Back with an update….

[Anonymous]

First of all, please, PLEASE! forgive me for not posting for a while. It felt like everytime I posted that things were going better, things would fall apart again. That d*mn honeymoon thing happened to us over and over. I had some serious post partum issues and stopped posting. But, here we are and I wanted to post an update just in case what is working for us may help someone else.

Ladies, we have done it all – every single thing, even the goat’s milk and she is allergic to everything, but rice. She is now on a rice milk formula that I am making myself. We are supplementing that with egg yolks in the morning, rice cereal and a few solids (sweet potatoes, squash and peas). Her meds: now prevacid solutabs 7.5 mg’s 2 x’s per day. The deeper we get into this the more we are finding that her main problem is food allergies/intolerances….

That’s all I wanted to say. That and thank you for support when I needed it most. I hope your babies are doing better than we have been. DD’s last allergic reaction was the worst yet, she stopped breathing 3 times because her face had swelled up so badly.

If you want the rice milk recipe I’m happy to show it to you. I have also found a few recipes online for rice milk formula and I would be happy to show those too.

[Anonymous]

Thanks for the update. I sorry to hear about the severity of her allergies. That sounds terrifying. What caused the last reaction? Does she have an epipen now?

I hope that things continue to improve.

[Anonymous]

How terrifying that must have been. I can’t imagine seeing my baby stop breathing. And three times that happened? What was the allergen that caused her to stop breathing?

I’ve often wondered how things were with you and little Rachael and I said a few prayers for her when I though of her. I’m so happy that you finally have some answers and that she is doing better , so thanks for the update.

I’m actually quite curious about the rice milk formula. I’d love to see the recipe. It would be great to have it on the board in case anyone else ever needed it.

[Anonymous]

Valerie,

I’m glad things are working out for you! I would love a copy of the rice milk recipe. I don’t know what I did with the first one that you posted! Something that might come in handy for us.

[Anonymous]

Valerie,
That’s great that you were able to come up with a rice milk formula for your daughter. I know of another mom who did the same thing. We were considering using her formula at one time, but unfortunately we needed a concentrated form (for fortifying) and hers wasn’t.

I’m so sorry to hear about her scary episodes! Do things seem to be under control now?

Good luck with everything!

[Author]

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