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I’m trying desperately not to panic.
Reading some of your other posts, I saw that many of you continued on Zantac while starting Zegerid, just to give the new medication a good two weeks to begin working. I didn’t know that until earlier this week when I was looking up why in the world her reflux symptoms were getting much worse.
I did start giving her Zantac again, trying to space it out at least 2 hours in between, but I’m not noticing much improvement. As a matter of fact, we’re on day 14 now, and her old symptoms seem to be worse than they had been on the old method of omeprazole (grinding up hard pills, mixing with applesauce, and choking it down her). She’s waking up arching her back and screaming in pain, and it’s happening while trying to put her to sleep, too. It’s just the way it used to be while she was just on Zantac.
Someone, please help me. There has to be a way out of this. If Zegerid can’t help her, I’m going to want to jump out a window.
That’s good that she’s on a high enough dose. You are lucky to have such an elightened doctor.
The reason I asked about her dose was to see if you were using the right size packet for her dose, which according to Marci-kids, you may not be. They say that you should use the 40mg packets for doses over 14mg, and the 20mg packets for doses under 14mg. You are preparing 13.3 mg doses. I don’t know if that small difference would matter, but maybe look into that.
Also, are you following Marci-kids directions for preparing the medication? Sometimes doctors don’t give the same directions. I think Marci-kids is probably the best source for this information since it is Dr. Phillips who invented this drug.
I wish I had some more advice for you but I really don’t know why Zegerid packets would not work when the omeprazole you used before did. Hoperully Joel will see this and answer your post, or perhaps you can email him and see if he has any ideas.
I’m sorry I can’t be of more help to you. I sure know how hard it is to have a baby miserable with reflux.
I hope things get better soon.Zegerid has worked great for us. Our daughter has been on it since early March and within 2 weeks, her symptoms were basically gone. We have increased her dose 2 times since then and she is now on 4.5 ml 3 times each day. We give it to her at 6:00 am (when I have to wake her up so I can get to work on time), 12:30 pm or so, and again around 7:00 pm. She will be 4 months old next week. She is gaining weight well and is basically a very happy baby. We give the Zegerid to her in 1 oz of formula, then have another bottle made up for the remainder of her feeding. We use the 20 mg packets and I mix up 2 packets with 13 ml of water in a large syringe and I put individual doses in small syringes – works great, especially to take to day care.
Hope things work out well for you. I know that Dr. Phillips will help give you some direction – he was a great help to us, as well as Joel (I miss reading Joel’s input on this board – hope he gets back on soon
Robin
Dr Phillips emailed back and forth with me yesterday afternoon, and it seems we may have an answer. I was giving her 6.5ml in some of her doses, which isn’t high enough (must be 7ml) to provide enough buffer to prevent the drug from being destroyed by stomach acid.
I don’t know if it’s enough of a difference because 2 of the 3 daily doses given were 7ml, but it’s a hope. He has me giving 6.5ml of the solution and then mixing 3.5ml of Maalox or Mylanta into the 10ml syringe.
I hope to God this works. Last night was utter hell, and I can’t keep going through this and watching my baby go through it, too.
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