Infantreflux.org | 11 month old silent reflux - help!!

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July 22, 2008 at 6:54 pm #54310

Anonymous
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My son has silent relux – no spitting but BURPY as heck and what doesn’t get burped out turns to gas, which is worse. He got tested for celiac and food allergies which are all negative. He’s on soy formula anyway and a very limited veggies,chicken and fruit diet. He has no teeth.

He’s ok when he’s awake. If he fusses, usually burping him does the trick. Sleeping is the problem. I used to keep him propped up but he’s too mobile and the Tucker sling’s too small. He wakes up screaming and arching. If I can get a burp out, he might go back down but if it’s gas, he’s crying the rest of the night. Are there any other sleeping ideas out there?? He’s probably slept through a dozen nights in his life.

He’s on Prevacid and Mylanta. I give him Prevacid and then feed him 15 min. later – should I wait longer??? Also, what constitutes an empty stomach – 2 hours? He has several small meals so it’s hard to time it all. I give him a 5 oz. bottle an hour b/f bed. Should I aim for 2 hours before?

I just ordered Colic Calm which is homeopathic to see if it helps at all. The charcoal in it is supposed to soak up the acid. We’ll see…

I keep thinking I’m doing something wrong (I have in the past, giving him gassy foods and letting him cry at night which only gave him more gas.) I’m pretty discouraged.

July 23, 2008 at 6:07 pm #54354

Anonymous
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HI and welcome!

11 months is a long time to be dealing with all of this! My younger son had silent reflux as well. He is MSPI (cannot have dairy or soy) Do you think the soy formula might be bothering him? Have you ever thought of having him allergy tested for soy? The blood allergy testing is not that accurate (in my experience and from what I’ve read) maybe you would get more answers with skin prick testing or the kind of testing that is done to show intolerances (IgG testing at Great Plains Labs)

With the Prevacid, if it is capsules or Solutabs) you need to give it on an empty stomach (use your best judgement here- maybe 2 hrs or so from the last meal) and then follow up with another meal 30-60 mins later. Waiting only 15 mins is not waiting long enough for the meds to travel where they need to go. I beleive they go as far as the small intestine. If you go to http://www.marci-kids.com you can read about PPI’s and how they work in the body and the best possible dose for your child based on their weight. Many pedi’s and ped GI’s underdose.

I would def look at the formula you are using. I say this b/c you talk about the gas your LO has. That can def be a sign of intolerance!! Sometimes things do not show up on allergy testing but it does not mean your LO can tolerate them. In this case, your LO might need Neocate or Elecare formula to ensure there are no milk or soy proteins in his system. At 11 months you might have a heck of a time making a switch but some have had success using the flavoring packets.

Hope some of this helps. Also, please check out the Groupie Intro link that is stickied in the ‘introduce yourself’ forum. It was put together by our moderator Laura and it is full of tons of useful information that you can’t live without!

July 28, 2008 at 10:19 am #54596

Anonymous
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Hmmm. It could be soy. I’ll look into the allergy testing. Can you buy those formulas at a regular supermarket?

Oy vey – this is getting expensive! I’m looking to switch over to cloth diapers to help pay for Owen’s meds!

July 28, 2008 at 11:01 am #54599

Anonymous
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Hi. I second everything Jill said. I wanted to let you know the “test” so to speak for intolerances is called a fecal hemoccult test. This test checks the stool for microscopic blood. The blood is a sign of intolerances, although not all babies with them have bloody stools.

Here is a link to get a savings card from the makers of Prevacid. It will save you $25 every time you refill the script. It is used like a secondary insurance card. Every little bit helps!

https://www.prevacid.com/offers/beyondtheburn.aspx

Also, I am not sure of your dosage of Prevacid, but it has been my experience that a pretty high dose is needed for our little ones to find relief. Their little livers just metabolize the Prevacid so much faster than adults. My ds is 8 months and on 30mg per day.

Here is the link to the groupie intro. Good luck and keep us posted!

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

kdub2008-07-28 11:02:29

July 28, 2008 at 12:06 pm #54604

Anonymous
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Thanks for the Prevacid savings link! I signed up!

July 29, 2008 at 8:26 am #54673

Anonymous
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Just to add to what everyone else has already said…

My baby did just fine on the prevacid solutabs but other babies have had a tough time with it. You might want to search for stomach issues and prevacid solutabs on this site.

An intolerance to milk proteins would NOT show up on an allergy test. It is not really an allergy. If I am wrong on this, someone else chime in. That is my understanding.

I trialed dairy and soy free at 10 months. I first started with Nutramigen and Jackson would NOT even sip it (and he loves to drink formula). We then tried Alimentum. It stinks just like the Nutramigen but for some reason, he saw a difference. He would drink it down just like the dairy based stuff. Who knows why! I think that a few other babies on here have preferred Alimentum over Nutramigen. The hypoallergenic formulas that you purchase at your grocery store or drug store are different from the Eleclare and Neocate that the other poster mentioned. You might want to try the Alimentum and Nutramigen first. I am not sure, but I think that they are cheaper (although they are still outrageously priced)! Apparently, the proteins in those formulas are so broken down that most babies with intolerances can handle them.

Just so you know- our dairy free, soy free trial did nothing. When we switched back to milk based formula, Jackson seemed SO much better. He puked more on the Alimentum than ever before! So, it is not for all babies, but I am glad that we gave it a shot. At least I can rule it out.

Good luck.

July 29, 2008 at 9:28 am #54679

Anonymous
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You are right, an intolerance would not show up on a skin prick or blood allergy test. A fecal hemocult test that Kristin speaks of would show blood (if blood in the stools) if blood is a symptom of the intolerance that is. But another route you can take is the IgG testing (intolerance testing) that Great Plains Labs does. Sher (MFPIx2) had this done for her son Ben. It showed his intolernaces to casein, gluten and other things. She might be able to explain it a little better. A lot of docs aren’t really on board with this type of testing yet from what I’ve read. And insurance co’s don’t pay for it usually. It’s an out-of-pocket expense. I’ve read that the skin prick allergy testing has a skin patch that can be worn for 48 hrs and that can show more of intolerance-type allergies though. Just an afterthought…

December 27, 2008 at 6:05 pm #59889

Anonymous
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My youngest son could not tolerate my breast milk and had severe colitis and I had eliminated everything from day one because my oldest was allergic to both dairy and soy (never showed up on skin or blood tests but was evident because 2 hours after ingesting dairy or soy he would vomit for up to three hours and be extremely lethargic. Therefore, I nursed him until 2 years when he could then have rice milk).

So my little guy was on Nutramigen until age one and then elecare until 2 years. We got a script for both and picked it up at our pharmacy, even the nutramigen! This saved us a ton of money! Just our copay for a full months supply of formula! hope that helps!
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11 month old silent reflux – help!!