protein intolerance HELP!

Hey guys,

I was a regular here when my ds was born until he was two, he’s now six yo. He’s got a hiatal hernia and takes zegerid– hh was confirmed via endoscopy. He’s on a gluten free & dairy free diet. I also have a two yo dd who had severe reflux and food issues– she had mucous in her diapers when she eats corn, dairy, soy, certain beans and is quite fussy when she has those foods. Both children have only been tested for food allergies using the blood test and both children had the blood test while they were on a diet free of the offending foods. Ped gi concludes that these issues are really protein intolerances & we should avoid the offending foods and continue to do food trials every so often (every six months to a year) I can’t remember where to find the BEST info on protein intolerances for myself– Laura do you still have something good on that?? Dh… has a hard time with all the issues the kiddos have even though I have everything documented quite thoroughly. He’s wondering why we need to avoid gluten and dairy NOW, even though ds can have a “one shot deal” and be ok. He’s telling me about the studies where they have shown that exposure helps the child overcome allergies (I believe there was a big peanut study done recently that showed very small intake of peanut dust could help children wtih severe peanut issues). Anyways, we don’t have a formal allergy, but have skin and gi issues after ingesting gluten and dairy several times in a short period of days or weeks. I also see behaviorial issues in my son when he has gluten and dairy. I need FACTS!!– to help me with my discussions with dh. Our ped gi, who is great, is also soft spoken and doesn’t offer a lot in the way of articles to read for us. Any help would be great. I don’t know if Christine is still here with her kiddos that have celiac, but lucas tested negative for celiac, but definitely in my estimation reacts badly after a few days/a week on gluten and dairy. Any thoughts would be extremely helpful.

Those of you who have dealt with the horrors of infant reflux & food issues can probably imagine how difficult it would be to have a spouse questioning the current treatment (that’s working well for us)– I’m not wanting to lose my dh’s support in all of this but don’t want to cold turkey change course and see my children go downhill because he wants to feed them pizza when it’s easier for him. I love him but wow, its been a long journey to get here with the children I don’t want to go backwards now!

Thanks so much. This forum is so amazing.

–Anne