I don’t know what to do anymore. I posted my intro and Jonathon’s history here: https://www.infantreflux.org/forum/forum_posts.asp?TID=14060&PID=110897#110897
I don’t know what to do to help my son. We have tried every medication readily available and none of them provide any relief. The new GI doctor has said that if the nexium didn’t work, then we could try a cousin drug to reglan but it isn’t available in the US or we could try Cisipride (I think) but it takes a while to get from the manufacter but it will take a while as it has been pulled from the market. The medication, has been linked to heart arythmeas and Jonathon has an innocent murmer so he would need to see a cardiologist and have a bunch of pretesting done before we could even try to get the drug.
Ugh I am just lost! Is there anyone who has been through anything similar? I’m open to any and all advice that I can get. TIA!