Home › Forums › Just For Fun › Stuff I Just Want to Talk About › Am I overreacting?
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October 17, 2009 at 8:26 pm #64299AnonymousInactive
I just want to say that you ladies all amaze me, the things that you go through for your children. I hope that if I had these issues, I could battle just as hard for my child every day! It takes a very special parent / couple to be such advocates for your children.
October 18, 2009 at 1:22 pm #64301AnonymousInactiveof course, Laura! either way is fine….have seen so many between ct, boston, and cleveland!
November 9, 2009 at 2:43 pm #64484AnonymousInactiveI have not had time to read through the whole thread, I have to go get Kaden from school, but really quickly, I just wanted to say that when I read your post and got to the part about the sign, my thought was “My GOSH, why would they direct it to people with seizure disorders?” So to me, NO, you are not overreacting! And I can think of many other things that would increase a person risk of drowning. My son who is on the Autism Spectrum has 0 safety awareness, so he has an increased risk of drowning. I do think the sign is direct and blunt and I suppose I’d worry that it would make Sarah feel uncomfortable. (((hugs)))
November 9, 2009 at 5:05 pm #64489AnonymousInactiveSarah, I don’t know how I missed your response to this thread!… I really hope that you’re able to get a good docs opinion. I’m sorry that you’re having such a hard time. I also hope that Isaac didn’t have a seizure! I know how scary they can be. You may want to get a referral to a pediatric neurologist just to be sure. HUGS.s&h’s mum2009-11-09 17:07:09
November 9, 2009 at 10:07 pm #64497AnonymousInactiveLori- We did see a ped neurologist almost 2 weeks ago and he was great! He does think it is a mitochondrial disease and that seems to be what all of the drs think now. We have just done the initial blood and urine tests so far. We will get results on Thursday hopefully.
November 10, 2009 at 7:23 am #64498AnonymousInactiveI’ve seen a lot of kids on P2P with mitochondrial diseases. Keep us posted. HUGS.
November 10, 2009 at 7:28 am #64499AnonymousInactiveSarah, I just read a bit more about mito diseases. I hope that this diagnosis helps Isaac. It seems that seizures can be a symptom of mitochondrial diseases as well. HUGS.
November 10, 2009 at 9:54 am #64501AnonymousInactiveI’ve gotten through this thread, so I wanted to add that Sarah, I am so glad that you are getting answers for Isaac finally! I know it is not easy, but I am sure you are relieved to be getting answers!! From what I’ve seen on P2P, it can take some time to get the muscle bx results back. I am sure it will be hard to wait, but def worth it to have answers!! Praying for you & little Isaac (and Eli too!)
I’ve stumbled across some interesting things re: autism and mito when looking into supplements to improve function for Kaden. I found that COQ10, which is commonly Rx’d for Mitochondrial disorders is great for kids with autism as well and I’ve read about the autism/mito connection. Kaden does not have Mito, but I am amazed to see how many kids with Mito have autism or PDD. There is a connection. -
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