not always accurate in really young children. they don’t always start producing Ttg antibodies until they are a little older. obviously the really sick ones were discovered in some way, though, because they used to think it was a childhood disease that people outgrew. now they know that you never outgrow it, but sometimes people go through a honeymoon period through the teen years where the sumptoms disappear—-but damage is still being done. kassie and tianna had totally different symptoms, and molly had no obvious symptoms—although my sister used to tell me that molly looked like an ethiopian child………kevieb2008-02-08 18:12:55
February 8, 2008 at 6:56 pm #48126hellbennt
Keymasterso you & kevin both have the DQ2 gene?
does anyone have any ‘other’ gene (you mentioned DQ8)
February 9, 2008 at 12:20 am #48135Inactiveyes, we both have the DQ2 gene, but none of us has the DQ8 gene. it is not as common as the DQ2.
i don’t think that leif wants to know what his test results are. -
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