Drs not listen almost not caring

Hi there. Sorry to hear about your girl. Don’t give up- we went through many docs not caring. You need to keep going until you find a doc who does care. If you tell us where you are, someone may be able to give a referral to a good doc. Things do get better, though unfortunately, it can take time. It does seem to peak from 4-6 months, and then get better from 10-12, though it can be longer (or shorter, I suppose on the positive side). 7.5mg of prevacid is a low dose. Also, how are you giving it? Check out laura’s intro stickied under the introduce yourself forum. Good luck and hang in there.

hi & welcome! you’ve found a great place!

the key to all of this is RESEARCH and, of course, support!

http://www.marci-kids.com is at the FOREFRONT of research of PPI use and dosing in infants/todders. You might want to start there to see if PPI dose is ‘proper’ (the dose you mentioned does sound low…)…

then, hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…

Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

unfortunately, the majority of drs & pharmacists don’t know…babies metabolisms’ are much faster than adults, so the drugs work differently with them…

after medication, you might then want to look at diet (which it sounds like you are, as you are giving elecare)…

I have a LOT MORE TO SAY! and most of it is here:

it’s looong, but PLEASE read/skim/scroll through it & refer back to it, as it TRULY will help you!

so glad you found us!

~laura

ps: when you get a moment, please go to the upper right-hand corner of this screen and click on ‘settings’ and from there you can edit your signature and let us know how old baby is, what formula or breastfeeding, MSPI or not, what meds and what doses and form of meds and how you’re administering-thanks!

contact http://www.marci-kdis.com

and see who they recommend there

I am so sorry you are going through all of this. My daughter has turned blue a couple of times but it was only for a few seconds and mainly around her mouth and nose. The GI specialist we went to here in TX said not to worry unless she turns blue for more than 20 seconds. Is your daughter doing this for that long? I really hope you find a good doctor in your area. Good luck!
Deanna

a swallow study can be ordered by the GI…this is where the mechanics of swallowing is looked at- aspiration will be seen (this is not an Upper GI)

from all that I know (I’ve been on this board six years now), after it’s confirmed that there’s aspiration, then you are told HOW to thicken and to WHAT consistancy, using Simply Thick or Thick It…